Matt Wilsey’s story is one of determination & innovation. When his daughter was diagnosed with NGLY1 deficiency—an ultra-rare genetic disorder with only 130 known cases worldwide—Matt took an unconventional path: he built Grace Science, LLC, a company dedicated to curing the disease. Without a background in biology, Matt relied on relentless learning, assembling a top-tier team of scientists, and a startup mindset to tackle the problem. Matt recently joined a16z general partner, Jorge Conde, to discuss how he turned a personal tragedy into purpose, used a startup approach to drive scientific progress, and worked closely with the FDA to overcome regulatory challenges. Listen on Raising Health: https://lnkd.in/gTSBtTaM
You’re an inspiration, buddy!
congrats. It's been amazing following your progress. The world and rare disease community need more Matt Wilsey's!
Inspiring is an understatement. Thanks for shining a light on Grace Science 🙏🏽
Hey Matt Wilsey…you are an inspiration and old friend. Hope you’re doing great.
Love this
One of my heroes
Inspiring journey, Matt!! Outstanding
Incredibly inspiring, Matt!
CEO at Grace Science
3wI had so much fun doing this podcast with my dear friend Jorge Conde. Thank Raising Health team & a16z Bio + Health