Zebricks

𝗛𝗼𝘄 𝗺𝘂𝗰𝗵 𝘁𝗶𝗺𝗲 𝗱𝗼 𝘆𝗼𝘂 𝘀𝗽𝗲𝗻𝗱 𝗱𝗲𝗳𝗲𝗻𝗱𝗶𝗻𝗴 𝘁𝗵𝗲 𝘃𝗮𝗹𝘂𝗲 𝗼𝗳 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗲𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁? For many patient engagement professionals, it’s too much. Imagine if that time was spent engaging with patients instead. The 𝗩𝗼𝗶𝗰𝗲 𝘁𝗼 𝗩𝗮𝗹𝘂𝗲 case study in the new #ISPEP hub offers a series of case studies to support patient engagement teams in internal conversations Zebricks' latest analysis on patient input in Canada’s HTA submissions is featured in the Access & Reimbursement category The TL:DR version: 95% of HTA submissions now include patient input in Canada. Industry need to engage early with patient communities to: > Understand and thoroughly document unmet patient needs that future therapies might address > Facilitate meaningful real-world evidence collection. > Educate on patient input methodologies that HTA assessors prioritize in reimbursement decisions. The full analysis can be accessed here: https://lnkd.in/gurcaZkM The ISPEP hub is filled with other incredible practical case studies, so make sure to check them out! What other case study would make those tough internal conversation easier to navigate? #patientengagement #HTA #patientinput

⏱️ 15 hours. That’s how long Parexel's Patient Partnership team spent doing desk research into the Patient Advocacy Group (PAG) landscape for every study. Although essential, those 15 hours could be better spent forming meaningful partnerships and driving patient-guided efforts forward. Equipped with real-time and comprehensive insights into PAGs, turning hours of desk research into minutes, Parexel can reallocate the time saved on what really matters—patients. Curious how Zebricks helped transform their approach? Read their story: https://lnkd.in/e8WU8nyv #patientengagement #patientadvocacy #Parexel

In 2023, 95% of HTA submissions to Canada’s Drug Agency included patient input. Back in 2014, it was just 18%. PAG involvement is now a key part of Canada’s HTA process. Interestingly—only 15% of Canadian PAGs have been involved so far. 𝗪𝗵𝗮𝘁 𝗱𝗼𝗲𝘀 𝘁𝗵𝗶𝘀 𝗺𝗲𝗮𝗻 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗳𝘂𝘁𝘂𝗿𝗲 𝗼𝗳 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗲𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁? We’ve gathered all the answers in our latest report. Take a look here: https://lnkd.in/gCis-rPD What findings surprised you the most? And what else are you dying to know? #patientadvocacy #HTA #marketaccess #patientinput #cadth #cda

🚨Tech-Powered PAG Mapping Now Available🚨 At assemble, we add value to industry teams by providing flexible, custom services tailored to our clients’ specific needs. Because we’re a small and nimble shop, we’re always looking for new technologies that will help amplify our impact and allow us to focus our brain power – and our clients’ investments – on the most challenging strategic questions.     That’s why we’re thrilled to introduce Zebricks as a new strategic resource. Zebricks’ technology helps us deliver faster results, rightsize research costs, and provide actionable insights that drive smarter decision-making. assemble’s most sophisticated clients are increasingly demanding both strategic insights, data-driven research and metrics to elevate their patient advocacy efforts. Pairing assemble's deep industry and advocacy expertise with Zebricks’ tech provides clients the best of both worlds. By leveraging Zebricks’ intelligence, we can boost accuracy in PAG landscape and activation mapping while saving our clients time, money, and effort. So, whether you're:  - new in role and need to get the basics right,  - entering new indications,  - approaching key R&D milestones,  - or finally ready to build a comprehensive advocacy plan focused on driving business AND patient value, we can now deliver global engagement strategies faster and with less research investment. Wanna learn more? Let’s chat and explore together! Shout out to the brilliant Anne-Marie Bisson for building something so useful and forward thinking. #PatientAdvocacy #PatientEngagement #DataDrivenSolutions

There are more than 900 PAGs in Canada and 20% have submitted input in HTA submissions reviewed by Canada Drug Agency. In her last post, our brand leader Anne-Marie Bisson highlights interesting facts about those submissions. Stay tuned for the full analysis release! Add a ✋ emoji to receive your copy directly!

The FOMO was real last week seeing all the #ASCO2024 buzz on my LinkedIn feed… looking in from my home office! 👀😢 I've been keeping track of some key life-science events with a strong patient community presence and figured I couldn’t keep this list to myself. I’m planning on attending a couple in the fall. But still deciding which one 🤔 Which patient-centric event do you never miss? Let’s add to the list. I’m sure I’m missing a few! #PatientCentric #LifeScience #Conferences #Networking

📅 In case you missed it, here are some of May's Disease Awareness Days! And some others to look forward to in June: ❤️ Stroke Awareness Month 👨 Men's Health Month 🧠 Migraine Awareness Month What else is on your calendar? Are you keeping track of these important dates? If not, reach out to us to learn how to automate this process and stay informed effortlessly. #awarenessdays #diseaseawareness #healthcalendar

You can't cross these drug development milestones without mapping out the key patient advocacy stakeholders that you could involve. Check out what these milestones are 👇 🟣 Stay tuned for a complete step-by-step walkthrough in our upcoming blog post on how to develop a meaningful and comprehensive patient advocacy group landscape.

Zebricks is coming to Boston April 23-25! Our brand leader, Anne-Marie Bisson, and business consultant Jeffrey Cazeault will be at the World Orphan Drug Congress and are eager to connect. #WorldOrphanUSA

We named ourselves after the zebra as a tribute to the rare disease community, the pioneers of the patient advocacy movement, providing a blueprint for all other disease communities to do the same. #rarediseaseday is a day to reflect on the amazing accomplishments made possible by this community, but also remember that we still have a lot of work to do! #showyourstripes #shareyourcolours