Live Like Lou Foundation

Live Like Lou Foundation

Non-profit Organizations

Oxford, Ohio 1,533 followers

Leaving ALS better than we found it.

About us

National nonprofit organization committed to raising awareness of ALS, supporting ALS warriors and their families, and raising funds for emerging ALS science focused on finding treatments or a cure. We do this work in honor of our namesake, Major League Baseball Hall of Famer, and Luckiest Man, Lou Gehrig, and the more than 16,000 people living with this 100% fatal disease each day across North America. Our programs include grants targeted to emerging ALS research programs and researchers, Iron Horse Scholarships for dependents of ALS warriors, one-time or short-term projects in/around the home, grants in support of children in ALS families, and so much more. We are proud partners with Lou Gehrig's fraternity, Phi Delta Theta. For more than half a century, Phi Delts from across the globe have been dedicated to ALS as its philanthropic charity. Their partnership allows us to serve more than 200 ALS families each year through hands-on volunteer work and support of children in ALS families attending Hope Loves Company camps. Our mission is to create and connect communities to stimulate emerging research and uniquely support families affected by Lou Gehrig’s disease. In doing so, we know we'll leave ALS better than we found it.

Industry
Non-profit Organizations
Company size
2-10 employees
Headquarters
Oxford, Ohio
Type
Nonprofit
Founded
2018
Specialties
ALS, Lou Gehrig's disease, ALS Awareness, ALS Research, ALS Family Support, Scholarships, and Grants

Locations

Employees at Live Like Lou Foundation

Updates

  • At Live Like Lou, we are committed to serving those impacted by ALS through our Connect & Serve program matching volunteers for one-time or short-term help around the home. David was diagnosed with ALS in October 2022 and sadly passed away earlier this year. He was known for his love of the gospel and spent his days fishing, hunting, and making memories with his family. With the help of our volunteers from Phi Delta Theta at the University of West Georgia, some yard work was completed last week to help David's wife and caregiver, Kelly, during this challenging time of loss. 📸@[phideltuwg]

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  • Happy Valentine’s Day! ❤️ Today, we are celebrating caregivers a little extra because we know they are some of the most hard-working, loving, and patient people you will ever meet.   Just like the indomitable Eleanor Gehrig, Lou’s devoted caregiver and sweetheart, caregivers pour their hearts into caring for others. Show a caregiver some extra love today—bring them a coffee, surprise them with flowers, bring them a meal, or simply remind them that they are not alone. 💌

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  • In 2022, Britt Minton was diagnosed with ALS. This weekend, incredible volunteers from @University of Wisconsin-Whitewater Phi Delta Theta chapter, stepped up through Live Like Lou’s Connect & Serve program—chopping and stacking firewood to help heat Britt and his wife Michelle’s home this winter. 🔥 "We have a fire every day, all day for my husband, and our supply of wood was getting very low. These pictures are a testament to the fact that I now have one less thing to worry about as I care for my husband. They truly made a difference in our lives today," Michelle shared. Thank you, Phi Delta Theta UW-Whitewater, for showing what it means to serve others through action. 💙

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  • Every year, @IAMALS plants 6,000 flags on the National Mall in Washington, D.C., to honor and remember loved ones, raise awareness for ALS, and inspire action for the ALS community. Each flag bears the name of someone living with ALS, carrying a related gene, or who has passed away from the disease. This is a great way to be honored or honor a loved one. If you would like to add your or your loved one’s name and information to a flag, use this link: https://lnkd.in/gKVP-bq3  The deadline to submit names is April 1, 2025, and the flags will be displayed in May.

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  • What's better than baseball and live music? ⚾🎸 Combining both to raise money and awareness for the ALS community! 💙 Tickets are on sale NOW for Milwaukee Brewers' leftfielder Christian Yelich's third annual Home Plate Charity Concert at the historic Pabst Theater in Milwaukee, presented by American Family Insurance. Join Live Like Lou on Thursday, April 17, to enjoy performances from the Goo Goo Dolls, Nicotine Dolls, Charlie Berens, and more! This awesome night out will benefit Live Like Lou, the Brewers Community Foundation, and Visit Milwaukee. 🎫: https://lnkd.in/gMhwjE6p Interested in sponsoring? Contact us today at info@livelikelou.org!

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  • 🚨 Calling all registered LLL families! 🚨 The Iron Horse Scholarship application is now open! 🎓 Live Like Lou’s scholarship program offers financial support for post-secondary education for students in ALS families, honoring the strength and courage shown by these families. In memory of baseball Hall of Famer Lou Gehrig, known as the "Iron Horse," we celebrate his legacy and the resilience of those facing ALS. 📅 Applications are now open. Submit by Friday, February 28, 2025. 🔗 https://lnkd.in/gmcBfHmT

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  • Live Like Lou is proud of its work in advancing ALS research. We believe today’s investments in ALS discovery will produce tomorrow’s trials, treatments, and cures for Lou Gehrig’s disease. We are pleased to announce that applications are open for our inaugural Graduate Fellowships, which will fund up to $50,000 a year for up to two years to candidates in a PhD or MD/PhD program (or the equivalent). We aim to fund scientists to attract and encourage new interdisciplinary researchers studying ALS to remain committed to this field. Learn more: https://lnkd.in/gMkbSN2P

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  • Join us for The Lou Workout at home! 💪🏡 This Saturday, January 25, personal trainers Jeannie Glasstetter and Cora Skorapad will lead a low-impact, modified version of The Lou Workout, ensuring that The Lou is for everyone; The Lou is for YOU. No equipment is needed; this version of The Lou is accessible to all! Whether you’re a caregiver, an ALS advocate, or a friend of Live Like Lou, join us on Zoom to participate, have fun, raise awareness for ALS, and secure funds for Live Like Lou's programs. The at-home workout will be at noon Pacific, 2 Central, and 3 Eastern! 🕒 Learn more here: https://lnkd.in/gvHYtjPU

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