BMT Support Foundation

Falling in love with #AI in #zoom. Recently we had a call with Dr Liza Bulsara on #Thalasemia. The level of insights shared was amazing. We are sure it will help thousands of patients living with Thalassemia. Our next call this friday, will be on #BMT as a curative option for #Thalassemia. Any amount of awareness and campaigning is falling on deaf ears. We need to create a national campaign to eliminate this avoidable problem. Do tune into this Podcast - https://lnkd.in/dCSH5Yxn #cancer,#bloodcancer,#bmt,#bonemarrowtransplant,#GvHD,#bmtexpert,#inspiration, #HSCT, #Stemcell, #myeloma, #lymphoma, #svastiastu, #motivation, #yoga, #leukemia, #lymphoma, #Geneticdiseases, #mentalhealth, #trending #AI summary for reference: Meeting summary for Dr. Liza Bulsara - Thalassemia (10/04/2024) Quick recap Dr. Liza Balsara, an expert in pediatric haemology and haemato oncology, discussed the prevalence and challenges of Thalassemia in India, emphasizing the need for preventive awareness and comprehensive care for patients. The importance of Thalassemia testing, particularly in high prevalence communities, was also highlighted, along with the challenges of testing minors and the need for awareness about bone marrow transplants as a curative option. Next steps • Dr. Liza to share written information on government benefits and support for Thalassemia patients with Neerad for posting on the portal. • Neerad to organize a future session specifically on physiotherapy exercises for Thalassemia patients. • BMT Support Foundation to create awareness about the importance of regular T2 star MRI and DEXA scans for Thalassemia patients over 10 years old. • BMT Support Foundation to educate parents about the need for Thalassemia Minor testing in children with persistent low hemoglobin despite iron and B12 supplementation.

Care giving for a Pediatric cancer patient - A must listen for all #doctors, #Nurses, #psychologists and compulsory for every parent whose child is going through #cancer. The most heart warming conversation i've had with a mother (Karishma Kotwani) of a two and half year old cancer patient. Sharing some gems from the conversation. Thank you and vikas for pouring your heart out. Salute!! 1. Bachhon ko khilone mat do, khelne ke liye samay nikalo aur uske saath khelo. 2. The child can read your fears through your eyes and touch. 3. A child's resilience is much much stronger than you can imagine. To listen to the full podcast, click on the link. https://lnkd.in/dj29MbeP #cancer,#bloodcancer,#bmt,#bonemarrowtransplant,#GvHD,#bmtexpert,#inspiration, #HSCT, #Stemcell, #myeloma, #lymphoma, #svastiastu, #motivation, #yoga, #leukemia, #lymphoma, #Geneticdiseases, #mentalhealth

When you battle adversity and come out a winner. The story of this young Doctor - Bhakti Trivedi is nothing short of a miracle. Battling a life threatening TB at 13 to top the 10th Boards and 12th Boards and cracking medical entrance with all the pain, suffering, side effects to becoming a Masters in Neuro Pyshiotherapy and Rehabilitation. BMT Support Foundation had the opportunity to chat with her and understand the Role of Physiotherapy and exercise in Cancer rehabilitation. The talk had amazing clarity, demonstrated and the need for incorporating Physiotherapy and Exercises (Currently a missing piece) during cancer and Post cancer recovery. Onco-Physiotherapy needs to gain traction and the importance this deserves. This talks helps bring clarity to the need of embedding it in the Rehabilitation process. https://lnkd.in/dHw3RXhk #cancer,#bloodcancer,#bmt,#bonemarrowtransplant,#GvHD,#bmtexpert,#inspiration, #HSCT, #Stemcell, #myeloma, #lymphoma, #svastiastu, #motivation, #yoga, #leukemia, #lymphoma, #Geneticdiseases, #mentalhealth, #physiotherapy, #rehabilitation

Hello Friends, September is a very important month from many perspectives. We have the Childhood cancer awareness month, Blood cancer awareness month and the festival of lord Ganesha, that brings new energy and creativity to our work. This whole month we at BMT Support Foundation are going to have some incredible sessions on our platform #svastiastu, beginning with this Young and dynamic - Shraddha Namjoshi. She has recently published a paper on the 'Role of Psychosocial research for Patients & caregivers'. By this conversation we hope to understand the Gaps in the existing processes, Advantages of proactive communication models for Patients and Caregivers and some great insights during the research process. Everyone in the cancer space should definitely be a part of this conversation. its also great for #mentalhealth students to learn from this research. Date: 3rd, September, 2024, Tuesday (tomorrow) Time: 5.00pm Where: https://lnkd.in/dze2Ze4R We need your support and encouragement to take this conversation forward and be of service to people going through what 2 lac people in India go through blood cancer each year, out of which about 50K are children. #cancer,#bloodcancer,#bmt,#bonemarrowtransplant,#GvHD,#bmtexpert,#inspiration, #HSCT, #Stemcell, #myeloma, #lymphoma, #svastiastu, #motivation, #yoga, #leukemia, #lymphoma, #Geneticdiseases, #mentalhealth

Exercise, Recovery and Rahabilitation during and after a cancer treatment. Dont miss. Tomorrow Morning, 10am  https://lnkd.in/dD-XWCPx #cancer,#raredisease,#bmt,#bonemarrowtransplant,#GvHD,#bmtexpert,#inspiration, #HSCT, #Stemcell, #haematopoetic, #cellular, #DNA, #motivation, #yoga, #leukemia, #lymphoma, #Geneticdiseases

Changing the way we talk about cancer - in conversation with Ms. Alejandra Mendez, Vice president Childhood Cancer International, mother of a child cancer survivor and engaged in some phenomenal work in the Cancer space. A treat for every Psychologist, Patient advocate, survivors, counselors, Psycho oncologists, doctors and sensitive folks. In today's times words that we use so often like Warrior, Positive attitude, You are brave, etc. can trigger very different response for different people. A beautiful article - https://lnkd.in/dSjA-zQA triggered this conversation online which has resulted in setting up of this Podcast. Join by registering on our platform as a volunteer in the link given below. 27th August, Tuesday, 7.30pm - 8,30pm #community #svastiastu #cancer #childhoodcancer #conversation #language #psychology #patientadvocate #cci #bloodcancer https://lnkd.in/dKp4GMSV

Let's celebrate the Soulful launch of our new community portal - 'Svasti Astu' with the blessings of Shri. Ravi Pandit, Founder & Chairman of the Board KPIT, Our CSR Partner & Mentor Ms. Vinita Gera and Ms. Kalpana Divadkar. Family & friends graced the occasion with hugs and best wishes. A loud shout out to Our new board of Advisors, Mr.Harshu Ghate, Mr.Jayesh Visaria, Ms.Poonam Nanda and Dr.Mahati Chittem. Your vision will really help us grow with #Connect, #Community & #Compassion. 'Svasti Astu' - A Sanskrit, Balinese blessing which means Blessings for your wellbeing, also a prayer that you be well. In such a vulnerable space as a Blood cancer, Marrow disorers and Transplants, patients often find themselves at a loss for someone to connect to. On this momentous occasion of #Independenceday, there will be complete freedom for patient & caregiver's voice. A space to express, get & give love, Share stories of resilience, loss, victory, grief. A community that can hold you in the most gentle yet strong way. We have tons of other stuff going on which will be revealed slowly :) The portal will enable seamless connections between patients, highlight survivor stories, Discussion forums, Q&A options, Live streaming of various activities, Experts videos and much more....This portal will not only support people undergoing Stem cell transplants but will go beyond to include anyone with a blood malignancy such as #Leukemia, #Lymphoma, #Myeloma.... During the event we also honoured some of the most extraordinary women who have dedicated their career to Patient care and support in the space of Cancer, from across 8 different hospitals. Do spread the word and share it with anyone who need support. If you want to Volunteer, Donate, Support a campaign, CSR, contribute in anyway, pls. join. https://lnkd.in/d3fjtAr5 #BMT, #bloodcancer, #worldpatientsalliance, #SIOP, #EBMT, #patientsvoice, #Prayer, #Freedom, #independence, #family, #friends

The Big Launch is today. MCCIA, ICC trade tower, 5th floor. 4-6pm. Welcome!

Everyone read the #budget2024. You sit analyze the #industry, #segment, #exemptions, #dutycuts, etc. How much value do you really give to your own #healthbudget. Let's do some critical analysis. #Warning: Pls. read the below only if you have to heart to take in hard facts. Parameter Output Parallel thought Rs.2500/- SIP for 25 years - Rs.25 lacs = 1 Stem cell transplant Immunotherapy + cancer treatment-Rs.40 lacs= 1BHK in Pune Treatment for child cancers - Rs.5 lacs= 2 yrs school fees Why would you not invest in #Preventive #health #checkup. Just #2cents. If you have any such parallel's do share........