Congenital Hyperinsulinism International

We are so excited to share our 2025 events calendar with the CHI community! 🗓️⭐️ ➡️ Our 2025 Virtual Rare Disease Day celebration on Zoom will be held February 28. ➡️ Our first Family Conference of 2025 will be held May 8-10 in Copenhagen, Denmark ➡️ Our next Family Conference will be held in October in Philadelphia, PA ➡️ The 2025 Sugar Soiree will be on November 15 in West Orange, NJ More events are in the works - stay tuned! 💙 📧 To stay connected on CHI news, you can join our newsletter at https://lnkd.in/e9gnH5aX 🔗 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Join us as we look back at our 2024 HI-lights and remember all of our events and accomplishments throughout the year! 🗓️ CHI celebrated Rare Disease Day in February with members of the HI community over Zoom. 💻️ In honor of this special day, we had a wonderful discussion and asked community members to share their stories, challenges, and hopes. 💙 This event was part of our “Dare to Dream” initiative that inspires the action of doctors, researchers, and advocates to work towards a better life for those with hyperinsulinism. ⭐️ ➡️ To read more of our 2024 HI-lights, visit https://lnkd.in/eRJAJk93 🔗 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia #rarediseaseday

Congratulations to the recipients of our 2024 Million Dollar Bike Ride research grant! 🚲️🎉 This year, we were able to award two research grants of $77,165 each. 🔬 ➡️ Mansa Krishnamurthy of Cincinnati Children's Hospital Medical Center will be focusing on her research project "Leveraging Human iPSC Derived Beta Cells to Investigate the Impact of Novel Therapeutics in Patients with Congenital Hyperinsulinism” 🔎 ➡️ Paul Thornton of Cook Children's Medical Center will be working on “Safety, Accuracy, and Feasibility of Continuous Glucose Monitoring in Infants in the Inpatient NICU Setting with Hyperinsulinism and Hypoglycemia” 🔎 Visit https://lnkd.in/eYysZtW3 🔗 to view the full list of grant awardees and read more about Mansa and Paul's projects! #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

We are thrilled to share with you all that the 2024 HI Global Registry (HIGR) Annual Report is now available! 🎉🔎 The report provides insight into the HI experience as reported by individuals with HI and their caregivers and shares many exciting updates from the last year, including seven new languages 🌍️ and the ability to collect data from continuous glucose monitors (CGMs). For the first time, the HIGR Annual Report also contains a first look at data from the MaxHIGR Physician Survey! 🥼 The analysis and statistics shared in the report are based on responses from October 2018 through November 2024. 🗓️ After you read the report, we invite individuals and caregivers to think about whether the data represented reflects your experiences and what other information you may want to learn. 💡 If you are a researcher, we invite you to think about how you may use HIGR data in your own work. Access the 2024 HIGR Annual Report here: https://lnkd.in/e_njHBhb 🔗 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

NEW! 📣 Rezolute Receives Breakthrough Therapy Designation from FDA for Ersodetug in the Treatment of Hypoglycemia Due to Congenital Hyperinsulinism. "Ersodetug is a fully human monoclonal antibody that binds allosterically to the insulin receptor to counteract the effects of insulin receptor over-activation by insulin and related substances (such as IGF-2), thereby shifting over-signaling back into a more normalized range and improving hypoglycemia in the setting of hyperinsulinism (HI)." 💊 Rezolute shared that “This Breakthrough Therapy Designation underscores the potential of ersodetug to make a meaningful difference for patients with hyperinsulinism." 🗨️ ➡️ To read the full press release, visit https://lnkd.in/giAyDTS7 🔗 ➡️ To learn more about the significance of the FDA's Breakthrough Therapy designation, visit https://lnkd.in/ew7gM8vw 🔗 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Join us as we look back at our 2024 HI-lights and remember all of our events and accomplishments throughout the year! 🗓️ In June, nineteen members of “Team CHIbra” gathered in Philadelphia to support hyperinsulinism (HI) research at the Million Dollar Bike Ride (MDBR) for the eleventh consecutive year. 🚲️ The event was a huge success and will result in funding two HI research grants for a combined total of over $140,000 that will begin early next year. 💙 To read more of our 2024 HI-lights, visit https://lnkd.in/eRJAJk93 🔗 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

We are thrilled to share that our CEO and co-founder Julie Raskin was named a Mikie Sherrill 2024 Holiday Hero. 🎉 New Jersey Congresswoman Mikie Sherill’s annual Holiday Hero series recognizes New Jerseyans who are making a difference in the lives of others. Representative Sherrill shared the following about Julie: "Julie founded Glen Ridge-based Congenital Hyperinsulinism International (CHI) dedicated to advocating for individuals with congenital hyperinsulinism, a rare disease causing severe hypoglycemia in infants. CHI improves the lives of babies, children, and adults with HI, providing education, information, and support to affected families. Step by step, Julie has built a global HI community of care." 🗨️ You can read more about the 2024 Holiday Heros at https://lnkd.in/e4VnYk5X 🔗

Joslyn loves to play in the snow, but her mom worries about blood sugar drops when she does. ⛄️ What would you (or your child) do if you didn’t have to worry about lows? Learn more about HI clinical trials for a #FutureWithoutLows at https://lnkd.in/eiMVms2f⁠ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Wishing you a happy New Years Eve from CHI! We are so excited to grow with our HI community in 2025 💙🎉🎆 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

What a year it has been for CHI and the HI Community! 📆 Your gift 🎁 today will allow CHI to continue our work in 2025 and beyond. Visit https://lnkd.in/drixbed to support the Sweetest Cause today 💙 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease