a16z Bio + Health’s Post

Matt Wilsey’s story is one of determination & innovation. When his daughter was diagnosed with NGLY1 deficiency—an ultra-rare genetic disorder with only 130 known cases worldwide—Matt took an unconventional path: he built Grace Science, LLC, a company dedicated to curing the disease. Without a background in biology, Matt relied on relentless learning, assembling a top-tier team of scientists, and a startup mindset to tackle the problem. Matt recently joined a16z general partner, Jorge Conde, to discuss how he turned a personal tragedy into purpose, used a startup approach to drive scientific progress, and worked closely with the FDA to overcome regulatory challenges. Listen on Raising Health: https://lnkd.in/gTSBtTaM

  • No alternative text description for this image
Matt Wilsey

CEO at Grace Science

3w

I had so much fun doing this podcast with my dear friend Jorge Conde. Thank Raising Health team & a16z Bio + Health

You’re an inspiration, buddy!

Like
Reply
Greg Cohen

Founder, lean product management leader, maker, and team builder. Former SnapCare, 280Group, Instill, and idealab!

1w

congrats. It's been amazing following your progress. The world and rare disease community need more Matt Wilsey's!

Like
Reply
Brian Rumao

Managing Director, Next Play Ventures

3w

Inspiring is an understatement. Thanks for shining a light on Grace Science 🙏🏽

Zeenat Patrawala

Chief Business Officer | AI Advisor |Google AI | MIT| Cornell | Advocate for Women

3w

Hey Matt Wilsey…you are an inspiration and old friend. Hope you’re doing great.

Like
Reply
Dr V. R. Ravi MS (Ortho)

Director at Mothercell Regenerative Centre

1w

Love this

Like
Reply
Ken Drazan

Chairman, CEO, Co-Founder at ArsenalBio

3w

One of my heroes

Swaroop Aradhya

Medical Affairs Leader in Genetics and Genomics

3w

Inspiring journey, Matt!! Outstanding

John Busch

Founder & CEO of ILIAD | Partner at Techstack

3w

Incredibly inspiring, Matt!

See more comments

To view or add a comment, sign in

Explore topics