Auto Immune Blistering Disease Foundation’s Post

💧Today, we join the global community in raising awareness for Sjogren’s Syndrome, a chronic autoimmune disease that affects millions of people worldwide. Sjogren’s primarily targets the moisture-producing glands, leading to dry eyes and mouth, but it can also cause fatigue and affect other organs. Here are some key facts about Sjogren’s Syndrome: - It’s an autoimmune disease that primarily affects women. - Common symptoms include dry eyes, dry mouth, and fatigue. - Early diagnosis and treatment are crucial for managing symptoms and preventing complications. If you or a loved one is experiencing symptoms of Sjogren’s Syndrome, visit HB Urgent Care. We are here to provide the care and support you need. Walk-in anytime for fast and friendly service. https://lnkd.in/g9T_xyg Get your COVID Testing today. https://lnkd.in/gC7Kutr #WorldSjögrensDay #AutoimmuneAwareness #HBUCares #SjogrensSyndrome #SupportAndAwareness

Today, July 10th is Chronic Disease Day! Chronic Disease Day raises awareness about the ways in which we can build a healthier community and expand access to care for those in need. The AHDA wants raise awareness about all chronic diseases today, including those who live with chronic headache disorders. Let's look at chronic migraine as an example. Chronic migraine is so much more than "just a headache." Chronic migraine patients experience 15 or more headache days per month and affects around 3-5% of the U.S. population. This condition can be extremely debilitating. You can participate in raising awareness on this Chronic Disease Day by sharing who motivates you to be your strongest self and live your best life while living with your chronic headache disorder with the hashtag #IStayStrong.

🌟Thyroid Eye Disease Awareness Week November 18-24 🌟 This week, we are raising awareness about Thyroid Eye Disease (TED), a condition that affects many individuals living with thyroid disorders. TED often develops in people with an overactive thyroid (Graves' disease) or, less commonly, an underactive thyroid. While the exact cause is unknown, it's believed to be related to the immune system mistakenly attacking the tissues around the eyes. Learn how our Soleo Health specialists treat TED 👉https://hubs.la/Q02Yr6Ff0 #ThyroidEyeDisease #TEDAwareness #thyroidhealth #thyroidhealing #SimplifyingComplexCare #SpecialtyPharmacy

Today is Rare Disease Day! There are estimated to be 7,000 rare diseases affecting between 25 and 30 million Americans. That's 1 in 10! And yet, for many with a rare disease, diagnosis can take years, treatment is palliative, and a cure is unlikely. If you know someone with a rare disease, here are a few tips on how to be an ally: - Don't ask if they have tried XYZ. By the time they are diagnosed, many with rare diseases are experts on their own condition and may even know more than their doctors. - Don't tell them to stay positive. This is invalidating of their lived experience, and the grief they may feel around the loss of their health and the impact that has on their lives. - Do offer specific help. If you want to help, don't put the burden on them to figure out what you can do. Offer something you are capable of doing and let them accept or offer an alternative. - Do listen. Having a rare disease can be isolating which makes having someone to talk to that much more important. #rarediseaseday #disabilityawareness #disabilityrights #womenintech

It’s increasingly clear now that a regular update and in some cases a rewrite of guidelines need to be done. Newer tools, tech and specialities are available to help #healthcare innovate & improve how to treat #patients. Here’s one for clinicians.

Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating blood disorder which causes a range of life-limiting symptoms for those affected. We spoke to the Aplastic Anemia and MDS International Foundation (AAMDSIF) to highlight the importance of providing support for patients living with rare diseases Click the link to learn more about AAMDSIF and the strides they are making to improve life for people living with PNH: https://lnkd.in/gZUvmp-T

Crohn's and Colitis Awareness Week shines a light on these two chronic inflammatory bowel diseases (IBD) that affect millions of people worldwide. Let's break the stigma surrounding these conditions and support those living with Crohn's and colitis. Together, we can raise awareness and advocate for a future free from IBD! #CrohnsAndColitisAwarenessWeek #ibdawareness #breakthestigma #supportibdwarriors

Crohn's and Colitis Awareness Week shines a light on these two chronic inflammatory bowel diseases (IBD) that affect millions of people worldwide. Let's break the stigma surrounding these conditions and support those living with Crohn's and colitis. Together, we can raise awareness and advocate for a future free from IBD! #CrohnsAndColitisAwarenessWeek #ibdawareness #breakthestigma #supportibdwarriors

Crohn's and Colitis Awareness Week shines a light on these two chronic inflammatory bowel diseases (IBD) that affect millions of people worldwide. Let's break the stigma surrounding these conditions and support those living with Crohn's and colitis. Together, we can raise awareness and advocate for a future free from IBD! #CrohnsAndColitisAwarenessWeek #ibdawareness #breakthestigma #supportibdwarriors

Crohn's and Colitis Awareness Week shines a light on these two chronic inflammatory bowel diseases (IBD) that affect millions of people worldwide. Let's break the stigma surrounding these conditions and support those living with Crohn's and colitis. Together, we can raise awareness and advocate for a future free from IBD! #CrohnsAndColitisAwarenessWeek #ibdawareness #breakthestigma #supportibdwarriors