Congenital Hyperinsulinism International

Did you know that congenital hyperinsulinism (HI) is the most frequent cause of severe, persistent hypoglycemia in newborn babies and children? Prolonged hypoglycemia is the most common cause of preventable, irreversible brain damage. CHI is dedicated to improving the lives of those with hyperinsulinism (HI) and continues to advocate for better care, treatments, and quality of life. 🖤💛 Visit https://lnkd.in/drixbed 🔗 to support the Sweetest Cause this giving season. 🎁✨️ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Every year, Family Conferences are an instrumental part of our hyperinsulinism (HI) community – they bring HI families together in a setting where they can both relate to one another and learn from expert doctors, nurses, researchers in the field, and each other. 💛🖤 Since 2006, we have hosted 27 family conferences in 10 countries! 🌍️ Please visit https://lnkd.in/drixbed 🔗 to support HI Family Conferences in 2025. 🎁✨️ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

There are many babies and children who have trouble obtaining genetic testing for congenital hyperinsulinism. Genetic testing is necessary for patients to get the proper treatment for hyperinsulinism. 🧬 Thanks to CHI’s partnership with the University of Exeter in the UK, CHI provides this testing free of charge through the Open Hyperinsulinism Genes Program. ➡️ Since 2018, CHI has funded genetic testing for 967+ patients and 702+ family members from 63 countries, so that local doctors can personalize care, and these families are equipped with knowledge that can improve their quality of life. 💛🖤 Help us grow this program and support international access to genetic tests at 🔗 https://lnkd.in/drixbed ✨️🎁 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Congenital Hyperinsulinism International (CHI) supports families and individuals living with hyperinsulinism every step of the way. Some highlights include:⁠ ⁠ 💛 Our Facebook family support group. With 2,400+ members from 66+ countries, HI Families can share HI experiences by joining the support forum. 🖤 CHI hosts conferences for families & medical professionals - we have held 27 to date in 9 different countries!⁠ ⁠ 💛 CHI funds genetic testing by the University of Exeter for patients across the globe. We have provided 967+ tests to 63 countries through this partnership⁠. 🖤 We provide grants to hospitals to cover family expenses while children are receiving care⁠. ⁠ 💛 CHI distributes vital information about HI throughout the world. To support CHI and help us continue these programs, visit https://lnkd.in/drixbed 🔗✨️ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Save a child’s life: give the gift of HI awareness this holiday season. 🎁 Spreading awareness about hyperinsulinism and hypoglycemia is at the forefront of Congenital Hyperinsulinism International (CHI)’s mission. ➡️ Through our posters and pamphlets distributed in 25 languages, our Collaborative Research Network (CRN) Advocacy Statement, our work on the International Guidelines, a documentary film in the works, and so much more, getting the word out about preventing brain damage for people born with hyperinsulinism is an enormous endeavor. We cannot make all of these initiatives possible without your support! 💛 This giving season, support hyperinsulinism awareness by making a gift to CHI. 🎁 Visit https://lnkd.in/drixbed to make your impact! ✨️ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

✨️ "We support the Sweetest Cause because it has given us a community of warriors and caregivers just like us around the world. We've become one family." - Kierstan, HI mom ✨️ 🖤💛 Why do you support the #SweetestCause this Giving Season? Let us know in the comments 🗨️, DMs, or email at lbarnett@congenitalhi.org 💛🖤 ✨️ We need your help to RAISE IT NOW for awareness, support, and research! ⁠✨️ ➡️ Visit https://lnkd.in/drixbed 🔗 to make a SWEET impact on those diagnosed with HI. 💛 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia

The CHI Centers of Excellence (COE) Program recognizes expert centers around the world that provide the highest level of multi-disciplinary care to congenital hyperinsulinism patients and their families. In 2024, we announced our second COE designation group, bringing the total to 8 centers around the world. The program is a powerful tool to help families get access to the best care. Your gift will allow the COE Program to grow and improve standards for hyperinsulinism care worldwide. Support HI care at https://lnkd.in/drixbed #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Why support the #SweetestCause? Thanks to generous donors, CHI has been able to: 💛 Launch the HI Global Registry, a patient-powered research project with registrants from 60 countries 🖤 Secure funding for 11 competitively bid pilot research grants 💛 Host 29 major HI conferences, with attendees coming from 39 countries, and awareness information in 25 languages 🖤 Provide genetic testing to 942 individuals suspected of having hyperinsulinism from 63 countries 💛 Maintain a highly searched webpage, with visitors from 150 countries just over the last year, and 🖤 Provide patient experience expertise consulting for 8 biopharmaceutical companies developing new treatments To support CHI programs, visit https://lnkd.in/drixbed 🔗✨️ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

The CZI Rare As One Impact Report is out! Read it to learn how a fantastically generous and well-resourced foundation provided 30 rare disease organizations with unprecedented support: https://lnkd.in/ePB28i6t 🔗 The CZI RAO grant was a unique capacity building stream of revenue that also included a learning network, powered by experts in many fields. This incredible program has resulted in scientific collaborations that will better diagnose, treat, and eventually cure rare diseases, all fueled by the passion of the patient communities affected by this disease. CHI is so proud to be one of the 30 rare disease organizations included in the inaugural cycle of the RAO network. The impact report outlines the program as a whole and includes a short summary of the progress of each organization, including CHI’s. The grant was instrumental in building CHI into the mature and robust patient organization it is becoming. #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

✨️ "I dream of a life with no numbers on machines, no timetable for eating, no fear or anxiety. I just want to feel the pure joy of living a life like a normal young family." - Martina, HI mom ✨️ 🖤💛 Why do you support the #SweetestCause this Giving Season? Let us know in the comments 🗨️, DMs, or email at lbarnett@congenitalhi.org 💛🖤 ✨️ We need your help to RAISE IT NOW for awareness, support, and research! ⁠✨️ ➡️ Visit https://lnkd.in/drixbed 🔗 to make a SWEET impact on those diagnosed with HI. 💛 #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease