Muscular Dystrophy Association

Dr. Sharon Hesterlee, MDA Executive Vice President, Chief Research Officer, shares why the MDA Clinical and Scientific Conference is the ultimate gathering for the neuromuscular field. Join clinicians, researchers, and experts as they come together for collaboration and innovation. 📅 March 16-19 📍 Dallas, TX 🌐 Register today: MDAconference.org Don’t miss this unique opportunity to shape the future of #neuromuscular care and research. #MDAconference

🌟 MDA Summer Camp Registration is Now Open! 🌟 We are thrilled to announce that registration is officially open for both campers and volunteers for the 2025 MDA Summer Camp! This year marks a special milestone for the Muscular Dystrophy Association—celebrating 70 years of transformative summer camp experiences and 75 years of MDA’s unwavering commitment to families living with neuromuscular diseases. MDA Summer Camp offers children and young adults living with #MuscularDystrophy and related #neuromuscular conditions the opportunity to experience life-changing activities—whether in-person or virtually. It’s a place of independence, self-confidence, and lasting memories. As Matthew Plummer, MDA Board Member and former camper, reflects, “MDA Summer Camp was where I first experienced independence, gained confidence, and learned the importance of self-advocacy—skills that have shaped the trajectory of my life.” Whether you are looking to create lasting memories as a #volunteer or empower a young person in your life, there are countless ways to get involved and make a difference! Join Us for the 'Best Week of the Year' - read more here: https://lnkd.in/e7iAEewp REGISTRATION: 🔗Camper Registration here: https://lnkd.in/e7xRGvAb 🔗Volunteer Registration here: https://lnkd.in/eWFUXidy #MDA #SummerCamp #DisabilityInclusion

Check out this #QuestBlog with #MDA’s Executive Vice President, Public Policy & Advocacy, Paul Melmeyer, and learn more about the convening of the Neuromuscular Advocacy Collaborative to align on legislative priorities for 2025: https://lnkd.in/ennKqDyn Advocacy organizations from across the country will join global leaders in neuromuscular disease research and care at the 2025 MDA Clinical & Scientific Conference March 16-19, in Dallas, Texas. Join us and register at MDAconference.org.

#HappyNewYear from the Muscular Dystrophy Association. 💛💙🎉. Here’s to a new year of advancing clinical and scientific research and care and being one step closer to finding cures. Donate today to fuel breakthroughs and momentum in the New Year at MDA.org/Holiday. 

Reflecting on Muscular Dystrophy Association's advocacy work in 2024, from major wins to improve #AccessibleAirTravel for people living with disabilities to ensuring the #neuromuscular community had all the resources needed to vote in this year’s election, it was a transformational year. We are grateful for the actions of all our advocacy volunteers! Read more in this #QuestBlog by Mark Fisher, Director of Advocacy Engagement at MDA, and join us in 2025 as we continue this important work. Sign up to advocate with us here: MDA.org/Advocacy #DisabilityInclusion #Advocacy

All of us at Muscular Dystrophy Association mourn the passing of President #JimmyCarter, a true humanitarian and champion for equality, justice, and access for all people. Our heartfelt condolences to the Carter family, friends, and colleagues worldwide. Pictured here with his beloved late wife Rosalynn of 77 years, President Carter is alongside alumni MDA National Ambassador #MattieStepanek and his incredible mother, Jeni Stepanek. Rest in peace.

Only 2 days left to make a tax-deductible donation before the year ends to support people living with #neuromuscular disease! Every donation makes a difference. Give now: MDA.org/Holiday     

Double your impact this holiday season! A generous donor is matching all year-end gifts made to the Muscular Dystrophy Association. Your tax-deductible donation helps fund critical research and access care for families living with muscular dystrophy, ALS, and related diseases. Give now to maximize your gift and make twice the difference! MDA.org/Holiday

It’s not too late! Make a tax-deductible donation to #MDA by December 31 and support groundbreaking research & access to care for people living with neuromuscular diseases. Every gift counts. 💙💛 MDA.org/Holiday  

As the lights twinkle and the year draws to a close, we reflect on the joy and hope brought into our lives by each member of the #MDA community. This holiday season helps us continue to light the path of progress. Your support creates brighter futures every day.      Make a special end of year donation at MDA.org/Holiday