Center for Innovation & Value Research

As we close out the year, we want to take a moment to express our deepest gratitude to everyone who has been part of our mission—our dedicated partners, inspiring staff, committed members, and vibrant community. This year has been a testament to the power of collaboration and shared vision. From all of us at the Center, thank you for being part of this journey. Wishing you a joyous holiday season and a prosperous new year! Here’s to another year of innovation, growth, and community. #YearInReview #Gratitude #Community #Teamwork #LookingAhead Richard Chapman Michelle (Yuan-Yuan) Cheng Larragem Raines Jason Spangler Tiffany Huth, MPH Jessica Brown Smita Sanwardeker (she/her) Hanh Nguyen Ushma Patel Erica deFur Malik Melanie Ridley Mark Linthicum

Beth Gore, Executive Director of the The Oley Foundation shares the profound challenges she faces as a caregiver for her six adopted children, each with unique medical needs. Living in Tampa with her family, Beth’s journey highlights the emotional and financial strain that comes with managing complex health issues, especially for her son Manny. Despite her dedication, the burden of high healthcare costs has led to significant hardships, including near-homelessness. Read her caregiver story: https://ow.ly/ZaF850UoGV3 #CaregiverStory #HealthcareChallenges #FamilyHealth #EmotionalSupport #economicimpacts #patientstory

The Center invites thought leaders to apply to speak at the 6th Annual Methods Summit on March 19, 2025, in Washington, D.C. This year’s event will explore innovative methodologies for operationalizing patient-centered value research and prioritizing patient needs in healthcare decision-making. We seek experts from academia, HEOR, HTA, patient-centered research, patient engagement, policy, and decision sciences to share their insights. Application Deadline: December 30, 2024 Event Date: March 19, 2025 Apply now to contribute to this vital conversation shaping the future of healthcare research: https://ow.ly/GgrT50Upjxb #HealthcareResearch #PatientCentricity #EconomicImpacts #PatientExperience #HealthEconomics #HealthcareCosts #ResearchInnovation #callforspeakers #patients #MethodsSummit2025 #PatientCenteredCare

Hospice News interviewed the Center's Chief Scientist, Richard Chapman, for insights regarding the Rare Disease Project. The project is designed to learn more about the innovative, person-centered care models that can help address common challenges these patients and their caregivers face, including approaches that integrate palliative care services. “We’re essentially starting from scratch every time a new rare disease treatment comes along,” Chapman said. “What we want to do with this project is come up with patient engagement processes and maybe start to identify what some of those outcomes are that are important to patients. Palliative care providers are a little ahead of the game compared to other providers, because by the very nature of these services they really pay attention to patients’ goals of care and whether treatments are going to be concordant with those goals.” Thank you, Holly Vossel, for covering this important topic! Read the full article here: https://bit.ly/3zTkFRq #RareDiseases #PalliativeCare #HealthcareInnovation #PatientOutcomes

The Center invites thought leaders to apply to speak at the 6th Annual Methods Summit on March 19, 2025, in Washington, D.C. This year’s event will explore innovative methodologies for operationalizing patient-centered value research and prioritizing patient needs in healthcare decision-making. We seek experts from academia, HEOR, HTA, patient-centered research, patient engagement, policy, and decision sciences to share their insights. Application Deadline: December 30, 2024 Event Date: March 19, 2025 Apply now to contribute to this vital conversation shaping the future of healthcare research: https://ow.ly/GgrT50Upjxb Richard Chapman Michelle (Yuan-Yuan) Cheng Larragem Raines Jason Spangler Tiffany Huth, MPH Jessica Brown Smita Sanwardeker (she/her) Hanh Nguyen Ushma Patel Erica deFur Malik Melanie Ridley Mark Linthicum #HealthcareResearch #PatientCentricity #EconomicImpacts #PatientExperience #HealthEconomics #HealthcareCosts #ResearchInnovation #callforspeakers #patients #MethodsSummit2025 #PatientCenteredCare

Beth Gore, Executive Director of The Oley Foundation shares the profound challenges she faces as a caregiver for her six adopted children, each with unique medical needs. Living in Tampa with her family, Beth’s journey highlights the emotional and financial strain that comes with managing complex health issues, especially for her son Manny. Despite her dedication, the burden of high healthcare costs has led to significant hardships, including near-homelessness. Read Beth's caregiver story: https://ow.ly/ZaF850UoGV3 #CaregiverStory #HealthcareChallenges #FamilyHealth #EmotionalSupport #economicimpacts #patientstory

Dorothy Winningham's journey from a medical emergency at the age of nineteen, to a dedicated advocate for patients highlights her strength and commitment to supporting others through healthcare challenges. Dorothy also serves as a member of the Center's Economic Impacts, Phase II, Community Advisory Board (CAB) Read her patient story here: https://ow.ly/VQqY50SXWjt

As National Family Caregivers Month concludes, we celebrate family caregivers for their invaluable contributions. This month, we’ve raised awareness of caregiver issues, acknowledged their efforts, and advocated for integrating caregiver perspectives in health technology assessments. #FamilyCaregivers #HealthcareValue #CaregiverAppreciation

Caregiving for an adult can be challenging, both financially and emotionally. Many caregivers face elevated rates of depression and anxiety and even see declines in their health. And the costs add up—caregivers often spend around a quarter of their income on out-of-pocket expenses. But for some, the price is even higher. Research has revealed a hidden segment of caregivers who risk their stability, sometimes leading to homelessness. Black men are an often-overlooked group shouldering this responsibility. While caregiving can be rewarding, it also comes with significant challenges. Read the full article to learn more about this important issue: https://ow.ly/j4Kr50UgKKe

Mike Herman’s journey as a cancer survivor is a testament to resilience, advocacy, and the importance of a comprehensive approach to patient care. His story sheds light on the medical, economic, and personal challenges cancer patients face and underscores the critical role of support systems and research in overcoming these challenges. Mike Herman founded Speaking on Cancer Patient Advocacy (SoCPA). SoCPA’s mission is to educate for a cancer-free tomorrow. Learn more about Mike's patient story:https://ow.ly/58Aq50TvFPo #healthequity #patientstory #equity #hta #patientcentered