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Coming to the #WorldOrphanUSA Diagnosis & Drug Discovery Day 2 track stage is the 𝐏𝐚𝐧𝐞𝐥: "𝐀𝐝𝐝𝐫𝐞𝐬𝐬𝐢𝐧𝐠 𝐜𝐨𝐦𝐦𝐨𝐧 𝐛𝐚𝐫𝐫𝐢𝐞𝐫𝐬 𝐢𝐧 𝐫𝐚𝐫𝐞 𝐡𝐞𝐫𝐞𝐝𝐢𝐭𝐚𝐫𝐲, 𝐩𝐫𝐨𝐠𝐫𝐞𝐬𝐬𝐢𝐯𝐞 𝐚𝐝𝐮𝐥𝐭-𝐨𝐧𝐬𝐞𝐭 𝐝𝐢𝐬𝐞𝐚𝐬𝐞𝐬", a discussion between ⬇️ 𝘔𝘰𝘥𝘦𝘳𝘢𝘵𝘰𝘳 🌟 Cynthia Cassandro, Vice President, Patient Advocacy, Vigil Neuroscience 𝘗𝘢𝘯𝘦𝘭𝘪𝘴𝘵𝘴 🌟 Heidi Edwards, President, Sisters' Hope Foundation 🌟 Jean S., Executive Director, Genetic ALS & FTD: End the Legacy 🌟 Lauren Holder, Producer/Host, Help 4 HD Live, Help 4 HD 🌟 Allison Peck, CFO, Cure VCP Disease This impactful, women-led session will focus on... - 𝐑𝐚𝐢𝐬𝐢𝐧𝐠 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 about adult-onset, genetic, neurodegenerative diseases. - 𝐓𝐚𝐜𝐤𝐥𝐢𝐧𝐠 𝐫𝐨𝐚𝐝𝐛𝐥𝐨𝐜𝐤𝐬 𝐭𝐨 𝐭𝐢𝐦𝐞𝐥𝐲 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 with a spotlight on genetic testing and differential diagnosis. - 𝐄𝐱𝐩𝐥𝐨𝐫𝐢𝐧𝐠 𝐭𝐡𝐞 𝐩𝐫𝐨𝐟𝐨𝐮𝐧𝐝 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞𝐬 faced by adults diagnosed in the prime of their lives – many with no current treatments – leading to cognitive decline and dementia. ...𝘢𝘯𝘥 𝘮𝘰𝘳𝘦❗️ Join us in building a coalition for change! ⬇️ Secure your spot below to catch inspiring discussions strengthening the voice of the #raredisease community and making a tangible difference in the lives of those living with a rare disease. 💡🤝 𝐆𝐞𝐭 𝟔𝟎% 𝐨𝐟𝐟 𝐭𝐢𝐜𝐤𝐞𝐭𝐬 & 𝐬𝐚𝐯𝐞 $𝟐,𝟎𝟔𝟓 𝐭𝐨𝐝𝐚𝐲: https://lnkd.in/eaz-cxwZ Are you a patient advocate or hospital practitioner? 𝐂𝐥𝐚𝐢𝐦 𝐲𝐨𝐮𝐫 𝐅𝐑𝐄𝐄 𝐩𝐚𝐬𝐬 𝐟𝐨𝐫 𝐜𝐨𝐦𝐩𝐥𝐢𝐦𝐞𝐧𝐭𝐚𝐫𝐲 𝐞𝐯𝐞𝐧𝐭 𝐚𝐜𝐜𝐞𝐬𝐬 𝐡𝐞𝐫𝐞: https://lnkd.in/ezqcD2G4 🗓️ April 22-24, 2025 📍 Boston Convention & Exhibition Center #OrphanDrugs #Diagnosis #DrugDiscovery