Brain Cancer Canada

NEW WEBSITE SNEAK PEEK👀 The countdown is on ⏳️ Brain Cancer Canada will launch its NEW website in less than three weeks. We are delighted to offer more information, resources, and pathways to the brain cancer community. The new site will include NEW features such as: ➡️ Pathways to resources for patients and caregivers to help ease the challenges of a brain cancer diagnosis. ➡️ A streamlined research funding application process for researchers and scientists who are working hard on discovering new treatment options ➡️ Various ways for you, our community, to come together and rally for the brain cancer community. Stay tuned!!! ABOUT BRAIN CANCER CANADA Brain Cancer Canada is a national, volunteer charity that funds research, neurosurgical technologies, and advocates for effective treatment of primary malignant brain tumours, pediatric and adult. #newwebsite #comingsoon #pathways #resources #braincancer #primarymalignantbraintumours

BRAIN CANCER CANADA'S REACTION TO THE MINISTER OF HEALTH'S RESPONSE TO PETITION E-5118: Just like funding for brain cancer research, therapies, and clinical trials, the Minister of Health’s response falls short. To-date, 1334 Canadians, from every province and territory across Canada, have signed petition e-5118 (open for signatures until January 2025), calling on the Government of Canada to: 🧠 increase funding for brain cancer research 🧠 work with provinces and territories to ensure that drugs, medical devices, and new therapies are accessible to brain cancer patients nationwide 🧠 remove red tape so brain cancer drugs can be approved more quickly. On November 25, 2024, the Minister of Health issued a response to the petition. Click the link to read the Minister's response: https://lnkd.in/gDSWuPSV While we appreciate the acknowledgment, it's clear that greater transparency and clarity is needed to overcome the barriers our community faces. Brain Cancer Canada is taking some time to prepare a formal response to the Minister. In the meantime, we invite you - members of the brain cancer community - to read the Minister’s response. We encourage you to help us by sharing your experiences below regarding any challenges/bureaucratic roadblocks you have faced as a patient or caregiver with regard to issues such as: ➡️ Access to treatments (ie: chemotherapy, immunotherapy, experimental therapy, inhibitors, optune, proton therapy) ➡️ Access to care (ie: surgery, radiation, imaging, rehab, social services) ➡️ Access to clinical trials YOUR experience paints a picture of where the system may fall short and how we can best advocate for the (basic) needs of brain cancer patients and their families. Thank you for your continued engagement and support as we work together to bring about positive change. Special thanks to Tammy Farand, Farands for the Fight, and MP Michael Cooper for your time and effort in drawing attention to this critical concern. Brain cancer patients and families deserve better Comments below or email cure@braincancercanada.ca #petitione5118

Pouvoir du 9 ECRIT PAR: Stephanie, la maman de Florence Le 31 mai 2021, j’entendais pour la première fois les mots ‘gliome infiltrant du tronc cérébral’. C’était dans une petite salle pleine de gens qui m'annonçait le diagnostic de ma fille de 4 ans alors, Florence. Par le fait même, nous apprenions le prognostic : sa survie était de 9-12 mois suite au diagnostic. Aucun remède. Très peu d’espoir. Un diagnostic cruel et inconcevable pour notre coeur de parents. Nous sommes allés aux États-Unis, moyennant d'immenses coûts, pour tenter de la sauver. Nous avons frappé à tellement de portes ici comme partout dans le monde. Lorsque la tumeur gagnait du terrain et que la mobilité de Florence s’en ai trouvé affectée, nous cherchions une façon d’obtenir des médications ici, sur une base compassionnelle. Malheureusement, cette tumeur sournoise volait une à une les fonctions vitales de ma belle Florence, désormais âgée de 5 ans. 9 mois après son diagnostic, le 25 février 2022, Florence a troquée son armure de princesse guerrière pour ses ailes d’ange. Volée beaucoup trop jeune par une tumeur méconnue, et qui pourtant, est la principale cause de décès par tumeur cérébrale chez les enfants de 0 à 14 ans au Canada. En amont de nos efforts pour sauver notre fille, j’ai tissé des liens avec d’autres parents ayant eu le même diagnostic que ma fille. Nous avons donc uni nos forces, d’abord en interpellant nos élus afin de faire reconnaître cette maladie en lui octroyant une journée officielle. Ce sont aussi ces parents qui m’ont introduit à Brain Cancer Canada. Un organisme dont les membres des différents comités sont tous volontaires et qui ont tous été personnellement affectés par une tumeur cérébrale, soit eux-même ou un membre de leur famille. En devenant ambassadrice au sein de leur organisation, j’ai découvert une communauté déterminée à changer les choses au Canada tout en honorant nos proches qui nous ont été volés par une tumeur cérébrale. En donnant à Brain Cancer Canada, tous vos dons vont à la recherche. Et la recherche est essentielle pour comprendre et éventuellement, gagner contre ces terribles maladies. Pour que plus aucune famille n’entende ‘Rentrez chez vous, fabriquez des souvenirs, il n’y a aucune cure, vous perdrez votre enfant d’ici 9-12 mois.’ Stephanie, La mère aimante de Florence https://lnkd.in/gkM_AqRB #Pouvoirduneuf #tumeurscérébrales #recherche #sauverdesvies

Brain Cancer Canada would like to express our heartfelt gratitude to our Printing Sponsor of Record, TI Group, for their years of generosity and support. Since 2021 TI Group has invested over $100,000 in-kind, towards the fight against brain cancer. Sadly, TI Group has been affected by brain cancer. Like Brain Cancer Canada, their commitment to making a difference is deeply personal. Angela Scalisi, Chair of BCC, expresses her gratitude to TI Group, stating, "Since 2021, TI Group has increased Brain Cancer Canada's visibility and been instrumental in helping us achieve our communication goals nationwide. Their in-kind contributions have been vital in bringing BCC's projects to life, from direct mail campaigns to gala program guides and everything in between." Print communications are essential because they provide a tangible and credible way to convey information, ensuring that messages are not only seen but also remembered. In a digital age, print offers a unique opportunity to engage audiences on a deeper level, fostering trust and connection. TI Group’s President, Renee Walsh is pleased to support Brain Cancer Canada: “TI Group is proud to support Brain Cancer Canada, a volunteer-based national charity. We greatly admire the charity’s advocacy efforts to promote progress, raise awareness, as well as their determination to improve brain cancer patient outcomes through research. We sincerely hope that our contributions as partners in printed communications will make a meaningful impact.” Thanks to TI Group, a larger portion of your donation goes directly to research. We are truly thankful for TI Group’s support and look forward to continuing this successful partnership in the future! ABOUT TI Group Leaders of integrated visual communications – committed to exceeding customer expectations, including creative presentations, project execution, distribution and installation.  TI Group’s strength lies in their breadth and depth of skills from all of our brands, enabling them to offer a one-stop, total solution. #printsponsor #braincancerresearch #CSR #corporatesocialresponsiblity 

What can Canadian researchers, clinicians, cancer agencies and patient leaders do differently to shift the survival curves and help cancer patients live longer and with a better quality of life? Join Robert Bick, Co-Lead, Health Policy Consultant, CanCertainty; Anita Angelini, Vice Chair, Brain Cancer Canada; Dr. Rodney J. Ouellette, Sr. Researcher, Founder, Atlantic Cancer Research Institute - Institut atlantique de recherche sur le cancer; and Moderator: Fred Horne, Policy Consultant for a Leadership Discussion on Dec 3, 2024, at 12 pm EST. https://lnkd.in/evSFNbk8

Power of 9 WRITTEN BY: Penn’s Mom, Catherine G. On April 30, 2021, our families' lives were shattered when we learned that our nearly four-year-old daughter, Penn, was diagnosed with brain cancer – she was among the 9 Canadians who receive this heartbreaking news every day. In the months that followed, Penn endured two craniotomies, 33 radiation treatments, and three rounds of chemotherapy. Despite her incredible courage and resilience, Penn lost her life on June 21, 2022. Every day since, I've wondered: What could her future have held if there were better treatments for pediatric brain cancer patients? Would she still love the colour blue? Would she have learned to ride her bike? Would she have continued to be a foodie, savouring okonomiyaki and cucumber with chili oil? What would she have worn on her first day of kindergarten? The pain of never knowing these answers is overwhelming. I became a Brain Cancer Canada engagement ambassador because of the unwavering commitment and dedication this organization has shown to families like ours. Their work is a lifeline for so many, and I wanted to do my part to support their mission. To honour Penn's memory and raise funds for critical research, I launched a Penn the Brave $9 challenge fundraising page. Though it won’t bring her back, my hope is that it will help raise awareness and contribute to advancing treatment options, so that one day, other families won’t have to face the same heartbreak. I chose $2400 as my goal, a number that represents Penn’s birthday—because her memory, and the fight for better outcomes, will never be forgotten. Catherine & Sheldon Penn's mom and dad https://lnkd.in/gza8PYg2 #powerofnine #ninedollarchallenge #braincancerresearch #penn

On National Philanthropy Day (NPD), we celebrate the extraordinary change that fundraising and philanthropy have helped to create in our world! The word philanthropy comes from Ancient Greek φιλανθρωπία (philanthrōpía), which translates to "love of humanity". philo - to love anthrōpos - humankind In the second century CE, Plutarch used the Greek concept of philanthrôpía to describe superior human beings. Today, Brain Cancer Canada recognizes the contributions of all the “superior human beings” who have helped us raise over 2.8 million dollars and have made it possible to award 19 innovative grants in brain cancer research. Thanks to philanthropy, a future without brain cancer is possible. Celebrate National Philanthropy Day with a Gift: https://lnkd.in/gDRtjGYq #NationalPhilanthropyDay #NPD

What Do These 9 People Have in Common? They have all been diagnosed with brain cancer. Every day in Canada, 9 people receive this lethal diagnosis. Thanks to well-funded research led by brilliant doctors and scientists, the field of cancer research is advancing rapidly, saving many lives. But sadly, this progress has not benefited all cancer types, particularly brain cancer. You can help us fight brain cancer with #research by donating just $9. That’s $1 for each person diagnosed today! Please consider donating. There is no time to waste. Lives are at stake.  Click to donate: https://lnkd.in/gDRtjGYq #ninedollarchallenge #braincancerresearch #powerofnine #ninefornine

Brain Cancer Canada is thrilled to announce it has awarded 2 research grants totalling $150,000.00 for pediatric brain cancer research🔬🥼🧪 These grants were made possible by funds raised during the “No Child Should Have Less Than a Year to Live” campaign. This initiative was fueled by the tremendous support of families and friends in the DIPG community, with a significant donation made by Kayge Fighters Foundation. We celebrate the current grant recipients, and all previous awardees, who, through their research, tenacious drive, and willingness to collaborate, join us in the fight for better outcomes for brain cancer patients. Congratulations to our first group of awardees in 2024-2025: RESEARCH GRANT RECIPIENT #1 🏆Dr. Cynthia Hawkins, The Hospital for Sick Children 🔬Research Focus: DIPG/DMG 💲Grant Amount: $100,000 RESEARCH GRANT RECIPIENT #2 🏆 Dr. Shawn Beug, CHEO (Children’s Hospital of Eastern Ontario) 🔬Research Focus:  All pediatric brain tumours 💲Grant Amount: $50,000 Official grant announcements with complete details will take place in December🧠 #pediatricbraincancerresearchgrants #drhawkins #drbeug

Brain Cancer Canada’s (BCC) Request for Proposal (RFP) invites researchers and institutions to apply for Primary Malignant Brain Tumour research funding. Brain Cancer Canada may award multiple grants in value of up to $100,000 (CAD) each. This Request for Proposals (RFP) is made possible by our most recent fundraising gala. The funds raised through our supportive community are purposefully and immediately allocated to brain cancer research. Brain Cancer Canada would like to extend our heartfelt gratitude to our incredible donors for their invaluable support – because of your tremendous generosity, we can continue funding vital research initiatives. We would like to especially thank this year’s Gala For Brain Cancer Research Event Sponsor AUTO ONE GROUP, major sponsors Saporito Foods Inc. (Canada), Resform Group, OFA + CFAO, Local 27, TI Group, Segal GCSE LLP, and all our corporate donors and guests. Without your support, this RFP would not be possible. Thank you to our community for standing with us. Your support means the world and fills us with hope because together, we know there is a better chance in the fight against brain cancer through research. RFP DEADLINE & HOW TO APPLY Email sac@braincancercanada.ca for eligibility and details. Deadline: 11:59 PM EST, December 15, 2024. #braincancerresearch #braincancerrfp #rfp #MalignantBrainTumours #primarymaligantbraintumour #RESEARCH