HAE International (HAEi)

2024 Highlights and Hopes for 2025 – Sub Sahara Africa 🌍 In this year’s last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Read about the highlights from Patricia Karani, our RPA for Sub Sahara Africa – and her hopes for 2025 👉👉 https://buff.ly/3DCT3S8

2024 Highlights and Hopes for 2025 – Central America and Caribbean 🌍 In the last issue of Global Perspectives 2024, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Read about the highlights from Javier Santana, our RPA for Central America and Caribbean – and his hopes for 2025 👉👉 https://buff.ly/3PgImHi

2024 Highlights and Hopes for 2025 – South Eastern Europe 🌍 In 2024’s last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Read about the highlights from Natasa Angjeleska, our RPA for South Eastern Europe – and her hopes for 2025 👉👉 https://buff.ly/41OxQyB

2024 Highlights and Hopes for 2025 – South America and Mexico 🌍 In 2024’s last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Read about the highlights from Fernanda De Oliveira Martins, our RPA for South America and Mexico – and her hopes for 2025 👉👉 https://buff.ly/3PcUJEq

At the threshold of the new year, we want to send you our best wishes for a happy and healthy new year 2025! 🎉 🎊

HAEi Regional Patient Advocates – Continuing to Advance HAE Advocacy! 🙌 Michal Rutkowski, HAEi's Director, Regional Patient Advocate Program, shares key achievements in the just-published Global Perspectives magazine. "We have achieved a lot in 2024. Do we have more to do? Absolutely! That is why the RPAs stay focused on one of HAEi’s top priorities: Advancing HAE advocacy and improving the lives of those affected by this debilitating condition." Read the article on our website 👉👉 https://buff.ly/3P8y8Zt 🗞️ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips 📱 head over to the Global Perspectives online version 👉👉 https://buff.ly/3P7G0e0

The HAEi Regional Patient Advocates and the whole HAEi Team send best wishes for the holiday season – we hope you stay safe and share joy and laughter with your loved ones ❤️ We look forward to working with the HAE community in 2025 to continue expanding the global HAE advocacy movement 🙌🌍 Happy Holidays! 🤗

Exciting Updates from the HAEi Youngsters’ Community! 🌟 The December edition of the HAEi Youngsters’ Community Newsletter was sent to the community last week with information about: 🎧 New episodes of the HAE Let’s Talk podcast 🇵🇭 2025 HAEi Regional Conference in APAC 📝 New blog post: “Empowering Young Advocates: Dominika Słodka’s Impact in the HAE Community” You can read the HAEi Youngsters' Community newsletters on their website – or sign up to be the first to hear about news from the community 👉👉 https://buff.ly/49Pxfyx

🌟 New issue of Global Perspectives in a fully online format with translation options at your fingertips 🙌 We are delighted to share this year’s 4th and last edition of our Global Perspectives magazine. This issue includes: ✔️2024 Highlights from the HAEi Regional Patient Advocates ✔️News from HAEi Countries Around the Globe ✔️EU Panel Debate: Towards Better Diagnosis and Care for HAE Patients in Europe ✔️Spotlight: Advocacy in Nepal ✔️HAEi Leading Positive Change for 20 Years ✔️Update from the HAEi Youngsters’ Community ✔️ACARE 2024 Review ✔️and much, much more … This magazine issue is published in the first fully online format of Global Perspectives, allowing you to access the magazine in your preferred language with just a few clicks. Head over to the Global Perspectives online version 👉👉 https://buff.ly/3P7G0e0

🎙️ HAE Let’s Talk podcast: My journey with HAE, part two 🙌 The HAEi Youngsters' podcast, HAE Let's Talk, features youngsters from all over the world in honest conversations about life, adventures, and advocacy – covering topics from fitness and dating to healthy eating, sports, and all things HAE, all with heart and fun ❤️ In the fifth episode, Daniella Assa Nhaguilunguana and Victoria Schultz-Boysen continue with part 2 of Daniella's personal story about living with HAE, focusing on advocacy and future goals, and you can hear them talk about: •⁠ ⁠How to find support within a community •⁠ ⁠What it feels like to make your dreams come true 🎧 Listen now at 👉 youngsters.haei.org and catch this inspiring HAE Let's Talk episode!