MitoCanada

Starting February 2025, MitoCanada’s iconic annual #spinathon event, previously known as #MitoSpin, will take on an exciting new format! Rather than being hosted directly by #MitoCanada, this event is evolving into a community-led initiative, empowering our incredible #MitoCommunity supporters to lead the charge in raising awareness and vital funds in support of MitoCanada’s research, education, and support programs. This year, we’re thrilled to announce community spinning events in Victoria, Calgary, Winnipeg, and virtually through #Zwift. These events are a powerful way to unite #Canadians, whether in person or online, to support the mito cause. We invite you to start your own event or join one of these events. Visit our website to take a look at the line-up of events: https://lnkd.in/ekp_i48v

Are you or someone you know living with #MELAS and between the ages of 12 and 17? We’re helping to spread the word about an interview study conducted by our friends at Tisento Therapeutics to better understand the experiences of teens with MELAS and guide the development of future treatments. This is an exciting opportunity to advance research and potentially improve quality of life for those living with MELAS. Your voice matters! By participating, you’re contributing to the future of #mito research and helping pave the way for more treatments and resources for the #MitoCommunity. 🕒 What’s involved? Two 45-minute interviews where you can share your story and insights. 💵 What’s in it for you? Earn up to $150 for your time and help shape the future of mitochondrial medicine. If you or someone you know is interested, learn more here: https://lnkd.in/gXK-97tV

We’re excited to share an update from one of our incredible 2024 #mitoScholar recipients, Jodi Young, who’s pursuing a PhD in Boreal Ecosystem & Agricultural Sciences at Memorial University of Newfoundland. “The first year of my PhD has been great,” says Jodi. “It’s been filled with a lot of reading about different insect and plant species, a lot of planning, and some fieldwork. I’m so thankful and excited for what’s to come in the following years of my research!” Go Jodi go! We love to hear this. Your support makes stories like Jodi’s possible, empowering young #Canadians living with or impacted by #mitochondrialdisease to achieve their academic dreams. The next round of #mitoScholars applications will open on March 17th. Learn more about the program and the 2024 recipients here: https://lnkd.in/eQXKtB2U

Have you heard the news? Spin 4 Mito is coming to a city or screen near you this February, and it’s bigger and better than ever. Our iconic annual #spinathon event, previously known as #MitoSpin, is taking on an exciting new format! Rather than being hosted directly by #MitoCanada, this event is evolving into a community-led initiative, empowering our incredible #MitoCommunity supporters to lead the charge in raising awareness and vital funds in support of MitoCanada’s research, education, and support programs. So far, community spinning events are planned for #Victoria, #Calgary, #Winnipeg, and virtually through #Zwift. Don’t see an event near you? You can create your own! Learn more here: https://lnkd.in/ekp_i48v

We’re thrilled to share an update from one of our stellar 2024 #mitoScholar recipients, Veronica Jenkins, who just completed the first term of her first year at the Alberta University of the Arts, where she’s pursuing a Bachelor of Design. “I’d say, honestly, I’m settling in pretty well,” says Veronica. “Naturally it took some time to get used to the new environment and classes, but overall I love it. As of right now, the thing I’ve enjoyed the most is definitely the people I’ve met. It’s genuinely just so refreshing to be surrounded by so many like-minded people. I’ve been able to connect with so many people, and I’m so happy to be able to continue to do so in the years to come.” What a wonderful update – we’re so pleased to hear it! Your support makes stories like Veronica’s possible, empowering young Canadians living with or impacted by #mitochondrialdisease to achieve their academic dreams. The next round of #mitoScholars applications will open on March 17th. Learn more about the program and the 2024 recipients here: https://lnkd.in/eQXKtB2U

Good news for donors! The Government of Canada has extended the deadline to receive a 2024 charitable tax receipt to February 28, 2025, giving #Canadians more time to support the causes they care about. If you haven’t made your year-end donation yet, there’s still time to make a meaningful difference. Your donations directly support #MitoCanada’s efforts to provide critical support, education, and research to Canadians impacted by #mitochondrialdisease. Make your donation before February 28 to receive your 2024 tax receipt! Donate here: https://lnkd.in/gAS-PNY6

New on MitoNews Today: How does having a sibling with a rare disease impact quality of life and mental health? A recent systematic review explores the experiences of #siblings of children with rare diseases, highlighting potential challenges in their quality of life and mental health. The findings emphasize the importance of addressing the psychosocial impact on the whole family, not just the individual with the rare disease. This research is a vital reminder of the broader impact of #rarediseases on families and the importance of holistic care. Read more about the findings on our website: https://lnkd.in/eEjjw5ib

We’re so proud to share an update from one of our amazing 2024 #mitoScholar recipients, Ethan Pruchnicki, who just completed the first semester of his university journey at the University of Waterloo, where he’s studying Science and Business (first year). “I am having a wonderful time at the University of Waterloo,” says Ethan. “This first semester has been an experience that I am very grateful for. Every day is a new adventure, and I am learning so much in all of my classes. Exams are a little stressful, but it helps to have people to support me. I have really enjoyed meeting people with similar interests to me and being able to play basketball whenever I want! The friends I have met here have become super close to me and it feels like I have known them my whole life.” We’re thrilled to hear this update! “I am very grateful for the support from #MitoCanada and everyone who helped support the #mitoScholars program,” adds Ethan. “If more kids like me or my brother can be supported to go to university, it would certainly make me happy, as I have been having a lot of fun here at university.” Thanks for sharing, Ethan! Your support makes stories like Ethan’s possible, empowering young #Canadians living with or impacted by #mitochondrialdisease to achieve their academic dreams. The next round of mitoScholars applications will open on March 17th. Learn more about the program and the 2024 recipients here: https://lnkd.in/eQXKtB2U

MitoCanada is turning 15 in 2025! This milestone is a celebration of 15 years of resilience, community, and progress. From launching life-changing programs to empowering #Canadians impacted by #mitochondrialdisease, our journey has been fuelled by your generosity and support. As we gear up for this special year, we have some exciting plans ahead: ✨ Sharing stories that highlight 15 years of impact ✨ Reflecting on key moments and milestones ✨ Launching new initiatives to continue our mission Stay tuned for inspiring stories, fun challenges, and meaningful ways to get involved. Together, we’ll honour the past 15 years while driving hope and action for the future.

Happy New Year from MitoCanada! In 2024, we achieved so much together: ✨️ Expanded educational resources and support programs ✨️ Launched #mitoRide and grew our #mitoScholars and #FacesofMito projects ✨️ Introduced Mito in the Classroom to support students with #mito ✨️ Deepened collaborations with clinicians and researchers As we step into 2025, we’re excited to build on this momentum — expanding our programs further, increasing community outreach, and exploring innovative research partnerships to create a brighter future for all Canadians impacted by #mitochondrialdisease. You can still help us Fuel Our Future! Until January 5th, every dollar you donate will be matched dollar-for-dollar up to a total of $15,000, doubling your impact. Your generosity supports vital initiatives like awareness programs, patient-centered research, and community resources. Let’s start 2025 strong! Donate today: https://lnkd.in/g_H7GPUu