Center for Innovation & Value Research

Caregiving for an adult can be challenging, both financially and emotionally. Many caregivers face elevated rates of depression and anxiety and even see declines in their health. And the costs add up—caregivers often spend around a quarter of their income on out-of-pocket expenses. But for some, the price is even higher. Research has revealed a hidden segment of caregivers who risk their stability, sometimes leading to homelessness. Black men are an often-overlooked group shouldering this responsibility. While caregiving can be rewarding, it also comes with significant challenges. Read the full article to learn more about this important issue: https://ow.ly/j4Kr50UgKKe

Mike Herman’s journey as a cancer survivor is a testament to resilience, advocacy, and the importance of a comprehensive approach to patient care. His story sheds light on the medical, economic, and personal challenges cancer patients face and underscores the critical role of support systems and research in overcoming these challenges. Mike Herman founded Speaking on Cancer Patient Advocacy (SoCPA). SoCPA’s mission is to educate for a cancer-free tomorrow. Learn more about Mike's patient story:https://ow.ly/58Aq50TvFPo #healthequity #patientstory #equity #hta #patientcentered

The Center for Innovation & Value Research is conducting key informant interviews to learn from patients or caregivers who have experience with digital health solutions for managing anxiety or depression. If selected, you will participate in a one-hour virtual interview and receive a $150 honorarium. Fill out our recruitment screener: https://lnkd.in/e-czYi_m #DigitalHealth #MentalHealth #AnxietySupport #DepressionAwareness #PatientCare #HealthInnovation #CaregiverSupport #MentalHealthMatters #ResearchStudy

The Center for Innovation & Value Research is holding a call for expertise for advisory committees. Patient Advisory Council brings essential patient insights to shape the Center's strategy and ensure our work is patient-centered, transparent, and equitable. Comprised of patients, caregivers, and advocates with firsthand healthcare experience, the council plays a vital role in strengthening our patient engagement efforts. https://ow.ly/fCW150U39aP The Public Policy Council guides our policy strategy, applying research findings to shape objectives, activities, and priorities. Comprised of policy experts, researchers, analysts, and advocates from diverse backgrounds—including healthcare purchasing, payment, and public agencies—they are instrumental in advancing our mission. https://ow.ly/4lx050U39aT The Center is committed to ensuring representation from a diversity of perspectives and backgrounds to guide the Center towards achieving its mission and vision. #PublicPolicy #HealthcareStrategy #Research #PatientCentered #HealthcareAdvocacy #PatientEngagement

This year’s National Family Caregivers Month theme is “I care…” highlighting the importance of self-recognition and self-identity—key factors in caregivers’ access to essential support. Identifying as a caregiver opens the door to the family caregiver support needed throughout their journey. Explore more at Caregiver Action Network: https://ow.ly/rqUL50U9viv #NationalFamilyCaregiversMonth #NFCMonth #familycaregivers

Gwen Darien is a three-time cancer survivor whose journey reflects resilience and advocacy. After being diagnosed with non-Hodgkin lymphoma, breast cancer, and endometrial cancer, Gwen navigated significant physical, emotional, and economic challenges. Her experiences of lack of trust from healthcare providers and the high costs of care prompted a shift from the arts to health justice advocacy. For over 28 years, she has emphasized the importance of centering the patient in healthcare research and delivery and the need to acknowledge the true impact of illness on patients and families. Gwen’s story illustrates the hidden costs of cancer and calls for a healthcare system that prioritizes patients’ voices and inclusivity. Read Gwen's full story: https://ow.ly/4Hjp50U9vPC @Patient Advocate Foundation 

How can healthcare research better reflect the real economic burdens patients face? Our new report, “Patient Journey Mapping to Inform Economic Impacts,” provides answers. Drawing on our first Patient-Centered Impacts Project workshop, this report highlights the importance of incorporating patient perspectives into economic research methodologies. By focusing on the full patient journey, researchers and funders can improve trust and partnerships with patient communities and gain a deeper understanding of healthcare's true costs. The findings will influence future funding priorities and research practices, ensuring a more comprehensive view of healthcare’s economic impact. Read the report for actionable insights. https://ow.ly/CS9p50U97Yt #HealthcareResearch #PatientCentric #HealthEconomics #PatientJourney #EconomicImpact #HealthcareInnovation #PatientAdvocacy #ResearchImpact

The Center for Innovation & Value Research is conducting key informant interviews to learn from patients or caregivers who have experience with digital health solutions for managing anxiety or depression. If selected, you will participate in a one-hour virtual interview and receive a $150 honorarium. Fill out our recruitment screener: https://lnkd.in/e-czYi_m #DigitalHealth #MentalHealth #AnxietySupport #DepressionAwareness #PatientCare #HealthInnovation #CaregiverSupport #MentalHealthMatters #ResearchStudy Ushma Patel, Larragem Raines, Erica deFur Malik, Melanie Ridley, Jason Spangler

Ushma Patel, Director of Patient Engagement at the Center for Innovation & Value Research, shares her personal experience navigating the economic and emotional impacts of her daughter’s rare disease. She highlights the often-overlooked financial burdens families face beyond direct medical costs and discusses how the Center’s Patient-Centered Economic Impacts Project seeks to address these challenges in healthcare research and decision-making. Read Ushma's Caregiver Story: https://ow.ly/v8C950TNv8P #PatientEngagement #HealthcareResearch #RareDiseaseAwareness #HealthEquity #PatientCenteredCare #EconomicImpact #HealthcareInnovation #FamilyHealth

The Center for Innovation & Value Research is holding a call for expertise for advisory committees. Patient Advisory Council brings essential patient insights to shape the Center's strategy and ensure our work is patient-centered, transparent, and equitable. Comprised of patients, caregivers, and advocates with firsthand healthcare experience, the council plays a vital role in strengthening our patient engagement efforts. https://ow.ly/fCW150U39aP The Public Policy Council guides our policy strategy, applying research findings to shape objectives, activities, and priorities. Comprised of policy experts, researchers, analysts, and advocates from diverse backgrounds—including healthcare purchasing, payment, and public agencies—they are instrumental in advancing our mission. https://ow.ly/4lx050U39aT The Center is committed to ensuring representation from a diversity of perspectives and backgrounds to guide the Center towards achieving its mission and vision. Ushma Patel Mark Linthicum   #PublicPolicy #HealthcareStrategy #Research #PatientCentered #HealthcareAdvocacy #PatientEngagement