ADAP Advocacy

Check out our press release... 👇 ADAP Advocacy Launches Patient-Centric Mapping Tool on 340B Program Interactive digital map highlights covered entities revenue and executive compensation, compared to charitable tax breaks and hospital charity care https://lnkd.in/gaaSqCj9

Anti-LGBTQ Laws are Propagating as Violence, Undermining Transgender Health As 2024 ends there is the painful reality that Donald J. Trump is returning to The White House, and with him promises of rolling back protections for LGBTQ people…and in some cases, even denying them care. The anxiety and fear are very authentic, and there is real world evidence of how discriminatory policies adversely impact already marginalized communities. One glowing example is how HIV prevention is undermined by LGBTQ-related attacks (legislation) and violence! Read more: https://lnkd.in/geHrZwDH

ADAP Advocacy Seats Board Member New Leadership includes South Florida Patient Advocate, Maria Mejia   For Immediate Release: December 10, 2024  Media Contact: info@adapadvocacy.org    WASHINGTON, D.C. – ADAP Advocacy today announced that it has seated Maria Mejia on its governing Board of Directors. Aside from representing a key patient demographic in the fight to end the epidemic, Mejia has a long history with the organization and its advocacy efforts. "Maria has been deeply embedded in our HIV advocacy efforts, dating back to 2012 when she was the inaugural recipient of our Social Media Campaign of the Year for Maria's Journal," said Brandon M. Macsata, ADAP Advocacy's CEO. As a social influencer, her unique skill set will further enhance our grassroots outreach on the issues most likely to impact access to care and treatment for people living with HIV/AIDS, especially among marginalized communities. ADAP Advocacy is governed by a dedicated, diverse volunteer Board of Directors. The organization now benefits from the combined experience of eight HIV-positive members, three current ADAP recipients (and three former ones), one pharmacist, one nurse (retired), two attorneys, several influential community activists, and one leader in the transgender community. Board members includes: Guy Anthony of New York, New York; Wanda Brendle-Moss, RN of Winston-Salem, North Carolina; Erin Darling, Esq. of Washington, DC; Robert Dorsey, Esq. of La Plata, Maryland; Lyne Fortin, B.Pharm, MBA of Montreal, Canada; Hilary Hansen of Washington, DC; Lisa Johnson-Lett of Birmingham, Alabama; Jen Laws of Slidell, Louisiana; Maria Mejia of Tamarac, Florida; Theresa Nowlin of Boston, Massachuseets; Shabbir Imber Safdar of San Francisco, California; Jennifer Vaughan of Watsonville, California; Marcus Wilson of Orlando, Florida; and Brandon M. Macsata (ex-officio) of New Haven, Connecticut.   To learn more about ADAP Advocacy, Maria Mejia, or its Board of Directors, please email info@adapadvocacy.org.    ####

Data Shows Lenacapavir's Long-Lasting Efficacy The road to successful drug development is a long one. The approval of a new drug is a result of rigorous science and various phases of clinical trials in humans to prove its safety and efficacy. However, once a drug is approved and entered standard practice, the road does not end there. It is necessary to continue clinical trials to support a drug’s ongoing usage and emphasize its strengths and weaknesses. That is why recent data concerning lenacapavir is so encouraging. Data shows that its efficacy is long-lasting. Read more: https://lnkd.in/eHNEeb3Y

FIVE BUCKS! By now, you have probably been swamped with appeals in support of this year's #GivingTuesday!   All I'm gonna ask from ya'll this year is to donate $5...that's right, only five bucks!   Thank you for your ongoing support of the AIDS Drug Assistance Programs.   - Brandon DONATE: https://lnkd.in/ej2gFNCm

The current director of The White House Office of National AIDS Policy (#ONAP) was joined by 5 predecessors on #WorldAidsDay2024 to participate in our #Light4Hope candle lighting. #THANKYOUSOMUCH

ADAP Advocacy Honors World AIDS Day 2024 with a “Light for Hope” World AIDS Day, designated on 1 December every year since 1988 WASHINGTON, D.C. - (December 1, 2024) - ADAP Advocacy today, on World AIDS Day, honored the lives lost to the epidemic by asking its supporters to ignite candles, which represent the light of life extinguished when a person dies. It is estimated over 22 million souls have been lost since 1981. The candles’ flames not only embody the collective hope for the future, but they also remember loved ones, neighbors, and colleagues lost to it. Read more: https://lnkd.in/e89ZY33D

ADAP Advocacy Publishes Infographic Series on the 340B Program Infographics analyze hospital revenues and executive compensation, compared to hospital charity care and patient medical debt WASHINGTON, DC, November 25, 2024 /24-7PressRelease/ -- ADAP Advocacy today, as part of its 340B Project, published an infographic series on the 340B Drug Pricing Program. The infographics highlight how under the program, hospital charity care is declining while medical debt is exploding despite hospital revenue growth and hospital CEO pay raises. The ADAP Advocacy-sponsored Ryan White Grantee 340B Patient Advisory Committee has increasingly focused on medical debt and its impact on patients living with chronic illnesses and rare diseases. Read more: https://lnkd.in/g-ecrd6Q

Courts Put Guardrails on 340B Program, Aiding Reform Efforts to Ebb Abuse Since 1992, the 340B Drug Pricing Program has enabled eligible health care providers, referred to as covered entities, “to stretch scarce federal resources to reach more eligible patients or provide more comprehensive services.” One of the most notable characteristics of the program is that it is not funded by the government. Since it requires drug manufacturers to sell medications to eligible entities at steep discounts, in essence, it is a legally mandated reallocation of financial resources from private industry to providers. As such, abuses of the program are especially egregious. The vast growth of the 340B Program over time has led to increased abuses in it as big hospital systems and mega service providers sought to enhance their profits over serving vulnerable patient populations. A tug-of-war among varied interests has generated many legal challenges in attempts at 340B reform. Recently, the pharmaceutical industry has achieved wins in its favor. Read more: https://lnkd.in/ede62a7d

HIV Advocates Worry About the Unintended Consequences of the Inflation Reduction Act Advocates across the HIV patient, provider, and pharmaceutical sectors are sounding the alarm about the potential for provisions within the Inflation Reduction Act of 2022 to have unintended consequences for people living with HIV/AIDS (PLWHA). Specifically, advocates, including ADAP Advocacy, are concerned that Sections 11001 and 11002—the sections that establish the Medicare Drug Price Negotiation Program that will give the Centers for Medicare and Medicaid Services (CMS) the ability to negotiate maximum fair prices (MFPs) for certain high expenditure, single source drugs and biologic products—will stifle innovation, limit the selection of antiretroviral (ARV) medications for PLWHA, and create new barriers for PLWHA attempting to access medications to treat other conditions as PLWHA continue to age while living with the disease. Read more: https://lnkd.in/e9dUrgEt