Immune Deficiency Foundation

This Friday, February 28 marks Rare Disease Day as well as the live screening of Compromised: Life Without Immunity, our original documentary that highlights the highs and lows of resilient individuals with rare conditions. As a non-profit dedicated to improving the lives of those with primary immunodeficiencies (PI), the Immune Deficiency Foundation is committed to shining a light on the unique stories of immunocompromised individuals, but we can only do so with the help of our community. Whether you volunteer at a walk, advocate on a federal or local level, participate in a research survey, or become a monthly donor, you have the power to change lives. We hope you join us Friday for this impactful film and thank you ahead of time for dedicating your time and effort to immunocompromised populations. https://bit.ly/4h2nGyn

Myles Temple, who underwent three bone marrow transplants (BMT) for severe combined immunodeficiency (SCID) and cancer treatment twice, is today a competitive powerlifter, recent college graduate, and Immune Deficiency Foundation (IDF) volunteer. https://bit.ly/4hLFJtA

The sixth edition of our Patient & Family Handbook is now available in Spanish! ¡La sexta edición de nuestro Manual para pacientes y familias ya está disponible en español! Descarga tu copia gratuita: https://bit.ly/4i2FM42.

Volunteers are the heart of the #PICommunity! Meet Larry, who is living with common variable immune deficiency (CVID). As to why he volunteers, he says, "I believed it was important for me to volunteer in two areas where I thought I could make a difference. First was to visit plasma centers to thank donors and staff because of my monthly infusions and second advocate at the legislative level to assure awareness among our government leaders." Thank you Larry for giving your time to support immunocompromised individuals, you are much appreciated!

Newborn screening - because every baby deserves a healthy start.

We're proud to share our involvement in a new white paper from the National Organization for Rare Disorders outlining policy principles and recommendations to maintain public trust in the U.S. newborn screening system. Read more: https://lnkd.in/gGiaGAW5

A surge in norovirus outbreaks means people with primary immunodeficiency (PI) should be especially vigilant about protecting themselves against the illness. Norovirus causes nausea, vomiting, and diarrhea, which can become chronic in people with certain diagnoses such as common variable immune deficiency (CVID). https://bit.ly/4hLzypL

Thank you for following along with us here on LinkedIn and supporting immunocompromised individuals! With today being #NationalMakeAFriend Day, we would like to highlight the warm and welcoming #PICommunity, which is evident at fundraising events like #WalkForPI or here on LinkedIn and much more. Anyone can be diagnosed with PI, and we are thankful for the kind and embracing environment that the community creates. Whether you have attended an event with them or would like to, there is a welcoming space for all at the Immune Deficiency Foundation.

We've updated our Ig product booklet to make it more reader-friendly! You'll find information on all immunoglobulin products approved by the FDA for use in treating primary immunodeficiencies. Download the booklet today: https://bit.ly/4jDE9LG

Did you know that your employer may be a part of a workplace giving program, which would allow you to double your gift and impact to the Immune Deficiency Foundation? Use the search tool on our website to find out today: https://bit.ly/42AiJZQ