The Pernicious Anaemia Society

Our Support Group Coordinator, Julie, will be holding an online Support Group Meeting on Saturday, January 4 at 1:00pm CST. https://lnkd.in/erMvRSFv While Julie is based in Chicago, you don't have to live in that area to attend. It doesn't matter where you live as this is a Zoom meeting and all members are welcome to attend. There is a registration process. You just need to click on the registration link and you will then be given a further link to attend the meeting. Everyone will be made very welcome.  Hope you can make it!

Are you pondering your New Year’s resolutions? Thinking you want to run a marathon? https://lnkd.in/etgpRrVy #PAS has three charity places booked for the 2025 Brighton Marathon. We have filled two of these places but are looking for one more runner who would like to participate in this fun event while also raising money for the Pernicious Anaemia Society. The Brighton Marathon is SOLD OUT for individual runners, so only charity places are available. Don’t miss your chance!

On 21 January at 6:30pm we will be hosting a webinar on the need for an international treatment standard for B12 deficiency. Based on the paper published in 2024 by Emil Buhl, Bettina Borre Buhl, Linda Skibsted Kornerup & Ebba Nexø, Bettina Borre Buhl reports on the findings of their research review that focuses on current practice predominantly relying on more than 50 years old data. What is still recommended and why are these guidelines so often not followed? What is the relevance of re-testing and why symptoms rather than normalising blood test results are so important to resolve for the patient. This seminar will review the findings of the report and discuss what clinical studies and strategies are really needed going forward to improve the treatment of people with Pernicious Anaemia and B12 deficiency symptoms. For more information, please see the event page at https://lnkd.in/e5Tq3QmS To purchase a ticket for this event, please go to https://lnkd.in/ejNSFw9j Ticket price is £5 for #PAS members and £15 for non-members.

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant number of cases are due to non-dietary causes, such as Pernicious Anaemia. This can lead to life-threatening complications if not diagnosed and treated early. Understanding the root cause is crucial. Join the Pernicious Anaemia Society to support vital research, raise awareness, and ensure that everyone has access to the right information and care. 👉 Read this interesting article from the Times of India to learn more: Vitamin B12 Deficiency can be life threatening: Here's what to do | - Times of India ( https://lnkd.in/efdXZ_rR ) Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA! #PAS #PerniciousAnaemia   #B12deficiency #vitaminB12 #HealthAwareness #LifewithPA #PASociety #PAS12 #IndianHealthCommunity #WellnessIndia

Our Support Group Coordinator, Julie, will be holding an online Support Group Meeting on Saturday, January 4 at 1:00pm CST. https://lnkd.in/erMvRSFv While Julie is based in Chicago, you don't have to live in that area to attend. It doesn't matter where you live as this is a Zoom meeting and all members are welcome to attend. There is a registration process. You just need to click on the registration link and you will then be given a further link to attend the meeting. Everyone will be made very welcome.  Hope you can make it!

As the year draws to a close, we want to extend our heartfelt thanks to our wonderful members, supporters, and volunteers. 2024 has been a year of progress and dedication for the Pernicious Anaemia Society. From strengthening our support networks to making strides in education and research, we’ve achieved so much together. Here are a few highlights from our Annual Review in the latest newsletter: 🎉 We successfully campaigned around the new NICE guidelines on B12 deficiency, even making it onto ITV News! 📝 Our educational efforts are expanding, with new resources for healthcare professionals and patients available through our shop. 🤝 Our support groups have grown globally, with new groups in Sweden, Australia, and New Zealand. 📢 At the third Vitamin B12 Symposium in Cambridge, we connected with global experts to discuss advancements in B12 research. We look forward to building on these foundations in 2025, with more initiatives to improve awareness, support, and treatment for those affected by Pernicious Anaemia. Wishing you and your loved ones a joyful holiday season and a healthy new year. Thank you for being part of our journey. #PAS #PerniciousAnaemia   #B12deficiency #vitaminB12 #HealthAwareness #LifewithPA #PASociety #PAS12 #MakeADonation #HelpUsHelpYou

Whilst the autoimmune condition pernicious anaemia itself can’t be prevented, you can take steps to be proactive about your health and reduce the risk of B12 deficiency. Here’s what to be aware of: 🩺 Regular Check-Ups: If you have a family history of pernicious anaemia or autoimmune diseases, make regular check-ups a priority. 💡 Know the Symptoms: Fatigue, weakness, shortness of breath, and numbness or tingling in your hands or feet can all be signs. If you notice any, consult a healthcare professional. 🔍 Manage Underlying Conditions: If you have autoimmune conditions like type 1 diabetes or thyroid disease, work with your doctor to keep them under control. 💊 Monitor Medications: Certain medications may impact B12 absorption, so discuss any concerns with your doctor. 🔗 Awareness is Key: Remember, pernicious anaemia is an autoimmune condition that can sometimes go under-recognised. Staying informed and aware of these factors can help you advocate for your health. If you’re looking for more information and support, join the Pernicious Anaemia Society to connect with others and access resources designed to help! Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA! #PAS #PerniciousAnaemia   #B12deficiency #vitaminB12 #HealthAwareness #LifewithPA #PASociety #PAS12 #MakeADonation #HelpUsHelpYou

On 21 January at 6:30pm we will be hosting a webinar on the need for an international treatment standard for B12 deficiency. Based on the paper published in 2024 by Emil Buhl, Bettina Borre Buhl, Linda Skibsted Kornerup & Ebba Nexø, Bettina Borre Buhl reports on the findings of their research review that focuses on current practice predominantly relying on more than 50 years old data. What is still recommended and why are these guidelines so often not followed? What is the relevance of re-testing and why symptoms rather than normalising blood test results are so important to resolve for the patient. This seminar will review the findings of the report and discuss what clinical studies and strategies are really needed going forward to improve the treatment of people with Pernicious Anaemia and B12 deficiency symptoms. For more information, please see the event page at https://lnkd.in/e5Tq3QmS To purchase a ticket for this event, please go to https://lnkd.in/ejNSFw9j Ticket price is £5 for #PAS members and £15 for non-members.

Our Support Group Coordinator, Karen, will be holding an online Support Group Meeting TODAY, Monday 23rd December at 11:00. https://lnkd.in/eSSPMFeQ Whilst Karen is based in Scotland, you don't have to live in that area to attend. It doesn't matter where you live as this is a Zoom meeting and all members are welcome to attend. There is a registration process. You just need to click on the registration link and you will then be given a further link to attend the meeting. Everyone will be made very welcome.  Hope you can make it!

Our Support Group Coordinator, Karen, will be holding an online Support Group Meeting TOMORROW, Monday 23rd December at 11:00. https://lnkd.in/eSSPMFeQ Whilst Karen is based in Scotland, you don't have to live in that area to attend. It doesn't matter where you live as this is a Zoom meeting and all members are welcome to attend. There is a registration process. You just need to click on the registration link and you will then be given a further link to attend the meeting. Everyone will be made very welcome.  Hope you can make it!