DEBRA Australia

Support EB families with an impactful gift this Christmas! Please donate now to directly help individuals and families living with EB: https://lnkd.in/gsZUDCtP Thank you for your support, and we wish you a safe and happy holiday season!

This Christmas, give a gift that will have a real impact on a child with EB. Any amount, big or small goes a long way into providing children like Sofia with the care they need. Please donate now: https://lnkd.in/gsZUDCtP

Today we would like to give a special thank you to Future Generation (FGX), who have been loyal supporters of DEBRA Australia and our EB community since shortly after FGX began, 10 years ago to date. As one of FGX's social impact partners, DEBRA Australia has been incredibly fortunate to have received ongoing annual funding. This funding has supported us to continue providing programs like our EB Nursing, Psychology, and Family Support programs to name a few, as well as responding to over 730 assistance applications this past FY alone. Thanks to their support, we can continue working towards a brighter future for families living with EB, with 92% of people recently surveyed agreeing the DEBRA Australia helped improve their overall quality of life. Thank you, FGX, for joining us in helping to make a difference for EB families and their brave Butterfly Children 🦋

With your support, we can continue to provide access to DEBRA Australia programs- together, we can help families living with EB have more choice and options when growing their families. Please donate now: https://lnkd.in/gsZUDCtP

Calling all EB researchers and health professionals! DEBRA UK have recently released a number of research funding grants for 2025. These grants will open in early 2025 and are open to international applicants, including from Australia. To find out more and apply head to: https://lnkd.in/gdNiPGpr

Can you help families living with EB? With your help, together, we can assist families in gaining access to the support services provided by DEBRA Australia, so children like Sofia can keep smiling this Christmas. Please donate now: https://lnkd.in/gsZUDCtP

Congratulations to our supporters at Future Generation for launching Future Generation Women - such a wonderful initiative!

A reminder to have your say on EB research priorities for the future through completing this global survey. The response deadline is now extended to this Monday 2 December 👇

Lisa Brains Scholarship applications close soon! DEBRA Australia is offering PhD scholarship funding for early career researchers interested in undertaking a PhD program on a research project to improve the health and well-being of children and adults with Epidermolysis Bullosa (EB). Interested? Find out more here: https://lnkd.in/dUs2dnxy Please note applications close this Saturday 30th November at 5pm AEDT.

Thank you all for joining us in raising awareness during #EBAwarenessWeek2024! Our annual fundraising event, Walk for Wings, saw over 140 people participating in walks during EB Awareness Week 2024. This fantastic community effort helped raise over $15,000 to support DEBRA Australia’s programs and help people living with EB. If you have any feedback you would like to share with us about Walk for Wings 2024, please complete the below quick survey, and help shape next year's event: https://lnkd.in/gSiMAdM8 While EB Awareness Week may be over, the work to improve lives for those living with EB continues. Thank you for standing with us—we’re stronger together.