The Vitiligo Society

Breaking News! Today Final Draft Guidance was released from The National Institute for Health and Care Excellence (NICE) announcing that it will not approve the new drug, Ruxolitinib, for use to treat vitiligo through the NHS on prescription. Ruxolitinib is currently the only licenced treatment for vitiligo, and could have improved the lives of over 1 million vitiligo patients in the UK. Read the full article here to find out what happened, and how you can help us fight this decision: https://lnkd.in/ef8Y2EN8 #vitiligo #vitiligoresearch #vitiligotreatment #vitiligosupport

There is still time to vote for the #Letstalkvitiligo campaign for the Smiley Charity Film Awards! Just a couple of clicks and casting your vote can help us get to the judging round and it’s completely free! Help us continue to make a difference! https://lnkd.in/eGF_Z9ua

Support our efforts to get Ruxolitinib (Opzelura) available to NHS patients! Ruxolitinib is currently the only treatment for non-segmental vitiligo licenced by the Medicines and Healthcare Products Regulatory Agency (MHRA) in the UK. Last year the National Institute for Health and Care Excellence (NICE) announced that it will not approve the new drug, Ruxolitinib, for use through the NHS on prescription, a drug that could improve the lives of over 1 million vitiligo patients in the uk. We have been advocating for improved treatments for vitiligo since the 1980s, and following our successful appeal of the decision we now have a new opportunity to share further feedback from the vitiligo community about the devastating impact that denying patients this treatment will have. This is our FINAL OPPORTUNITY to influence the decision, and your help has never been more important. Please help us write our patient response by completing our Ruxolitinib Appeal Evidence Questions form before the 25th January '25. Show how important this is by adding your voice to ours. Complete the form here: https://viti.li/123 Full information here: https://lnkd.in/ef8Y2EN8

Our quote of the week: “Just be yourself, there is no one better.” ~ Taylor Swift #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport

As Christmas is traditionally a time for giving, The Vitiligo Society would like to wish all our supporters a Merry Christmas, and the very best wishes for the New Year! #Christmas #Xmas #Santa #Reindeer #vitiligo #vitiligosupport #vitiligocommunity

Join our team tonight for a chat - the last one of the festive season. Maybe just log on to say 'Happy Christmas' to one of our volunteers! Every Thursday between 7pm & 9pm we are available for a live chat on our website chat via instant messenger. Our volunteers all have lived experience of vitiligo, so they understand how it feels to be diagnosed with the condition. They can help signpost you to information about vitiligo, or just be there to listen to anything you want to share. Visit our website and open a chat box to start talking to us: https://lnkd.in/de2MKSNS #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport

The VitLife "Vitiligo and natural remedies - what my research has taught me" Throughout her career as a wellness coach, Jane Sandwood has taken a special interest in holistic beauty, diet and fitness. In this feature she shares her research with us what she has learnt about holistic ways to manage skin conditions – including vitiligo. https://lnkd.in/e3i9UwJG #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport

Our quote of the week: “The easiest thing to be in the world is you. The most difficult thing to be is what other people want you to be. Don't let them put you in that position.” ~ Leo Buscaglia #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport

Join our team tonight for a chat! Every Thursday between 7pm & 9pm we are available for a live chat on our website chat via instant messenger. Our volunteers all have lived experience of vitiligo, so they understand how it feels to be diagnosed with the condition. They can help signpost you to information about vitiligo, or just be there to listen to anything you want to share. Visit our website and open a chat box to start talking to us: https://lnkd.in/de2MKSNS #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport

🎄 Stockings filled with care, 🌟 Patchwork bears by firelight glow— 💜 Unique, just like you. Still searching for that last Christmas gift? Our Vitiligo Bears are the perfect present for friends and family! Gift your loved ones an extra special gift, and support the vitiligo community at the same time. Orders yours today 👉️ https://bit.ly/3DelR2T