ITF Therapeutics LLC

It’s hard to keep track of Julz and Emily from our patient advocacy team as they buzz around the country getting to know members of the Duchenne muscular dystrophy community. Last month, Emily was in Dallas, TX for the Muscular Dystrophy Association Engage Symposium where she got to hear expert perspectives on topics like nutrition, exercise, and transitioning to adulthood. For information about future MDA Engage Symposia, visit: https://lnkd.in/dMpBr82E #Duchenne #DMD #RareDiseases

Julz from our patient advocacy team had a fantastic time joining the Duchenne muscular dystrophy (DMD) community for the Best Day Ever Foundation, Inc. Friendsgiving celebration in Indianapolis, IN. We are so fortunate to have groups that organize gatherings where individuals living with DMD and their families can come together, share experiences, and have fun. Thank you to the Best Day Ever Foundation for making this memorable event possible!   #Duchenne #DMD #RareDiseases

Our advocacy and engagement team has been crisscrossing the country attending informative events organized by advocacy groups in the Duchenne muscular dystrophy community. A recent example is the terrific immersive workshop hosted by CureDuchenne in Austin, TX. The busy agenda included insightful presentations covering current standards of care, clinical trial updates, and the importance of prioritizing social-emotional wellness. Thank you CureDuchenne for facilitating these important discussions and for inviting us to join the conversation. For details about upcoming #CureDuchenneCares workshops, visit: https://lnkd.in/gpF-RgQk #Duchenne #DMD #RareDiseases

We look forward to attending the CureDuchenne Caregiver Dinner Session taking place on December 7 in San Antonio, TX. This interactive event will bring families from the Duchenne muscular dystrophy community together to share their stories and engage in robust discussions with medical experts on topics related to health, wellness, and overall disease management. We hope to see you there! Learn more and register here: https://lnkd.in/eYqvkgVa #Duchenne #DMD #RareDiseases

We are pleased to announce the appointment of Erica L. Monaco, CPA, as chief operating officer at ITF Therapeutics. Bringing nearly two decades of experience in the pharmaceutical and financial sectors, Erica will play a critical role in driving our operational success and strategy as we build on the important progress we achieved in collaboration with the Duchenne muscular dystrophy (DMD) community this year. Our growing team includes experts who share a passion to make a positive impact for rare disease communities, and we are confident Erica’s leadership will further strengthen our programs while ensuring we operate efficiently, effectively, and compliantly. For details, see our press release: https://lnkd.in/gqq6WDm4 #Duchenne #DMD #RareDiseases

This #GivingTuesday, we want to shine a light on the outstanding advocacy leaders that are dedicated to driving positive change for people living with Duchenne muscular dystrophy (DMD) and their families. From accelerating research to creating essential resources for families, these organizations play a vital role in making sure that individuals with DMD and their loved ones can live life to the fullest, no matter what their circumstances are. We invite you to learn more about these organizations and consider joining us in supporting their impactful work: CureDuchenne Jett Foundation Little Hercules Foundation Muscular Dystrophy Association Parent Project Muscular Dystrophy Team Joseph The Akari Foundation For more information about ways to take part in the global GivingTuesday movement, visit: https://lnkd.in/ebtf7mK #Duchenne #DMD #RareDiseases 

Happy Thanksgiving from our team at ITF Therapeutics! Today and every day, we are grateful for the opportunity to collaborate with the communities that we are privileged to serve. We look forward to continuing our work together to make a positive difference for people living with #RareDiseases and their families.

𝘌𝘯𝘨𝘶𝘭𝘧𝘦𝘥 𝘪𝘯 𝘊𝘢𝘳𝘦𝘨𝘪𝘷𝘪𝘯𝘨: 𝘈 𝘗𝘰𝘳𝘵𝘳𝘢𝘪𝘵 𝘰𝘧 𝘓𝘰𝘷𝘦, 𝘌𝘯𝘥𝘶𝘳𝘢𝘯𝘤𝘦, 𝘢𝘯𝘥 𝘜𝘯𝘳𝘦𝘭𝘦𝘯𝘵𝘪𝘯𝘨 𝘕𝘦𝘦𝘥 is a must-read for anyone trying to understand what it’s like to support a loved one with Duchenne muscular dystrophy (DMD). We have shared a copy with everyone on the ITF team. Three caregivers whose stories are presented in this enlightening resource - Bill Barton, Mary Garrison, and Vivian McSween - recently shared their stories with us. We were humbled to learn how they cope with intense physical, emotional, financial, and logistical challenges while still finding moments of joy and resilience. Thank you to our co-host Marissa Penrod, Founder of Team Joseph, and to all our guest speakers for taking the time to connect with us, answer questions, and share your stories. We are grateful for the opportunity to learn from you. The personal experiences and insights you shared will continue to have an incredible impact on the work we do each and every day. #Duchenne #DMD #RareDiseases

Thank you to CureDuchenne for hosting an engaging Caregiver Dinner Session in Portland, OR. We appreciated this opportunity to listen and learn from stories shared by members of the neuromuscular disease community, including individuals living with Duchenne muscular dystrophy and their families.   To learn more about upcoming #CureDuchenneCares Caregiver Dinner Sessions, visit: https://lnkd.in/gpF-RgQk   #Duchenne #DMD #RareDiseases

Thank you to the American Academy of Physical Medicine & Rehabilitation (AAPM&R) for hosting an outstanding #AAPMR24 Annual Assembly in San Diego, CA. We enjoyed engaging with researchers and clinicians across the physical medicine and rehabilitation space to discuss new developments that are shaping the future of care for people living with neuromuscular diseases, including Duchenne muscular dystrophy (DMD). We were also excited to join the medical community in congratulating Craig McDonald, M.D., FAAPMR, of UC Davis Health on receiving the AAPM&R Distinguished Member Award! This important recognition honors the critical role that Dr. McDonald has played in advancing neuromuscular medicine, and we are especially grateful for his significant contributions to research in DMD. #Duchenne #DMD #RareDiseases