GBS|CIDP Foundation International

Innovation in Action! At GBS|CIDP Foundation International, our staff came together for Innovation Day, a time dedicated to collaboration, creativity, and forward-thinking solutions. We brainstormed new programs that align with our mission—and to make it even more fun, we voted on ideas using "Estelle Bucks"! Innovation is what keeps us moving forward—because together, we make a difference!

Registration is OPEN for the 2025 Symposium in Denver, CO! Join us for an unforgettable experience filled with education, connection, and hope. Don't miss this opportunity to learn from experts, meet others in the community, and be part of something truly special. Register today: https://lnkd.in/etPsmkJX See What Made Last Year Unforgettable https://lnkd.in/ejtE-yZt

It's #MMNAwarenessMonth, so Rich sat down with Clive Phillips from the Making The Most of Now team to discuss the mighty Tour De MMN, a mega 3,200km bike ride around France to raise funds for MMN research. This section of their conversation covers the stages of the ride, and some of the incredible heights and distances about to be conquered. The GAIN team will be linking up with Clive and the team at the NEC Birmingham next month at the National Cycling Show - 22-23 March 2025. We'd love if you can pop along and join us, you can get a free ticket to the event by using code MMN here: https://lnkd.in/ewsefRxg Let us know if you can make it along, and as always, thanks to Clive for taking the time to join us for a chat!

The Foundation's advocacy team, Chelsey K. Fix, MPH, and Jacob Fuller, are back on Capitol Hill discussing HR 1143!

This past weekend, the Foundation demonstrated our commitment to a patient-centric approach by hosting an Inaugural Bi-Annual Leadership Collaborative patient workshop. CIDP patients worldwide came together to share their experiences, insights, and perspectives—ensuring that the real patient voice is at the heart of every discussion. For more information on this event visit: https://lnkd.in/ePvtQT39 Congratulations to Foundation Staff Chelsey K. Fix, MPH, and Kelly McCoy for hosting such a valuable event.

Our Director of International Affairs, Nancy Di Salvo, proudly represented us at the PLUS Annual Stakeholder Consensus Conference. The shared commitment and collaboration to drive meaningful change are truly inspiring!

With MMN Awareness Month in February, the GBS|CIDP Foundation International was proud to have our Chief Strategy Officer, Richard Sperry, speak with students at the Pennington School last Friday. As a Pennington resident living with Multifocal Motor Neuropathy (MMN), Richard shared his personal journey, reflecting on his diagnosis, the challenges he has faced, and the hope that keeps him moving forward. His story of resilience and determination inspired everyone in the room. More information on MMN Awareness Month: https://lnkd.in/g8Mz4iea

February is Multifocal Motor Neuropathy Awareness Month. During the month the GBS|CIDP Foundation International are organising a number of events to help those affected by the condition, to raise awareness of it and to raise funds for research into it. One of the months activities will be the Miles for MMN event. This aims to gather the #MMN community together to get active during February and raise funds for MMN research along the way. Our #tourdemmn2025 riders will be signing up and logging lots of miles as we gear up for our big ride in France later in the year. We would love you to join us. More details can be found at https://lnkd.in/g8Mz4iea You can sign up for Miles for MMN at https://lnkd.in/gWK_DTiP #multifocalmotorneuropathy #rideformmn

When living with a rare disease like GBS, CIDP, or MMN, getting a second opinion can help you better understand your diagnosis and treatment options. Our doctor-to-doctor program connects your medical team with experts in GBS, CIDP, MMN, and variants to ensure you’re exploring the best care plans for your unique needs. Asking questions is an important step in your health journey. Learn more: https://lnkd.in/eXqX6PhV

To our family and friends in the community affected by the California wildfires, our hearts and thoughts are with you during this devastating time. If you are living with GBS, CIDP, MMN, or variant conditions and are facing difficulties accessing medical treatment or need support, please do not hesitate to reach out to the Foundation. We are here to assist you. Contact Us: (610) 667-0131 | info@gbs-cidp.org https://lnkd.in/ezcRPNxN