Acromegaly Canada’s Post

Do you want to help acromegaly patients get diagnosed sooner? Read on for an opportunity to participate in a study led by St. Michael’s Unity Health Toronto. ⤵️ We know that earlier diagnosis usually improves outcomes and quality of life. Please take part in our international research study that uses computer technology to try to diagnose patients sooner by detecting the earliest features of acromegaly. We are looking for individuals who currently have or previously had acromegaly (including gigantism) or other types of pituitary adenomas/tumours to participate. Your participation in this study is critical to help develop the most accurate tools for diagnosis and greatly improve the quality of life of future patients. In this study, you will be asked to upload your photographs and complete a questionnaire, for use in a machine learning analysis. You can access the study using the link provided below.      If you have questions about taking part in this study, you can send an email to the research team at acromegaly-research@smh.ca or telephone at 001-416-864-5312. Thank you for considering participation in this project. For more information on the study or to participate, please click on the URL link below or enter it in your browser or scan the QR code: https://lnkd.in/gUsBYFFK #Acromegaly #Gigantism #Pituitary #RareDisease #AcromegalyResearch Unity Health Toronto

I am glad to announce the publication of our latest research article titled "Symptom profile, case and symptom clustering, clinical and demographic characteristics of a multicentre cohort of 1297 patients evaluated for Long-COVID," now available in BMC Medicine. You can access the article here: [https://lnkd.in/dN7pf7i8). This publication provides further evidence that Long-COVID is a heterogeneous disease, with manifestations varying by sex, phase of the pandemic, and the severity of acute disease. Our findings support the notion that multiple pathways may lead to different clinical manifestations, emphasizing the complexity of this condition. A special acknowledgment goes to the incredible collaboration of **124 clinical centers across Italy** that made this research possible. A heartfelt thank you to **Marco Floridia** for his exceptional coordination of this activity. Together, we continue to advance our understanding of Long-COVID and its impact on health. Let's keep the conversation going and work towards better outcomes for those affected! #LongCOVID #Research #BMCMedicine #MulticenterStudy #HealthcareCollaboration #MarcoFloridia

Research Article Children With Type I Interferonopathy: Commonalities and Diversities in a Large Patient Cohort 📖 https://lnkd.in/gRW6Dxxm #typeiinterferon #januskinaseinhibitor #autoinflammatorydiseases

In the latest article from our neurosciences blog series, Karina D’Angelo sheds light on innovative real-world data strategies, including social determinants of health (#SDOH), that are improving diversity, participation, access, and, ultimately, patient outcomes in clinical trials. Read more: https://lnkd.in/ehrJkbcb #Alzheimers #RWD #RWE #ParexelBiotech

In the latest article from our neurosciences blog series, Karina D’Angelo sheds light on innovative real-world data strategies, including social determinants of health (#SDOH), that are improving diversity, participation, access, and, ultimately, patient outcomes in clinical trials. Read more: https://lnkd.in/ehrJkbcb #Alzheimers #RWD #RWE #ParexelBiotech

"I aim to help improve patient-centered care for those with chronic conditions, including diabetes and cardiovascular diseases," says Stanford CDH Digital Health Scholar Jiyeong (Jasmine) Kim. She is an AI researcher and data scientist who advocates for patient empowerment and human-centered AI in medicine. "My work focuses on incorporating patients' perspectives into developing and evaluating AI tools that can support healthcare professionals to ultimately provide tailored patient care," she explains. We're excited to see her advancements in research and are glad to be part of her journey. #DigitalHealth #Research #StanfordMedicine

In the latest article from our neurosciences blog series, Karina D’Angelo sheds light on innovative real-world data strategies, including social determinants of health (#SDOH), that are improving diversity, participation, access, and, ultimately, patient outcomes in clinical trials. Read more: https://lnkd.in/eUViejVK #Alzheimers #RWD #RWE #ParexelBiotech

There are NEW Clinical practice guidelines for the care of girls and women with Turner syndrome for 2024! This report is intended to provide clinical recommendations for the care of patients with TS across the lifespan. It is an excellent resource for patients and healthcare providers to equip themselves with information! Within the 99-page document, find information about diagnosis and genetics, various aspects of health and well-being, and more! Find it here: https://lnkd.in/erSH5Zbu #turnersyndrome #geneticdisorder #patientcare

New research from the Global #Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN): ✅ Describing Patients with TBL1XR1-Related Disorder Using a #CaregiverSurvey ✅ Sharing a New Approach to Creating Longitudinal #NaturalHistoryStudies for #RareDiseases Listen and read more: https://lnkd.in/es4Cf6ix

In the latest article from our neurosciences blog series, Karina D’Angelo sheds light on innovative real-world data strategies, including social determinants of health (#SDOH), that are improving diversity, participation, access, and, ultimately, patient outcomes in clinical trials. Read more: #Alzheimers #RWD #RWE #ParexelBiotech