Array Insights

#NoNFNovember This post is part of the #NoNFNovember campaign to raise awareness and funds to end NF. Follow along here every day at 4pm ET for a new post and new story. ***** Growing up with a sister who has Neurofibromatosis (NF) has been a constant source of inspiration for me. Despite the challenges she faces, her determination and motivation never waver. From doctor’s visits to managing symptoms that others can’t always see, she’s handled it all with strength and grace. This year, she’s achieving a huge milestone by earning her master’s degree — something that’s taken an incredible amount of hard work and perseverance. Watching her tackle not just the demands of school, but also the complexities of living with NF, has shown me the true meaning of resilience. The Children’s Tumor Foundation has played a big role in supporting her journey and our family. Their dedication to advancing research and providing resources has given us hope and a sense of community that’s been invaluable. I’m grateful for the impact they’ve had, and I’m proud to support their mission to find a cure for NF. Raising awareness for this cause is personal for me, and I’ll always stand by my sister and the NF community. Together, we’re fighting for a future where no one hast to face this alone." Corey Altman ***** This post is part of the #NoNFNovember campaign to raise awareness and funds to end NF. Please repost this story by clicking the button below to “Repost”, and encourage everyone you know to look for a #NoNFNovember post here every day at 4PM ET, and visit www.ctf.org/nonfnovember to contribute what they can to end NF. All funds raised in this campaign will go directly to Children’s Tumor Foundation and the fight to end NF. #NoNFNovember, #EndNF, #Neurofibromatosis, #ChildrensTumorFoundation, #NFResearch, #MakeNFVisible, #NFHeroes, #NFCommunity, #RareDisease, #GeneticDisorders, #HopeForACure, #NFWarriors, #NF2, #NF1, #ShineALightOnNF

#NoNFNovember This post is part of the #NoNFNovember campaign to raise awareness and funds to end NF. Follow along here every day at 4pm ET for a new post and new story. ***** In April of 2022 I welcomed my son to this world and a few short weeks later we would send him off into an MRI to check out why his eye had been swollen since birth. A plexiform tumor is what was revealed. Complex and wrapping itself like a spider web around his eye, face, jaw and part of his brain. At that time, he was 4 weeks old, so we had to just wait and see what happened. I went back to work and a couple weeks later he had a second MRI which revealed the tumor was growing and we needed to take action. I left my career and devoted my life to taking care of my son. Since then, he has had countless doctors’ appointments, 11 MRIs, two eye surgeries, has been in a clinical trial, and many, many therapies. I myself also have NF and although it presents itself a lot different in me, being a mom, especially to a medically complex baby, really taught me the importance of keeping up with my own health. I’ve participated in clinical studies, research calls, and volunteer with Shine a Light NF Walk and the Seventeen22 Foundation. To say these last two years have been a whirlwind would be an understatement but there have also been many blessings including Bryson’s third stable scan in a row, just last week!!! My hope is that one day we have a very effective treatment and cure for NF. Lindsey Marson ***** This post is part of the #NoNFNovember campaign to raise awareness and funds to end NF. Please repost this story by clicking the button below to “Repost”, and encourage everyone you know to look for a #NoNFNovember post here every day at 4PM ET, and visit www.ctf.org/nonfnovember to contribute what they can to end NF. All funds raised in this campaign will go directly to Children’s Tumor Foundation and the fight to end NF. #NoNFNovember, #EndNF, #Neurofibromatosis, #ChildrensTumorFoundation, #NFResearch, #MakeNFVisible, #NFHeroes, #NFCommunity, #RareDisease, #GeneticDisorders, #HopeForACure, #NFWarriors, #NF2, #NF1, #ShineALightOnNF

Many patients face a frustrating reality: their symptoms are dismissed. This was true for Alisa, whose chronic cough was misdiagnosed as bronchitis. When she advocated for herself, she uncovered a life-changing diagnosis—lung cancer. Alisa’s story highlights the power of self-advocacy and trusting your instincts. Read the full blog to learn why it’s crucial to listen to your body and push for the answers you need. https://lnkd.in/e4ahNSzh

Amidst other health challenges, Joe faced an unexpected twist: a bladder cancer diagnosis. His journey began fraught with uncertainty yet brimming with determination. Among the difficulties, Joe gleaned invaluable lessons. Read his inspiring story here: https://lnkd.in/gzUpM39C

October 29 is #WorldPsoriasisDay. If you're affected by psoriatic disease - whether you live with the lesions and joint pain or support someone who does - you are apart of a worldwide community.🧡We are here for you💜 #ThisIsPsoriasis https://lnkd.in/ggpSqW9a

Join our legislative briefing! Yesterday, the Senate introduced the Protecting Patients from Deceptive Drug Ads Online Act - much-needed legislation addressing misleading and manipulative prescription drug advertising. Join Generation Patient, PIRG and Young People's Alliance, on Monday 9/16 for a briefing breaking down the legislation and how it will protect patients and a discussion about what needs to happen next. Speakers include: Patricia Kelmar, Senior Director, Health Care Campaigns, PIRG Ava Smithing, Advocacy and Operations Director, Young People's Alliance Peyton Miles, Health Policy Scholar, Generation Patient Erin Willis, Associate Professor, Advertising, Public Relations and Media Design, CU Boulder Steven Woloshin, Professor of Medicine at the Dartmouth Institute for Health Policy and Clinical Practice and director of the Lisa Schwartz Foundation for Truth in Medicine. Register here: https://lnkd.in/gEhhMADR #ProtectPatients #PublicHealth