Partner Rare

Advocating for Progress in Rare Disease Legislation Partner Rare stands with the United Mitochondrial Disease Foundation and other organizations in urging Congress to prioritize key rare disease legislative initiatives. These include the Accelerating Kids' Access to Care Act and the Rare Paediatric Disease Priority Review Voucher Program. These initiatives aim to accelerate the development of treatments for rare paediatric diseases and improve access to care for children with rare conditions. We believe that every child deserves the chance at a healthy life, regardless of their diagnosis. Click the link to review UMDF's letter to Congress and a list of the 137 organizations who have undersigned their support: https://lnkd.in/erABs_XQ #RareDisease #Advocacy #ChildrensHealth #PartnerRare

As we reflect on 2024, Partner Rare is proud of the progress made in the rare disease domain. We're thrilled to be collaborating with clients on innovative approaches and excited to see further developments in 2025. From all of us at Partner Rare, we wish you and your families, a happy and successful New Year! #RareDisease #Innovation #PartnerRare

The European Union's new Health Technology Assessment (HTA) regulation is a landmark change for those seeking regulatory approval for new drugs. The legislation aims to harmonize HTA processes across EU member states, streamlining the path to market. Partner Rare is closely monitoring these developments to ensure our clients remain informed and prepared 💚 Key insights in the slides below. #HTA #RareDiseases #MarketAccess #Europe #ClinicalTrials

AI and Drug Repurposing: A Game Changer in Rare Disease Drug Development 🎯 The world's getting more expensive and the risks for drug development are getting higher, but the use of AI and drug repurposing is becoming a game changer in delivering unmet needs across the globe. Cost-effectiveness, reduced risk, and faster time to market all predict a higher chance of success. Now, if you're thinking about drug repurposing, this is something one of our Senior Strategic Advisors, Keith Williams, has done successfully a number of times. From development, to commercialization, through to successful exit, Keith is the guy you should speak to. Reposting Keith's brief overview of drug repurposing. https://lnkd.in/eF76Z2C7 Contact us to arrange a complimentary discussion with Keith or to discuss support for your rare disease pipeline. 💚PR #raredisease #AI #drugrepurposing #biotech #pharma #strategy

Finding the right CRO for your rare disease therapy can be a challenge 🧪 Partner Rare simplifies the journey. We act as an extension of your team, providing expert guidance and seamless CRO collaboration to accelerate your clinical trials. Learn how we ensure success, from tender management to trial execution. #RareDisease #Biotech #CRO #ClinicalTrials #DrugDevelopment

💚 ERDERA Launches: A New Era for Rare Disease Research 💚 Europe unites to accelerate rare disease research and improve the lives of millions. Explore slides below for key insights on ERDERA's potential impact and how your organization can contribute. #RareDisease #ERDERA #Research #Collaboration #PartnerRare

It's never too late to unlock hidden value in your rare disease R&D! Did you know that UK tax incentives can significantly reduce your R&D costs, even if you've already started development elsewhere? Check out these slides to learn how these incentives can benefit your company and how Partner Rare can help you maximize them. Contact us for a complimentary discussion to learn more on how our end-to-end services can support your goals, whilst lowering your costs and risks. info@partner-rare.com #Raredisease #Biotech #Pharma #RDtaxrelief #UKinnovation #Marketaccess

Unveiling 'The Unseen Force' Shaping Rare Disease Treatment in APAC. Continuing our series on Rare Diseases in APAC, Partner Rare presents "The Unseen Force," an insightful article by Aaron Blocker, MSc, our Senior Strategic Advisor: Patient Advocacy and Market Access. This piece delves into the critical role of patient advocacy in shaping market access, diagnosis, and treatment across the Asia-Pacific region. 🌏 💚 Discover how the power of patient voices is driving change and influencing the future of rare disease care. Navigating the APAC rare disease market can be complex. Partner Rare provides seamless end-to-end services to help you achieve your strategic goals. From #strategicadvisory and #consulting to #projectmanagement, feasibility, application for #UKTaxIncentives and commercialisation across #Europe, we're here to support you every step of the way. Contact us today for a complimentary discussion: info@partner-rare.com #raredisease #APAC #patientadvocacy #healthcare #biotech #pharma #PartnerRare

Finding Top Rare Disease Talent Shouldn't be so Expensive! We all know that securing exceptional talent is essential in the rare disease space, but the exorbitant fees charged by traditional recruiters, often reaching 20-30% of a candidate's salary, can be a major hurdle for smaller companies and start-ups. At Partner Rare, we've been in the trenches for years, building deep connections and regularly interacting with some of the industry's brightest minds. A recent conversation with a top industry executive who expressed an interest in a board position highlighted the need for a more accessible and cost-effective approach to talent acquisition. That's why we're offering a different solution: a flexible, hourly-based talent search service where you only pay for the time we invest in finding the perfect fit for your team. 🟢No inflated fees, no large upfront costs. Just honest, results-driven support from a specialist rare disease consultancy that truly understands the landscape. 🟢Tap into our network of industry leaders and innovators. 🟢Get tailored solutions that match your unique needs and budget. If you have current or future hiring needs, email us at info@partner-rare.com, your discretion is assured. Candidates: Please do not send in your CVs, if you are suitable for our client's needs, we will find you. #RareDisease #Biotech #TalentAcquisition #CostEffective #PartnerRare #IndustryExpertise

Partner Rare Launches New Series on Rare Diseases in APAC! Explore the evolving landscape of rare diseases in Asia-Pacific with our new series! Kickstarting the series, South Korean rare disease expert Chad (ChangDeok) Ji shares insights into market access, diagnosis, treatment, and management in his guest article "The Rare Disease Market in APAC". Click below to read the article, you can also download the full article here: https://lnkd.in/e2PZnDJ9 Interested in introducing your rare disease therapy to APAC? Contact us for a complimentary discussion with our team of rare disease veterans: https://lnkd.in/eeDMf2qb www.partner-rare.com 💚 #RareDiseases #APAC #Biotech #Pharma #Healthcare