Child Neurology Foundation

Progress in child neurology starts with staying informed. From new research to evolving care models, access to timely information supports better outcomes. Our newsletter delivers insights, resources and education straight to your inbox—so you can stay connected to what’s shaping the child neurology space you make a difference in. 📩 Subscribe today! https://lnkd.in/e8z3Hduq #CNFCommunity #ChildNeurology #PediatricNeurology #HealthcareProfessionals #Newsletter #CaringForThoseWhoCare

Navigating insurance for genetic testing can be overwhelming, but there are solutions. In honor of RARE Disease Day, we’re releasing the final episode of our Genetic Testing: Navigating Insurance webinar series in partnership with GeneDx. In this episode, Nickey Francis shares practical strategies and local & national resources to help families secure the coverage they need. 📌 Haven’t watched the full series yet? Each episode provides valuable insights into insurance appeals, reimbursement strategies, and available support networks. Watch all three episodes + download the key infographics here: 🔗 https://lnkd.in/dgCviaiN #CNFCommunity #genetictesting #insurance #ChildNeurologyFoundation #childneurology #RAREDisease

In child neurology, rare isn’t rare. 30 million+ people live with a rare disease, and half of them are children. Many families face delayed diagnoses, limited treatment options, and fragmented support systems. At the Child Neurology Foundation, we don’t just raise awareness—we take action by: ✅ Strengthening the systems families rely on ✅ Leading collaborations that drive real change ✅ Providing tools & education that break barriers On #RAREDiseaseDay, we reaffirm our commitment to ensuring that every child with a neurologic condition—diagnosed or not—has the support they deserve. 💜 Let’s create lasting change. #ChildNeurology #RAREDisease #ChildNeurologyFoundation #CNFCommunity

Kim Hindery joined Doug & Lyssa High of Good Afternoon Kentucky WTVQ to discuss CNF’s mission and our role in bringing national awareness to the unseen struggles of caregivers through UNSEEN: How We’re Failing Parent Caregivers & Why It Matters. Families caring for children with neurologic conditions face immense challenges—financial strain, exhaustion, and complex care navigation. CNF partnered with UNSEEN because its message aligns perfectly with our work: amplifying caregivers’ voices, providing tangible support, and driving change in family-centered care. CNF was also instrumental in developing Caregiver-Friendly Healthcare Practices Toolkit, a framework that encourages clinicians to build care partnerships rooted in understanding, communication, and support. This documentary is a powerful tool for families, medical professionals, and advocates. Check your local ABC listings to watch: www.caregiverdoc.com/abc. #CNFCommunity #ChildNeurologyFoundation #childneurology #CaregiverSupport #UNSEENDocumentary #ABC36

The deadline is approaching! The Dr. Kenneth F. Swaiman Medical Student Scholarship ($6,000) and CNF NDD Summer Research Scholarship ($3,500) are more than just funding. They are an opportunity to gain mentorship, expand your research, and make an impact in child neurology. ✅ Open to U.S. & Canadian med students (1st-3rd years). ✅ Deadline: March 16, 2025 If you’re ready, apply now. If you know someone who should, share this with them today! 📍 Details & application: https://lnkd.in/eVbMMjd5 #MedicalEducation #ScholarshipOpportunities #CNFCommunity #ChildNeurologyFoundation #MedicalStudent

Caregiving doesn’t stop when the day ends, and neither does our work. CNF is committed to ensuring child neurology caregivers have the tools, support, and community they need. From education to community, we’re here—every day. 📺 Still haven’t seen UNSEEN? Screenings continue in different states across the country until March 23. Learn why caregiver visibility matters. 🎟️ Find your local screening here: https://lnkd.in/gWcb_uRA #CNFCommunity #ChildNeurologyFoundation #Caregiving #ChildNeurology #CaregiverSupport

We’re proud to announce and welcome Kim Hindery as the new Executive Director of the Child Neurology Foundation! With a proven track record of driving meaningful change and strengthening organizations, Kim brings the expertise, strategic vision, and passion needed to advance CNF’s mission. As both a leader and a parent navigating a complex medical journey, she has a deep, firsthand perspective on the challenges families face and is committed to ensuring they have the knowledge, support, and connections they need. Her leadership will help CNF continue its vital work, creating a future where no family walks alone. We’re excited for what’s ahead! #CNF #Leadership #ChildNeurology #FamilySupport #StrongerTogether

Caregiving is a full-time job—one filled with love, sacrifice, and unwavering dedication. This #NationalCaregiversDay, we recognize those who pour their hearts into caring for children with neurologic conditions. When caregivers are supported, families thrive. 💙💜 Your donation supports vital programs that help caregivers navigate the complexities of caring for a child with neurologic conditions. Donate today: https://lnkd.in/dWNMYaGG

53 million. That’s how many family caregivers are providing unpaid care in the U.S. Their work is essential—yet often overlooked. On #NationalCaregiversDay, we’re shining a light on their sacrifices and fighting for a world where caregivers get real support, not just recognition.💙💙 📺 That’s why we’ve partnered with the UNSEEN Documentary to bring UNSEEN to ABC! State screenings run 2/16 - 3/23, and you can stream for FREE from 2/20 - 2/23 with a ticket! 🎟️ Find your screening or get your free ticket here: https://lnkd.in/gWcb_uRA

Caregivers hold families together, yet so often, they hold the weight of it all alone. But real support means: ✅ Healthcare that acknowledges and equips caregivers ✅ Workplaces that accommodate their needs ✅ Policy changes that provide real relief That’s why CNF partnered to create the Caregiver-Friendly Healthcare Toolkit—a guide to help healthcare professionals, advocates, and caregivers work together to build a system that truly supports those who care for others. You can find the guide at https://lnkd.in/dWRug9e3 📺 And don’t miss UNSEEN on ABC! State screenings run 2/16 - 3/23, and you can stream for FREE (2/20 - 2/23) with a ticket. 🎟️ Find your screening & free ticket at https://lnkd.in/gWcb_uRA