Lupus and Allied Diseases Association, Inc.

Feeling energized and powerful after the United Hospital Fund of New York Health Equity Fellowship Kickoff. Thank you to the UHF team Oxiris Barbot Didier Sylvain Camila Pazos Fajardo (ella/she) Chad Shearer Matisse Gilmore Gabriela Groenke for facilitating innovative discussion and bringing us together at the Ford Foundation, my co-fellows Tola Orisamolu, DNP, CPNP Monique Collier Nickles, MD Chanelle Diaz, MD, MPH Joshua Budhu Omega Augustus RN MSN CPXP Pascale M. White, MD, MBA, MS, FACG and Gwendolyne Anyanate Jack, MD, MPH, everyone I had the opportunity to connect with and learn from over the past 2 days Deepak Bhargava Sonia M. Ospina Eric Wei Omolara Thomas Uwemedimo, MD, MPH Marilyn Fraser, MD, and my community partner Lupus and Allied Diseases Association, Inc. Kathleen Arntsen VP Anne Zablotowicz for coming out to support me.

As President & CEO of Lupus and Allied Diseases Association, Inc.(LADA), I am thrilled to share that our 24th Annual Lupus Charity Golf Classic held on August 15th at the beautiful Shenendoah Golf Course at Turning Stone Resort Casino was a tremendous success on all fronts. From the perfect weather to the breathtaking scenery, passionate volunteers, wonderful golfers, generous sponsors, delicious food, amazing staff and incredible venue; all united to support us to hold our most successful event to date, raising $196,500 gross, $166,000 net in proceeds. Words do not properly convey the feelings of pure joy, love, and support that many of us sensed throughout the day. It culminated in a display of heartwarming generosity as multiple contest winners selflessly donated back their monies to us at dinner. This is our LADA Community— full of grace, grit and generosity and we are all truly blessed.  We launched our new butterfly backdrop and purple golf shirts, which not only added color to the event, but were a huge success as well. The backdrop was designed by Maryrose Bullock, an artist, former LADA Board Member and person with lupus. No two butterflies are alike, just like people with lupus. Companies spend a tremendous amount of money on their exhibits, but our simple backdrop, created with love and passion, has become far more meaningful to those who visit our booths. Kudos to our Honorary Chairman Donald Raddatz and our fantastic volunteers: Dave Arntsen Anne Zablotowicz Bradley Dickerson Dina Thachet, CCLS Sandi Frear Nicole Hemmenway Paul Hastings Jess Bateman Kristina Davidson and Millie Occhionero. Thank you to our many sponsors, Event Sponsors Amgen and Aurinia Pharmaceuticals Inc. and Diamond Sponsor Lupus Research Alliance and the many individuals with lupus and their families, friends, unions, healthcare providers, employers, and corporations. We are also blessed to have supportive partners Brian Nyquist, MPH and Alicia Barron, LGSW from National Infusion Center Association (NICA) and Infusion Access Foundation and Nicole from U.S. Pain Foundation. Thank you to all of the Golfers for their support and for choosing unique names for their teams and wearing fun shirts. This event succeeded by the collective efforts and tremendous heart of everyone involved. Maria Kontaridis Masonic Medical Research Institute - MMRI Rheumatology Research Foundation, Steven Echard, IOM, CAE Lupus Foundation of America, Inc., Childhood Arthritis and Rheumatology Research Alliance (CARRA), Lupus Research Alliance Albert T. Roy, Jamie Reidy DxTerity, ImmPACT Bio Stephen Marmaras Lindsay Tsopelas Marmaras, MSN, APRN, FNP-C Matt Harutunian Teri Yoder DaVita Kidney Care Kayla L. Amodeo, PhD Veronica Moore, M.A, Amy P. #thankyou #lupusresearch #lupus #autoimmune #fundraising #advocacy #patientvoice #unmetneed #golfclassic #carepartner #gettingitdone #innovative #volunteer #community #passion #novel #proofofconcept

ImmPACT Bio is honored to be awarded an $8 million grant from the California Institute for Regenerative Medicine (CIRM) to support #IMPT-514 for the treatment of refractory #lupus nephritis and systemic lupus erythematosus. IMPT-514 is a potentially first-in-class CD19/CD20 bispecific #CAR T-cell therapy designed for deep and extensive depletion of autoreactive immune cells. Read more here https://bit.ly/3wyH4Bq #MakeAnImmPACT #autoimmunediseases Lupus and Allied Diseases Association, Inc. Kathleen Arntsen