Vasculitis Foundation

Our incredible vasculitis community came together over the last few days in an extraordinary way for our special BOD Double Match. We're thrilled to announce that thanks to your incredible generosity, we've reached our $16,000 BOD Match goal! Through the inspiring leadership of Board Members Noelle Creamer and Dahlia (Liao) Mak and family, and the overwhelming response from our community, we've created a $32,000 total impact for the Vasculitis Foundation. Our gratitude is immense. 'Your response overwhelmed us with hope. Each donation represents a family supported, research advanced, and awareness spread. As someone who lost my brother to vasculitis, I see your gifts creating the change we desperately need.' - Dahlia 'From my heart as a GPA patient and now as your Board Member, thank you for standing with us. Together, we're building a stronger foundation for everyone affected by vasculitis.' - Noelle This isn't just about numbers – it's about our community's strength, dedication, and unwavering hope for a better future. Every donor, sharer, and supporter played a crucial role in yesterday's success. “Special thanks to everyone who created Facebook fundraisers, shared our posts, and spread the word. Your voices amplified our impact! Together, we're making a difference.” With deepest gratitude, Dahlia & Noelle, VF Board of Directors Your extraordinary support advances our mission of research, education, and patient care. Thank you for standing with us and proving once again that we are truly #VasculitisStrong.

A familiar phrase that many people with vasculitis hate hearing is “But you look great!” The VF virtual support groups are a place where people come together to listen, cry, laugh, voice frustrations and share triumphs – both big and small – with people who understand. Here's one fellow #vasculitiswarrior's perspective on our support groups. Please show your support by donating today using the link below 👇 [https://lnkd.in/eZgTpdWT ](https://lnkd.in/eZgTpdWT "/linkBuilder_6XJ5pMl99DGFwKBJeG8zKZ") Thank you Amgen and AstraZeneca for supporting this campaign!

A special message from Dahlia and Noelle: “As the sun sets on this special weekend of giving, we're overwhelmed by the love and support from our vasculitis community. Each donation tells a story - a story of hope, of remembrance, of fighting back against this disease that has touched so many of us. For me, Dahlia and my family, every gift honors my brother's memory and moves us closer to a world where no other family loses a loved one to a missed diagnosis. For me, Noelle, each donation strengthens our ability to support patients like myself who wake up every day facing the unknown challenges of GPA. Will you join us in these final hours? Your gift, matched dollar for dollar up to $16,000, becomes a beacon of hope for someone fighting vasculitis right now.” -Dahlia & Noelle, VF Board Members Every gift brings us closer to better treatments, earlier diagnoses, and stronger support for all affected by vasculitis. Remember, you have till midnight tonight to have your gift matched by Dahlia’s family and Noelle. Donate at https://lnkd.in/eJA8bd34

“We need to elevate awareness and knowledge of vasculitis from diagnosis and treatment to long-term disease management,” Dahlia said. “We need to ensure that patients receive the best possible vasculitis care regardless of their zip code.” Once joining the VF’s Board of Directors, Dahlia stepped up to plan and execute the VF’s Expertise in Care Summit. This event brought together 40+ vasculitis experts and stakeholders to address the various barriers that patients face accessing vasculitis expertise, regardless of where they live, and to envision a better future. Learn more about Dahlia’s story by reading Dahlia and Noelle’s BOD Match article!

“When I was diagnosed with GPA, it felt like my whole world had been flipped upside down. One day I was fine, and the next, I was sitting in the ER trying to wrap my head around something I’d never even heard of before. But here’s the thing, while it’s been tough, it’s also taught me so much about resilience and the power of community. That’s why I’m so passionate about the VF. It’s not just about surviving. It’s about thriving and making sure no one has to navigate this journey alone.” -Noelle Learn more about Noelle’s story by watching her Community Hero video at https://lnkd.in/e_zysssi.

“I think of my brother Darwin every day and wish his clinical experience was different; I wish he could have been referred to a specialist early on, wish that his doctors questioned why he wasn’t improving, and wish his care team took time to explore differential diagnoses and engage a rheumatologist in his care.” -Dahlia Dahlia knows that while Vasculitis is a rare disease, it can be diagnosed more quickly. Once diagnosed, patients need support, education and advocacy and that’s where the VF steps in and that’s why she and her family are offering this double match in honor of Dr. Darwin James Liao. Help drive VF’s mission at [https://lnkd.in/gjHjCvkc. ](https://lnkd.in/gjHjCvkc. "/linkBuilder_6XJ5pMl99DGFwKBJeG8zKZ")

This special Double Match Day is more than a fundraiser; it’s a chance for our community to join two passionate advocates who truly understand the impact of this disease. Your gift will go twice as far, powering vital support for patients and families affected by vasculitis. The pair joined the board this year to support the VF’s mission of building community, providing support, funding research and fellowships and educating and empowering everyone impacted by vasculitis. Both are dedicated professionals whose work is aimed at helping people live healthy lives. Dahlia comes from the health care industry, while Noelle is a board-certified wellness coach. Learn more about these two incredible women and advocates here: https://lnkd.in/eC8B3Eib

We need your input! If you have a child diagnosed with vasculitis, please take a moment to fill out the Pediatric Patient Questionnaire on Survey Monkey. Your responses will help guide future initiatives to better support our community. Thank you! https://lnkd.in/e9c9Gkga

“When I was first diagnosed, I felt completely lost. The VF was like this bright light cutting through the confusion. They gave me resources, answers, and, most importantly, hope. Now, I want to be that light for someone else. Whether it’s connecting with patients, hosting webinars, or just sharing my story, I want others to know they’re not alone and that we’re in this together. I want to match your gift, so that together, we can ensure no one has to face this disease alone. Donate at https://lnkd.in/e_Xf3ygT -Noelle Creamer

The vasculitis community always stands together and today is further proof. Your response to the Liao family’s and Noelle's matching gift challenge has been incredible! “Every donation we match today helps advance research and support for patients like my brother, who lost his life to EGPA.” - Dahlia “As someone living with GPA, I can see how your gifts create real impactful change in our community.” - Noelle Help us multiply the impact! Create a Facebook fundraiser over the weekend or share this matching opportunity with friends and family who understand the importance of supporting the vasculitis community. Every share could mean another life touched, another family supported. Together, we're not just raising funds - we're raising hope for every person touched by vasculitis. Every story matters. Every gift counts. Every moment is precious. Give today at [https://lnkd.in/gjHjCvkc ](https://lnkd.in/gjHjCvkc "/linkBuilder_6XJ5pMl99DGFwKBJeG8zKZ")