Findata’s data transfer services are being renewed – the new secure transfer service, Supertunneli, will be gradually introduced starting 1 April 2025. ℹ Based on the S3 interface, Supertunneli (Finnish for ‘super tunnel’) enables smoother transfers of larger datasets, with automatic encryption and decryption. “The implementation will be done in stages, starting with the data holders whose datasets are most frequently used through Findata,” says Dr. Hannu Vilpponen, Head of ICT at Findata. The development of the transfer services is part of the EU co-funded #FinHITS project. Read more: https://lnkd.in/g9sFJX58 #HealthData #DataTransfer #EU4Health
Findata – Finnish Social and Health Data Permit Authority
Government Administration
Helsinki, Southern Finland 4 054 seuraajaa
Streamlining and securing the secondary use of Finnish social welfare and health care data.
About us
Findata on sosiaali- ja terveysalan tietolupaviranomainen, jonka toiminta perustuu toisiolakiin eli lakiin sosiaali- ja terveystietojen toissijaisesta käytöstä. Myönnämme lupia tietojen toissijaiseen käyttöön, yhdistämme aineistot tietoturvallisesti ja edistämme kansalaisten tietosuojaa. Toimimme Terveyden ja hyvinvoinnin laitoksen (THL) yhteydessä, eriytettynä THL:n muusta toiminnasta. --- Findata är tillståndsmyndigheten för användning av social- och hälsovårdsdata, vars verksamhet grundar sig på lagen om sekundär användning, dvs. lagen om sekundär användning av personuppgifter inom social- och hälsovården. Vi förbättrar informationssäkerheten för material som innehåller social- och hälsovårdsuppgifter och gör det möjligt att utnyttja dem effektivare. Findata finns i anslutning till Institutet för hälsa och välfärd, THL, åtskild från institutets övriga verksamhet. --- Findata is the Finnish Social and Health Data Permit Authority, and its activities are based on the Act on the Secondary Use of Health and Social Data. Findata promotes secondary use of Finnish health and social care data, facilitates data permit processing and improves data protection for individuals. Findata operates in conjunction with the National Institute for Health and Welfare but separately from the Institute’s other activities.
- Sivusto
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https://findata.fi
External link for Findata – Finnish Social and Health Data Permit Authority
- Toimiala
- Government Administration
- Yrityksen koko
- 11–50 työntekijää
- Päätoimipaikka
- Helsinki, Southern Finland
- Tyyppi
- Government Agency
- Perustettu
- 2019
Sijainnit
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Ensisijainen
Get directions
Mannerheimintie 166
P.O. Box 30
Helsinki, Southern Finland 00300, FI
Työntekijät Findata – Finnish Social and Health Data Permit Authority
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Peija Haaramo
Chief Specialist at Findata – Sosiaali- ja terveysalan tietolupaviranomainen | Health and Social Data Permit Authority
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Dr. Hannu Vilpponen
Head of ICT at Findata
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Johanna Seppänen
Director at Social and Health Data Permit Authority Findata
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Hannele Mattsson
Senior Specialist at Findata - Finnish Social and Health Data Permit Authority
Päivitykset
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Findatan siirtopalvelut uudistuvat: Uusi siirtopalvelu Supertunneli otetaan vaiheittain käyttöön 1.4.2025 alkaen ℹ S3-rajapintaan perustuva Supertunneli mahdollistaa isompien aineistojen sujuvammat siirrot sekä aineistojen automaattiset salaukset ja niiden purkamiset. ”Käyttöönotto tehdään vaiheittain aloittamalla niistä rekisterinpitäjistä, joiden aineistoja käytetään Findatan kautta eniten”, sanoo Findatan ICT-päällikkö Dr. Hannu Vilpponen. Lue lisää: https://lnkd.in/dUcRgjVc #TerveysData #Data
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Findata – Finnish Social and Health Data Permit Authority julkaisi tämän uudelleen
🚨 Closing soon! Our public consultation ends this Friday, 28 Feb. If you work with health data, this is your chance to share your input and shape how the #EHDS is implemented to support your needs. Don't miss out – #HaveYourSay! 🔗 https://lnkd.in/gzrHNYXg
📢 𝗣𝘂𝗯𝗹𝗶𝗰 𝗰𝗼𝗻𝘀𝘂𝗹𝘁𝗮𝘁𝗶𝗼𝗻 𝗻𝗼𝘄 𝗼𝗽𝗲𝗻: 𝗛𝗮𝘃𝗲 𝘆𝗼𝘂𝗿 𝘀𝗮𝘆 𝗼𝗻 #𝗘𝗛𝗗𝗦 𝗶𝗺𝗽𝗹𝗲𝗺𝗲𝗻𝘁𝗮𝘁𝗶𝗼𝗻 📢 The European Health Data Space (EHDS) is a key step towards enhancing the secondary use of health data to strengthen research, innovation and public health policymaking across Europe. TEHDAS2 is producing concrete guidelines and technical specifications for the European Commission and Member States to ensure a harmonised implementation of the EHDS regulation. ✍️ Our first set of draft documents is now open for YOUR input: 1️⃣ Draft guideline for data holders on data description 2️⃣ Draft technical specification on the national metadata catalogue 3️⃣ Draft guideline for data users on good application practice for data access and requests 4️⃣ Draft guideline for data users on how to use data in a secure processing environment Submit your comments 𝗯𝘆 🗓️ 𝟮𝟴 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 𝟮𝟬𝟮𝟱: https://lnkd.in/gzrHNYXg ❗️💬 These topics and more will be discussed during the 𝗧𝗘𝗛𝗗𝗔𝗦𝟮 𝘀𝘁𝗮𝗸𝗲𝗵𝗼𝗹𝗱𝗲𝗿 𝗳𝗼𝗿𝘂𝗺 𝗼𝗻 𝟯𝟬 𝗝𝗮𝗻𝘂𝗮𝗿𝘆 𝟮𝟬𝟮𝟱. While in-person attendance is full, online participation is still open. Register by 28 January to join us virtually: https://lnkd.in/eaJwNhZQ Share your expertise to support implementation that benefits everyone. #healthdata #EU4Health #HealthUnion #digitalhealth #TEHDAS2forum Sciensano The Swedish eHealth Agency Masaryk University Brno TMF e. V. Health Data Hub Luxembourg National Data Service (LNDS) Vetenskapsrådet / Swedish Research Council Helsedirektoratet SPMS, EPE - Serviços Partilhados do Ministério da Saúde Region Midtjylland HUS Helsingin yliopistollinen sairaala Gesundheit Österreich GmbH Národné centrum zdravotníckych informácií European Health and Digital Executive Agency (HaDEA) EU Health and Food Safety Nienke Schutte Ann Gustafsson Michael Peolsson Zdenka Dudova Coen H. van Gool Pia Brinkmann, PhD Marianne Benderra
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How were the costs of secondary use distributed in 2024? 🔹 Findata’s share of the total costs decreased from 35% to 27%. This decline is partly explained by reduced permit fees for researcher-initiated studies and increased efficiency in data processing. 🔹 Data controllers’ extraction costs increased – the ten highest-charging data controllers accounted for 90% of the extraction costs. 🔹 Payments for using the secure processing environment Kapseli were a quarter higher than in 2023. In total, €2.2 million was paid through Findata for the secondary use of social and health data. Read more in our Annual report: findata.fi/annualreport #HealthData #AnnualReport #SecondaryUse
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Miten toisiokäytön kustannukset jakautuivat vuonna 2024? 🔹 Findatan osuus kokonaiskustannuksista pieneni 35 prosentista 27 prosenttiin. Laskua selittää muun muassa alennetut lupamaksut tutkijalähtöisille tutkimuksille ja aineiston käsittelyn tehostuminen. 🔹 Rekisterinpitäjien poimintakulut kasvoivat – kymmenen eniten laskuttanutta rekisterinpitäjää kattoi 90 % poimintakuluista. 🔹 Kapselin käytöstä maksettiin viime vuonna neljänneksen enemmän kuin vuonna 2023. Yhteensä Findatan kautta maksettiin 2,2 miljoonaa euroa sote-tietojen luvista ja aineistoista. Lue lisää vuosikatsauksesta: findata.fi/vuosikatsaus #terveysdata #tietolupa #vuosikatsaus #Findata
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Key figures on Findata applications and decisions in 2024 💡 ⬆ The number of data permit applications increased by 29%. ➡ The number of data permit decisions remained nearly unchanged: we granted 113 data permits, four fewer than in 2023. ⬆ The number of amendment applications rose by 6%. ⬆ The number of amendment decisions increased by one-fifth. ⬇ The number of new data requests decreased by 37%. ⬇ The number of data request decisions saw a slight decline: we made 22 data request decisions, four fewer than in 2023. In total, in 2024: 🔹 We received 316 applications (+7%) 🔹 We made 340 decisions (-3%) What do you think about these figures? Share your thoughts in the comments! Read more about our activities last year in our annual report: https://lnkd.in/dWQUXj_K #HealthData #DataPermit #SecondaryUse
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Findatan hakemusten ja päätösten avainluvut vuodelta 2024 💡 ⬆ Tietolupahakemusten määrä nousi 29 %. ➡ Tietolupapäätösten määrä pysyi lähes ennallaan: myönsimme 113 tietolupaa, neljä vähemmän kuin vuonna 2023. ⬆ Muutoslupahakemuksia jätettiin 6 % enemmän. ⬆ Muutoslupapäätöksiä tehtiin viidennes enemmän. ⬇ Uusien tietopyyntöjen määrä laski 37 %. ⬇ Tietopyyntöpäätösten määrä laski hieman: teimme 22 tietopyyntöpäätöstä, neljä vähemmän kuin vuonna 2023. Yhteensä vuonna 2024: 🔹 Vastaanotimme 316 hakemusta (+7 %) 🔹 Teimme 340 päätöstä (-3 %) Mitä ajatuksia luvut herättävät? Jaa ajatuksesi kommenteissa! Lue lisää viime vuoden toiminnastamme vuosikatsauksesta: https://lnkd.in/dvYAmE67 #terveysdata #tietolupa #vuosikatsaus #Findata
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The #EHDS preparations are moving fast, and collaboration across member states is more important than ever. Read our Development Manager Maari Parkkinen's key takeaways from last week’s General Assembly of the #EHDS2 Community of Practice ⬇
Three days of discussions and collaboration for solving problems in Community of Practice’s General Assembly and subgroup meetings. It has been intensive yet rewarding three days.The community of practice and EHDS secondary use preparation progress rapidly and discussions on implementation have a level of detail that was not there a year ago, in the first General Assembly.Here are some personal key takeaways from the discussions in the meetings and on coffee breaks: 👣 Maturity level and a detail of national implementation plans vary in different MSs. ✨ One of the most challenging things will be collaboration between member states and HealthData@EU services - from technical and practical point of views. 💫 What it comes to building AI-based healthcare solutions, we are in the very beginning of the journey and EHDS2 will hopefully open up great opportunities. 👀 In the same time we should learn from the countries already implementing EHDS-like system (such as Finland) but keep in mind that different countries have unique ecosystems and one solution doesn’t necessarily fit all. 🤝 Collaboration with national stakeholders is extremely important while developing national solutions.🙌 There is a strong will to make EHDS reality and a lot of highly-skilled people working on it. We should set our goals high while building the whole ecosystem.
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Greetings from sunny Malta! 🌞 This week some of our team joined the third General Assembly of the #EHDS2 Community of Practice in Valletta. It was a great opportunity to connect with organisations working on the future Health Data Access Bodies and the European Health Data Space. We had plenty of valuable discussions on implementing direct grant initiatives and exchanging best practices. Thank you for great discussions, valuable insights, and, of course, a beautiful setting here in Malta! #EHDS #HDAB #HealthData #HealthUnion #EU4Health
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One week to go until the FinHITS Forum – have you signed up yet? Join us on 19 February 2025 to explore how Findata’s Service Desk is evolving to better support international applicants and the European Health Data Space (EHDS). 🔹 Get a first look at our new tools: chatbot, appointment booking, and application helper. 🔹 Interactive discussion using Mentimeter to share your ideas. 🔹 Insights on aligning services with EHDS requirements. Date and time: 19 February 2025, 12:00–1:30 PM (UTC+2) Location: Online (Teams) Language: English ➡ Register now – registration closes on 16 February: https://lnkd.in/dKHywtuF #EHDS #HealthData #SecondaryUse
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