Global Healthy Living Foundation

We’re thrilled to announce the launch of the Dissemination Playbook! 🎉  This guide is designed to help patient advocacy organizations and healthcare professionals share research effectively with the patients who need it most. After two years of collaboration with patients, clinicians, and other patient advocacy organizations and support from PCORI, this resource is ready to bridge the gap between research and real-world impact. https://lnkd.in/gNTz7jP6

🎙️ Season Finale: The Health Advocates Podcast – Health Policy and Advocacy: 2024 Reflections and What’s Ahead in 2025 In this special season finale, hosts Steven Newmark and Zoe Rothblatt reflect on a year of impactful advocacy. From step therapy reforms to copay accumulator bans, 2024 saw significant wins for patients across the country. Looking ahead to 2025, they’re championing: ✅ The Safe Step Act ✅ The Help Copays Act ✅ Vaccine advocacy Join us as we celebrate progress, patient stories, and the advocates who make it all possible. Listen now: https://lnkd.in/gcg-XD4q #HealthPolicy #AdvocacyMatters #PatientStories #HealthcareAdvocacy

2025: A Year to Keep Patients in Focus As 2025 approaches, the healthcare industry is gearing up for a new administration, new priorities, and plenty of uncertainty. But while the policies, players, and talking points might shift, one thing stays the same: patients anchor everything we do. The truth is, while we’re debating healthcare policies, patients are navigating real challenges—medical copays that feel like a second rent payment, scheduling procedures months out, and wondering why their insurance approval feels harder to achieve than winning Jeopardy! This is our reminder: patients don’t stop needing care because the political winds shift. Behind every decision we make—whether it’s in policy, innovation, or advocacy—there’s someone waiting for the healthcare system to work for them. 2025 is shaping up to be a year of change, but it’s also an opportunity. An opportunity to lead with science, equity, and compassion. An opportunity to ensure that the policies being shaped in Washington are grounded in the realities of patient lives. And an opportunity to push forward together, no matter how bumpy the road gets. Let’s keep the patient voice loud, clear, and centered. Because when patients win, everyone wins. Now is a good time to make sure your seatbelts are fastened low and tight around your lap… #HealthcareLeadership #PatientCenteredCare #HealthcareInnovation #AdvocacyMatters #EquityInHealth #ValueBasedCare #ScienceMatters #PatientsFirst #CollaborationForChange #HealthcarePolicy #HealthEquity #AffordableCare #PatientAccess #FutureOfHealthcare #ChronicIllnessAdvocacy #RWE #SharedDecisionMaking #HealthcareInnovation #AccessToCare #Resilience #2025Vision

At ACR 2024, experts unveiled neuroimmune modulation as a novel treatment for rheumatoid arthritis. This therapy leverages the body’s nervous system to regulate immune responses, offering a new avenue for patients unresponsive to conventional treatments. “It is great to be in the vanguard of science, as we help bridge the scientists and the medical experts with the patients and families most in need of these breakthroughs,” said Seth Ginsberg, Co-founder and President of GHLF. https://lnkd.in/g3pRdw6n #ACR2024 #Rheumatology #HealthcareInnovation

Women’s health is not a side issue. It’s a foundational issue. It impacts every aspect of our lives—our families, communities, economies, and futures. And yet, it remains underfunded, dismissed, and entangled in political interference. This needs to change. In 2025, I’m dedicating myself to breaking the silence and driving action on women’s health—maternal care, menopause, migraines, osteoporosis, and more. These aren’t isolated concerns—they’re part of a broader picture affecting millions of women, including the hundreds of thousands of patients in the Global Healthy Living Foundation (GHLF) network. We must demand better policies, challenge outdated systems, and invest in solutions that prioritize women’s unique health needs. The time to act isn’t tomorrow. It’s now. #WomensHealthMatters #ChronicDisease #HealthEquality #Advocacy #ghlf #migraine #osteoporosis #womenshealth #menopause

We’re excited to launch our new podcast series: The Psychology of Chronic Neurological Disorders. This series explores how mental health strategies can support those living with chronic neurological conditions such as Alzheimer’s, Parkinson’s, and multiple sclerosis. In Episode 1: Resilience and Hope: Building a Path Forward After Diagnosis, Ian Carroll and Niklas Kei Nyblom discuss the challenges of living with these conditions and share strategies for fostering resilience and maintaining mental health. Listen now and discover a path forward: https://lnkd.in/gPiepgpU #Podcast #MentalHealth #Resilience

Vaccines Save Lives. Education Makes It Possible. At the Global Healthy Living Foundation (GHLF), we know that vaccines are more than a personal choice—they’re a community responsibility. But in a world flooded with misinformation, simply having vaccines isn’t enough. We need empowered voices to lead the charge for truth, trust, and action. That’s why we’re offering FREE vaccine training programs for advocates, healthcare professionals, and community leaders. These programs provide the critical tools, evidence-based knowledge, and strategies needed to: ✅ Combat misinformation ✅ Advocate for vaccine access ✅ Engage and educate communities This training isn’t just about learning—it’s about saving lives. The stakes are high, and the time is now. Take the first step toward becoming a champion for public health: 👉 https://lnkd.in/gFBiZjUa Together, we can build a healthier, safer world. Will you join us? #VaccinesSaveLives #HealthAdvocacy #PublicHealth #VaccineAccess #TrustScience #EndMisinformation #GlobalHealth #CommunityLeadership #EducationMatters #HealthyLiving

Make sure to check out our new research published in the Journal of HEOR (Journal of Health Economics and Outcomes Research), exploring a critical question: Could the Inflation Reduction Act's Maximum Fair Price provisions harm patients? Dr. Robert Popovian, Dr. Anne Sydor, and Esteban Rivera examine how potential cost-shifting by PBMs due to IRA policies might increase out-of-pocket costs, reduce medication adherence, and lead to poorer health outcomes. This analysis underscores the urgent need for transparency, patient-centered policies, and safeguards to protect access to essential medications. 📖 Read the full study: https://lnkd.in/gee-KZHK #InflationReductionAct #DrugPricing #PatientAccess #Biopharma

This #CCAwarenessWeek, Keyla Ire, CEO of Connecting Pieces highlights the misconceptions people face, the hidden struggles of living with IBD, and the individuality of every patient's journey.

Keyla Ire, CEO of Connecting Pieces is sharing her messages of hope this #CCAwarenessWeek by encouraging others to find community, embrace support, and give themselves grace.