Turnto

Long Covid & ME/CFS sucks, we all know it. But you know what might suck even more? Doctors ignoring patients, and patients being able to uncover the pockets of potential treatments or interventions that could be helping. Turnto is launching into Long Covid and ME/CFS today to democratize the information out there and speed up health breakthroughs for every single person. This is personal for us, with people with lived experience in our team, and this is just the beginning. Take a look: https://www.turnto.ai #longcovid #mecfs #healthtech #patient

Turnto is now live to the Parkinson’s community, and first few weeks have been incredible! So many valuable insights are being shared for patients and carers on this road. If you want to hear more about Turnto and our story, take a listen to a new interview with our founder Jessica Dove London who got to sit down with with two incredible advocates in the Parkinson’s space George Ackerman, Ph.D., Esq., MBA and Esther Labib-Kiyarash, MSHA, CPHQ

What’s been happening in Parkinson's this week? Here is the snapshot👇 Most popular new research papers: 🤖 Machine Learning Technology Provides Insights into Parkinson's Disease Progression 🧠 Combination of rTMS and EEG-guided Neurofeedback Improves Motor Symptoms in Parkinson's Disease 🧬 Potential Parkinson's Disease Treatment Found by Targeting PDCD4 Protein New from leading advocates and organisations? 📢 Watch new video with Joanne Baker sharing why the Parkinson Ready Program is important for cities like Vancouver to reduce the stigma and increase knowledge about Parkinsons from World Parkinson Congress Inc 📢 Niloofar Tavakoli writes up her take on the groundbreaking clinical trial following successful preliminary studies in non-human primates 📢 Checked out Luxembourg Institute of Health newest newsletter and breakthroughs in brain immunity. 📢 Check out The Michael J. Fox Foundation for Parkinson's Research write up of the new levodopa/carbidopa formulation for use in Parkinson's New episodes worth checking out 📺Check out the Secret Life of Parkinson’s latest episode on “Overcoming Challenges with Parkinson's exercises” Jessica Krauser 🙋♀️Keen for links & interesting deets? Sign up to Turnto's weekly updates and the waitlist for the app. Launching to PD in one week! https://lnkd.in/gkFBQP9M #Parkinsons #PD #Healthtech

What’s been happening in Cerebral Palsy this week? Here is the snapshot👇 Most popular new research papers: 💪 A new study looks at a coactivation strategy in anticipatory postural adjustments during voluntary unilateral arm movement while standing in individuals with bilateral spastic cerebral palsy 🧠 A RCT looks at the relationship between sensory and visuo-perceptual impairments and motor function 👨👩👧 A study on a new gross motor family report published with parent input Real time insights from patients captured this week from patients inside the app: 🗣️ 26% of patients do not feel supported at all by their health teams in their CP management 🗣️ 65% of patients get their most useful information on CP from onlien communities or online search 🗣️ Financial insecurity is listed as biggest unmet social need due to living with Cerebral Palsy New from leading advocates and organisations? 📢 CanChild Centre for Childhood Disability Research are offering a workshop on how the F-words have been implemented into clinical practice Olaf Kraus de Camargo 📢 Awesome opportunity for from Cerebral Palsy Foundation for early career mentorship with people living with CP now open. 📢 Calling everyone in NZ in the CP world Cerebral Palsy Society of New Zealand is having their AGM- get involved. Podcast + Youtube Recommendations: 🎧Jessica Dove London shares journey of starting Turnto, first for CP, on Post Exertional Mayonnaise podcast 📺 New video on Dystonia with Dr Darcy Fehlings and Brenda Agnew just landed from CanChild Centre for Childhood Disability Research Keen for links & interesting deets? Get the weekly on top email and more detail here: https://www.turnto.ai/ #cerebralpalsy #healthtech

What’s been happening in #LongCovid #MECFS this week? Here is the snapshot👇 Most popular new research papers: ⚡ Transcutaneous Vagus Nerve Stimulation and Long COVID 🔬 Potential Pathophysiological Mechanisms of ME/CFS 🌿 Sijunzi Decoction, a Classical Chinese Herbal Formula for ME/CFS Real time insights from patients captured this week from patients inside the app: 🗣️ 54% of patients have experienced unemployment due to Long COVID or ME/CFS 🗣️ 30% of patients rate pacing as a highly effective tool to manage symptoms, with another 58% rating it as somewhat effective 🗣️ 48% of patients have not yet tried low-dose naltrexone but are willign to try New from leading advocates and organisations? 📢 Important article written by Karen Hargrave in the times on her husband's ME experience and their new campaign #ThereforME 📢 Long Covid Support are one of 15 organizations backing a new policy brief calling on the government to an NHS that's there for Long Covid + ME 📢 Sean O'Neill published a heartbreaking account of his daughter's inquest after passing away at age 27 with severe ME in 2021. Podcast Recommendations: Jessica Dove London on Post Exertional Mayonnaise Toby Morrison shares How to talk to your loved ones about Chronic Fatigue Keen for links & interesting deets? Take a look at last week's newsletter in the comments below

We hear all the time from health consumers that it is SO hard to navigate the overwhelming amount of information out there - and to work out what is useful, and what isn’t. The feedback we got from a carer below, really sums it up for us, and why we do what we do. ”I really appreciate the app, our 2 yr daughter has CP, and even though I work at an academic medical centre, the condition has been difficult to navigate. The app has been a huge help in collecting clinical/research information, and lived experience from others in the CP community”. #cerebralpalsy #cp #healthtech

Big news! Turnto is about to launch it’s Parkinson’s community. Parkinson’s is the fastest growing neurological condition in the world. Researchers still don’t know why people get Parkinson’s, or how to cure it. But there are lots of different treatments, therapies and support available and helping now. And it’s thanks to the amazing work of organisations like Shake It Up Australia Foundation for Parkinson's Research who are leading this work at the forefront of cutting edge research and fighting for a cure. Sign up now if you want to get early access to daily health breakthroughs for Parkinson’s here: https://lnkd.in/gkFBQP9M #parkinsons #healthtech

"Most doctors that I have found personally do not have the most current knowledge or information. And honestly, a lot of the times they don't stay up to date with it, and they have their own bias". 🗣️Patient living with Long Covid for 21 months Stay up to date, better. Our mobile app live now for #MECFS #LongCovid and #CerebralPalsy. About to go live #Parkinsons #MS #Spinalcordinjury https://www.turnto.ai/

There are a 1000+ reasons why it is so hard to find + uncover better treatments and interventions for Long Covid + ME/CFS and every other condition! We got to sit down with Harry Boby this week and talk about this, recovery, and why our app is trying to solve this. It's personal. It's ambitious. But it's not polished, just a real honest conversation. And for those who have already joined, it is just the start as the problem is BIG! Watch the interview here with Jessica Dove London and why we started this app: https://lnkd.in/gTKaUGVa #Longcovid #mecfs

It has been a steep learning curve for our team getting the app ready for Long Covid and ME/CFS. And it is just the beginning. Check out how we are building our app with the community on our public feature request page, and if you are using the app vote up/down what you care about (or suggest new ideas). https://lnkd.in/gzPU_V-g #LongCovid #MECFS #ME #Healthtech #Buildinginpublic