National Organization for Albinism and Hypopigmentation - NOAH

We are sad to share the news of the passing of Mike McGowan, a dedicated advocate for the albinism community. Mike started his service to the albinism community as leader in the local Northern Illinois NOAH community more than three decades ago, then expanded his role nationally by serving as a NOAH board member. He went on to serve as board President and finally as NOAH's first Executive Director. Mike’s vision and leadership were instrumental in shaping the organization and the programs and services that continue to support people with albinism and their families today. In his most recent role with the Global Albinism Alliance, Mike’s unwavering passion for serving people with albinism remained at the forefront of his work. His commitment to improving the lives of others and his advocacy for the community earned him the admiration and respect of colleagues and friends alike. Mike's leadership and tireless dedication to the albinism community will be remembered by all who knew him. His impact will be felt for generations to come. On behalf of the NOAH organization and the many friends within our community, we extend our heartfelt condolences to his loved ones during this difficult time. https://lnkd.in/euX5eE5c

While visiting Georgia, NOAH Board Chair Donté Mickens joined UN Independent Expert Muluka-Anne Miti-Drummond for a tour and discussion with staff at the Center for the Visually Impaired in Atlanta, where their mission is to empower people impacted by vision loss to live with independence and dignity.

NOAH Connects with UNIE in Atlanta, Georgia During her recent visit to the United States, Muluka-Anne Miti-Drummond, the UN Independent Expert on the enjoyment of human rights for people with albinism, traveled to Atlanta, Georgia. There, she engaged with several members of the NOAH community, who shared their experiences living with albinism in the U.S. These important insights will inform a comprehensive report that the Independent Expert plans to present to the Human Rights Council in March 2025.

United Nations Independent Expert on the enjoyment of human rights by persons with albinism, Muluka-Anne Miti-Drummond, recently concluded her visit to the US and Puerto Rico, sharing her preliminary findings in this press release. https://lnkd.in/ecpdeTXh Ms. Miti-Drummond will present a detailed report to the Human Rights Council in March 2025.

Did you know that 2/3 of Americans do not have any type of estate planning document? October 21-27 is National Estate Planning Awareness Week, and NOAH joins in raising awareness of the importance of estate planning. If you are passionate about NOAH's mission, we encourage you to consider including a planned gift in your estate planning to help us continue our important work for many years to come. Learn more about planned giving & legacy gifts: https://lnkd.in/e2qY_xdF

2025 International Scientific Conference on Albinism NOAH is a proud supporter of the Global Albinism Alliance's International Scientific Conference on Albinism (ISCA), which will be held virtually January 21-24, 2025. Learn more: https://lnkd.in/e428kjgm

Seeing Beyond: Navigating Life with Low Vision NOAH is pleased to partner with Dr. Thomas Porter, O.D., F.A.A.O. for a new, educational series of NOAH Connections Calls answering questions for those with low vision & albinism. The first call of our "Seeing Beyond" series will be an adaptation of Dr. Porter's popular NOAHCon session: What to Do When You've Been Told Nothing Can Be Done. Join Dr. Porter as he covers the basics of low vision care and visual rehabilitation Wednesday, October 23rd at 9pm ET // 6pm PT. https://lnkd.in/ege8Xrwh