Just a couple of weeks left to post your Christmas cards to ensure they arrive on time - see last dates for postage below! 🎁⛄ Buy your Cystic Fibrosis Ireland cards NOW for just €6.99 per pack. ORDER HERE: https://buff.ly/3yERzkN
Cystic Fibrosis Ireland
Non-profit Organizations
Dublin 6, Dublin 1,398 followers
Cystic Fibrosis Ireland is a charity supported by fundraising & voluntary contributions & are solely concerned with PWCF
About us
Cystic Fibrosis Ireland is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. We are supported by fundraising and voluntary contributions and are solely concerned with the well-being of people with Cystic Fibrosis. What is Cystic Fibrosis? •Cystic fibrosis (CF) is an inherited chronic disease that primarily affects the lungs and digestive system of about 1200 children and adults in the Ireland (70,000 worldwide). Ireland has the highest proportion of people with CF in the world. Is there a cure? There is no cure for Cystic Fibrosis, but medical research is ongoing in the hope of finding such a cure. Meanwhile, it is necessary to fund the services required to give children and adults with CF some hope of managing their condition CFI Provides: •Funding towards new Cystic Fibrosis units around the country, including dedicated in-patient, day care and out-patient facilities •Advocacy to shape government policy, for example, through the groundbreaking ‘Pollock Report’ on Cystic Fibrosis services and campaigning to improve lung transplantation rates in Ireland •Funding for medical and scientific research aimed at understanding, managing and treating Cystic Fibrosis •Advice, information and advocacy services •Exercise, Transplant and Fertility Grants •Regular information updates on new treatments and developments in Cystic Fibrosis
- Website
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http://www.cfireland.ie
External link for Cystic Fibrosis Ireland
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Dublin 6, Dublin
- Type
- Nonprofit
- Founded
- 1963
- Specialties
- Advice, information and advocacy services, Multidisciplinary posts in hospitals, Medical & Scientific Research, and Exercise, transplant and fertility grants
Locations
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Primary
Get directions
24 Rathmines Road Lower
Dublin 6, Dublin 6, IE
Employees at Cystic Fibrosis Ireland
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Keith McCabe
Former Salesforce and Realex Payments Executive | Board Member & Advisor for Nonprofits & SMBs | Open to Consulting & Strategic Leadership Roles |…
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Jolyn Mulvey
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Prof. Basil Elnazir
Clinical Professor of Paediatrics @ Trinity College Dublin
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Nicola Delaney Foxe
Awareness & Communications Professional, MSc in Public Relations and Strategic Communications
Updates
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Disability identity: what does this mean? What does it entail? To mark 💜 International Day of People with Disability 💜 , we take a look at an article CFI Ambassador and Project Manager at @AccessEarth, Amy Whelan, wrote for our magazine 'Spectrum', asking these questions and discussing how, as a person with CF, Amy identifies as a person with a disability rather than a disabled person. To read the full article, visit https://buff.ly/3OXgSGN #IDPwD #cysticfibrosis #CFIreland #IDPwD2024 #PurpleLights24
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Looking for a place in the Irish Life Dublin Marathon 2025? 🏅 Join the Cystic Fibrosis Ireland team TODAY—we have guaranteed entries! 🏃♂️ Run for a great cause and fundraise for Cystic Fibrosis Ireland. Be part of something special. SECURE YOUR SPOT NOW by clicking this link https://buff.ly/3QdzCTJ #Run4CF Pictured below is Tina Mannion, who was one of our participants in the marathon in October!
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Just 4 more sleeps to Christmas Jumper Day 4 CF this Friday, 6th December!🎄🎅 🎁 REGISTER TODAY to ensure you get your pack complete with Bah Humbug badges on time by clicking on the link https://buff.ly/3qdmSP1 #CJD4CF2024 Pictured below from last year's Christmas Jumper Day 4 CF are the students from UCD Karate Club. Please LIKE and SHARE this post! ❄️🎄⛄
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✨ Support CF research this Christmas! ✨ While life-changing therapies have transformed the lives for many people with CF, there is still work to do. Some therapies don’t work for everyone and rare genotypes remain untreated. With your help, we can invest in research to improve lives and seek to find a cure. 💜 Donate here https://buff.ly/470E2Dk or on Revolut at this link https://buff.ly/4eUV5db to support CF research this Christmas! #CFResearch🎄🎅 🎁
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Don't forget our December Parent Support Group takes place on the 4th December at 8pm. If you would like to join this group, visit our website https://buff.ly/3RAPLD0 for info and registration.
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The clock is ticking!⏰ Just over 3 weeks to Christmas!!!🎄 It's time to buy your Cystic Fibrosis Christmas cards and spread the love this Christmas season. Our guaranteed Irish Christmas cards are available in 12 designs and 3 variety packs for just €6.99 per pack of 8 cards. All funds raised from our cards will help us continue to support people with CF in Ireland. Buy your cards online NOW at https://buff.ly/3yERzkN.
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Great to see our Christmas Jumper Day 4 CF featured in the Irish Daily Mirror today!🎄🎊🎁 Just 8 more sleeps to Christmas Jumper Day 4 CF on Friday, 6th December.🎉🎅 REGISTER TODAY to ensure you get your pack complete with Bah Humbug badges on time by clicking on the link https://buff.ly/3qdmSP1 #CJD4CF2024
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Exciting News! Next year's CFI International Walk organised by Sunway takes place in the breathtaking Slovenia! 🇸🇮🌲 from Tuesday, 16th to Tuesday, 23rd of September! Imagine exploring lush forests, the crystal-clear waters of Lake Bled, and the awe-inspiring Julian Alps—all while raising funds for a great cause. This is your chance to experience Slovenia’s incredible beauty and vibrant culture. Interested? Register your interest now https://buff.ly/3TRGGqs, email fundraising@cfireland.ie or contact Bernie Murphy: 087 2353319 or CFI: 01 496 2433 for more details.
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👀 CFI Signpost❗ Do you want to know more about the Cystic Fibrosis Registry in Ireland @CFRegistryIE? Some of the aims of the CFRI are to: 👉 Provide CF specific info to the public 👉 Use data to help assess and plan health services for pwCF 👉 Monitor the safety and effectiveness of CF treatments and 👉 Compare health of pwCF in Ireland to other countries 👉 Contribute to CF research But they do so much more! If there is something else you'd like to know, ask the CFRI through the Q&A here https://buff.ly/47RORZS and watch out for your answer in the next edition of Spectrum! And don’t forget to share this post to help spread awareness of CF in Ireland.
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