Sobi - Swedish Orphan Biovitrum AB (publ)

Today, we are proud to launch Unite4Rare, Sobi’s long-standing commitment to the rare disease community. Co-created with internationally renowned patient leaders, this initiative outlines what individuals, and their families can expect from us through four dedicated pillars: Connect, Nurture, Collaborate and Innovate – each supported by measurable commitments. The launch of Unite4Rare marks an important milestone in our journey to transform the lives of people living with rare and debilitating diseases. Learn more about Unite4Rare and what it means to Sobi. https://lnkd.in/dbkhfKYZ #Sobi #RareDiseases #Unite4Rare

Join us to make a meaningful impact on patients' lives. Our global footprint is expanding, and so is the opportunity to make a difference for people with rare and debilitating diseases. If you're passionate about making a difference and want to be part of a growing team, see our open positions on LinkedIn or sobi.com. Your next career move is just a click away. https://lnkd.in/d2qJ2hH #Sobi #RareDiseases #CareerOpportunities

We are excited to announce that Guido Oelkers, CEO of Sobi, will be speaking at the Jefferies Healthcare Conference in London, UK. This year marks the 15th anniversary of Europe’s largest conference dedicated to healthcare. At this event, Guido Oelkers will share insights into how Sobi is delivering on its strategy, with an audience that includes leaders from public and private healthcare companies, institutional and private equity investors, and venture capitalists.  #Sobi #RareDiseases #JefferiesHealthcare

Join us at the 3rd ESH-EBMT Translational Research Conference. From 15-17 November in Paris, France, the European School of Haematology (ESH) will host this conference focused on bone marrow failure and leukaemia predisposition syndromes, providing a platform for scientific interactions. The event gathers clinicians and researchers to discuss new insights, treatment strategies, and scientific progress in inherited and acquired conditions. We look forward to impactful discussions and collaboration opportunities that drive our shared mission to improve patient outcomes. If you’re a healthcare professional attending the conference, don’t miss the symposium on Friday, 15 November, at 13:20, where we will explore transformative approaches to managing paroxysmal nocturnal haemoglobinuria (PNH). Discover more about the program here: https://lnkd.in/d_qcRpki We hope to see you there! #Sobi #RareDiseases #ESHBMFS2024 #Haematology #PNH 

As RSV (respiratory syncytial virus) season is approaching in many countries, it is important to stay aware of this highly contagious infection. RSV can affect people of all ages but can be especially tough on newborns and infants with developing immune systems. You can help protect our youngest from RSV: 🔸 Wash your hands often: Regular handwashing is a simple yet effective way to reduce the risk of RSV transmission. 🔸 Cover coughs and sneezes: Use tissues or your elbow to cover your mouth and nose when coughing or sneezing. 🔸 Clean frequently touched surfaces: Regularly disinfect commonly touched areas, like door knobs, to help minimize the spread. 🔸 Avoid close contact with those who may be sick: Steer clear of close contact with anyone showing symptoms of illness. 🔸 Stay at home if you are unwell: This helps prevent the spread of RSV and other illnesses. For most young children, RSV leads to mild, cold-like symptoms, but it can become a more severe infection in high-risk groups, such as premature infants, those under six months, and those with specific health conditions. Let us all do our part to protect our little ones this RSV season. #Sobi #RareStrength #RSV

We’re excited to kick off Compliance Week from 4 to 8 November at Sobi.  This important week is dedicated to promoting ethical behavior, maintaining legal standards, and fostering a culture of integrity across our organisation. Throughout the week and across all locations, we will host a variety of internal activities for our employees to reinforce our collective commitment to compliance, ethics, and integrity. But Compliance Week is more than just events - it’s a vital part of who we are as a company. By staying informed and vigilant, we maintain the integrity and trust that patients, partners and stakeholders expect from us every day. For us, compliance isn’t just a checkbox - it’s a mindset that drives organisational integrity and resilience. Let’s make this week memorable, engaging, and impactful, as we reinforce our shared commitment in doing the right thing for people living with rare and debilitating diseases and for the broader community.   #Sobi #RareDiseases #DoingTheRightThing #ComplianceWeek2024

On 1 November, we shine a light on Familial Chylomicronemia Syndrome (FCS), an ultra-rare genetic disorder that affects the body’s ability to process triglycerides, leading to a build-up of fat particles in the blood. While high triglyceride levels are something many people encounter during routine health check-ups, for some, it could be a sign of FCS. This condition can cause severe symptoms such as intense abdominal pain, cognitive difficulties, and an enlarged liver or spleen. One of the most serious risks for people with FCS is acute pancreatitis – a potentially life-threatening complication. Early diagnosis is crucial in reducing these risks, but FCS often goes undiagnosed due to its similarities with other conditions. Join us in raising awareness this FCS Awareness Day to help improve early detection and treatment for those affected. Are you a healthcare professional interested in learning more about FCS? Click for information tailored to your needs.  https://lnkd.in/dAw3yv3J #Sobi #RareDisease #FCSAwarenessDay #FamilialChylomicronemiaSyndrome #Hypertriglyceridemia 

We are excited to share our third quarter results, showcasing strong growth and significant pipeline momentum. Our growth continued at 39% at CER and the adjusted EBITA margin was 43%. "Our solid growth trajectory was sustained in the third quarter, and we continued to deliver on our clinical development milestones," says Guido Oelkers, President & CEO. We are optimistic for the rest of the year and building on this momentum. Our advancements highlight our dedication to improving the lives of those affected by rare and debilitating diseases. Explore the full report: https://lnkd.in/dvd6buHC #Sobi #RareDiseases #InvestorRelations

Celebrating Global Diversity Awareness Month. At Sobi, we believe that diversity goes beyond what meets the eye. This month, we are proud to shine a spotlight on neurodiversity - embracing different ways of thinking, learning, and working. Neurodiversity recognises the natural variations in brain function and behaviour, including conditions such as autism, ADHD, and dyslexia. It’s about understanding that neurological differences should be respected, just like any other human variation. Creating an inclusive workplace culture where everyone feels valued is essential, especially in today’s hybrid work environment. Through interactive workshops, we are integrating Diversity, Equity, and Inclusion (DEI) into our ways of working, promoting engagement and collaboration. We remain committed to fostering a culture that values and celebrates all forms of diversity - because by embracing our differences, we become stronger as a team. #Sobi #RareDiseases #InclusiveWorkplace #GlobalDiversityAwarenessMonth

Today, we unite to raise awareness for Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare and life-threatening blood disorder. PNH affects the red blood cells, leading to severe symptoms and complications. This year, we are proud to highlight the Stories of Strength campaign, created in collaboration with people living with PNH. This campaign shines a light on the incredible resilience and courage of those facing this disease. Their stories continue to inspire us to advocate for better treatments and more support. Anna’s fictionalised story is inspired by a real person living with PNH. There were days when Anna felt a positive future was out of reach. However, she shared, “I was never alone. With the support of my doctors, friends, and family, I found an inner strength, and joy has returned to my life.” Visit https://lnkd.in/d2tVWfBh to hear Anna share her journey from diagnosis to treatment and how she reignited her strength and passions. Let’s come together to support those living with PNH and their families. Together, we can make a difference! #Sobi #RareDiseases #PNHAwareness2024 #Storiesofstrength