European Pulmonary Fibrosis Federation (EU-PFF)

🌟 LAST CALL: Informative Session on Nutrition & Pulmonary Fibrosis! 🌟 📅 Date: Wednesday, 15th January 2025 ⏰ Time: 18:00–19:00 CET 🎙️ Speaker: Rasleen Kahai, Senior Dietician, Royal Brompton and Harefield Hospitals Trust, London, UK. Living with pulmonary fibrosis brings unique challenges, especially when it comes to maintaining a healthy diet and good nutrition. Whether it’s dealing with weight loss, managing to keep weight on, or navigating treatment side effects that impact appetite and diet, Rasleen Kahai will provide practical insights and guidance. With her deep understanding of patients’ needs and the science behind nutrition, Rasleen is here to help you take charge of your diet for better health and well-being. 📌 Don’t miss this opportunity to gain expert advice! 💻 Register now to secure your attendance https://buff.ly/41FwMwS

🌟 Reminder: Informative Session on Nutrition & Pulmonary Fibrosis! 🌟 📅 Date: Wednesday, 15th January 2025 ⏰ Time: 18:00–19:00 CET 🎙️ Speaker: Rasleen Kahai, Senior Dietician, Royal Brompton and Harefield Hospitals Trust, London, UK. Living with pulmonary fibrosis brings unique challenges, especially when it comes to maintaining a healthy diet and good nutrition. Whether it’s dealing with weight loss, managing to keep weight on, or navigating treatment side effects that impact appetite and diet, Rasleen Kahai will provide practical insights and guidance. With her deep understanding of patients’ needs and the science behind nutrition, Rasleen is here to help you take charge of your diet for better health and well-being. 📌 Don’t miss this opportunity to gain expert advice! 💻 Register now here https://buff.ly/41FwMwS

🌟 Join Us for an Informative Session on Nutrition & Pulmonary Fibrosis! 🌟 📅 Date: Wednesday, 15th January 2025 ⏰ Time: 18:00–19:00 CET 🎙️ Speaker: Rasleen Kahai, Senior Dietician, Royal Brompton and Harefield Hospitals Trust, London, UK. Living with pulmonary fibrosis brings unique challenges, especially when it comes to maintaining a healthy diet and good nutrition. Whether it’s dealing with weight loss, managing to keep weight on, or navigating treatment side effects that impact appetite and diet, Rasleen Kahai will provide practical insights and guidance. With her deep understanding of patients’ needs and the science behind nutrition, Rasleen is here to help you take charge of your diet for better health and well-being. 💻 Register now https://buff.ly/41FwMwS and join us to learn how to tackle these challenges effectively.

🩵 We’re proud to support the Joint Statement issued by European Lung Health Group on smoke- and aerosol-free environments, of which EU-PFF is a member. Together with our partners, we remain committed to advocating at the EU level for Pulmonary Fibrosis patients and the broader respiratory community 🩵 Click here to get more information: http://surl.li/rrndhb #Advocacy #PulmonaryFibrosis #StrongerTogether #LungHealth

⭐ We are excited to announce that the EU-PFF webinars are back! The first webinar will be held on December 10th , 18.00 -19.15 CET. Latest research on pulmonary fibrosis - highlights from ICLAF 2024 Every 2 years, leading researchers from around the world congregate to discuss the latest research on pulmonary fibrosis at the International Colloquium on Lung and Airway Fibrosis (ICLAF). This year, the meeting was held in Athens, Greece. In this webinar, three leading researchers will highlight the most exciting research coming out of ICLAF 2024. They are: ✔️Professor Argyris Tzouvelekis, University of Patras, Greece ✔️Professor Marlies Wijsenbeek, Erasmus Medical Centre, Rotterdam, Netherlands ✔️Professor Michael Kreuter, University of Mainz, Germany. The webinar will be moderated by Steve Jones, Emeritus President, EU-PFF and there will be time for Q+A. Go here to register for the webinar!: https://buff.ly/4g3Z7AW

As #PFMonth 2024 comes to a close, our dedicated EU-PFF members and partners have a powerful message: "Oxygen is a human right!" This past month, we have been advocating for equitable #OxygenAccess for all who need it. Our call for oxygen to be recognised as a basic human right reflects our hope that every #PulmonaryFibrosis stakeholder—medical professionals, healthcare authorities, researchers, patient organisations, and families—works together to achieve this goal. We extend our deepest gratitude for your support in raising awareness, sharing experiences, and advocating for change. Together, we have made significant strides, and we aim to build on this momentum as we continue our efforts to improve the lives of PF patients. #ThankYou #BreathingLife #CurePF # #OxygenAccess

Thank You to Our Sponsors for #PFMonth 2024! 🙌 We would like to extend our deepest gratitude to our amazing sponsors, Boehringer Ingelheim and Chiesi, for their outstanding support for this year’s Pulmonary Fibrosis Awareness Month. Together, we can make a meaningful difference by driving important conversations, raise awareness of key issues surrounding PF and work towards a better future for everyone impacted by this condition. Thank you for standing with us! #BreathingLife #OxygenAccess #CurePF

Today marks the final day of #PFMonth, and we want to thank everyone who has joined us in raising awareness and advocating for better #PulmonaryFibrosis support, research and policies, and equitable #OxygenAccess. However, don’t just stop here. We encourage you to take some time today to explore the resources, consultation guides, and informative videos available on EU-PFF.org and through our partner organisations. Whether you are a patient, caregiver, or simply want to learn more, these resources offer important information that can help you navigate this challenging condition. By educating yourself and others, you can make a real difference in the lives of those affected by PF. #CurePF #BreathingLife

Katarzyna Lewandowska, EU-PFF Scientific Advisory Board Member (Poland) and IPF Polish Society, highlights a significant issue: Many #PulmonaryFibrosis patients receive oxygen reimbursement for home use after respiratory failure is addressed, but those who need mobile oxygen devices earlier, especially during exercise, often find these are not covered. This reveals a critical gap in healthcare systems, where patients who require mobile oxygen for daily activities are left without the necessary support, significantly impacting their quality of life. We need to advocate for better support and more inclusive reimbursement policies. #PFMonth #BreathingLife #OxygenAccess #CurePF

As we near the end of #PFMonth, EU-PFF remains firmly committed to standing by #PulmonaryFibrosis patients worldwide. We continue to support their pursuit of better treatments, advancements in research, and equitable #OxygenAccess for everyone who needs it. Thank you for being an essential part of this journey. Let's keep the momentum going as we continue to fight for better outcomes for all those affected by PF. #CurePF #BreathingLife #Thanks