Nystagmus Network

The Nystagmus Network is pleased to launch the Richard Wilson Essay Prize 2025, an annual competition to encourage more nystagmus research. With a first prize of £500 the competition is open to early career researchers and students in Ophthalmology, Optometry, Orthoptics, Vison Science and Medicine. Please see our website for full details: https://lnkd.in/dTHME-vD #Nystagmus #Competion #EyeResearch #Prize #Ophthalmology #Optometry #Orthoptics

A huge thank you to the Life Without Limits Centre and everyone RSBC (Royal Society for Blind Children) especially Kathy MacSheen for being wonderful hosts to us for our annual UK Research Workshop last month. We discussed current research into nystagmus, our recent international symposium, the future opportunities and challenges facing research and clinical developments and how we as a charity can help foster further investment and interest. Nystagmus centres around the UK also shared updates on their latest projects. Coming soon ... our report on "The state of Nystagmus Research in 2024" #nystagmus #research

Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all its diversity or lived experience of nystagmus or another form of visual impairment? If so, please consider becoming a trustee of the Nystagmus Network, a small charity with ambition to grow to meet the changing needs of the nystagmus community. According to a UK Fundraising article, 8 in 10 charity trustees would recommend the role to others The Nystagmus Network is recruiting new trustees. Please see our blog for more details: https://lnkd.in/e8acaTiC You can read the article online here: https://lnkd.in/eT2P5jHp

A vacancy at the Nystagmus Network Have you got what it takes to develop our services to meet the ever growing needs of the nystagmus community? The Nystagmus Network is recruiting a full or part time Development Coordinator to build on the charity’s core services and develop new ones to meet the growing and changing needs of the nystagmus community, to support income generation to ensure those services can continue to be funded. Details on our website here: https://lnkd.in/egGuNDg2

Changing Attitudes, Changing Lives Nystagmus Network trustee, Harshal Kubavat and staff team lead, Sue Ricketts were delighted to attend the launch yesterday of the 'Changing Attitudes, Changing Lives' report by the APPG for eye health and visual impairment. It was a wonderful opportunity to catch up with our former intern, George Plumridge, who contributed to the report in his first few weeks with us and is now flourishing in his new role with Thomas Pocklington Trust. The report urges the UK government and employers to work to ensure many more blind and partially sighted people are employed in fulfilling roles and careers. Read the report here: https://lnkd.in/e4S4tk3x

The International Nystagmus Symposium 2024 Leading nystagmus researchers and clinicians from across the globe will gather together online on 25 October 2024. Hear the latest thinking on nystagmus diagnosis and treatment Learn about new avenues for research Explore every aspect of this complex condition Collaborate with peers from around the globe Abstract submissions close on 30 September. So, for the opportunity to share your latest research or clinical work on nystagmus, please send no more than 300 words to symposium2024@nystagmusnet.org Registration is also open. Reserve your FREE place at https://lnkd.in/emZyUAdg More information about this event at: https://lnkd.in/eAPip4uU #Nystagmus #Research #Ophthalmology #Genetics #SocialImpact

Did you miss Gerard present the Nystagmus Network charity appeal? Actor, singer, musician and children’s author, Gerard McDermott presented a BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. If you missed it you can now listen on demand on BBC Sounds here: https://lnkd.in/ewsq3azX

Our BBC Radio 4 charity appeal - this Sunday You can hear actor and nystagmus ambassador, Gerard McDermott present a BBC Radio 4 charity appeal in behalf of the Nystagmus Network this Sunday morning at 07.54 and again at 21.25. Join listeners from across the world to find out more about what it's really like to live with nystagmus and how the Nystagmus Network helps bring people together. https://lnkd.in/epyrp5U3

Gerard presents the Nystagmus Network charity appeal Actor, singer, musician and children's author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. https://lnkd.in/eAK33eYX

To celebrate our Ruby Year, 40 years since our foundation, and to show gratitude to our supporters, the Nystagmus Network team has made a short video: https://lnkd.in/eyvt7E9y