Alfasigma’s Post

As someone living with Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD), I’ve experienced the challenges firsthand. Crohn’s Disease and Ulcerative Colitis affects more than just the gut, it impacts the following: -Mental health: Higher rates of anxiety and depression. -Bones and joints: Pain, inflammation, and increased osteoporosis risk. -Skin, eyes, and teeth: Chronic inflammation and complications. -Finances and employment: High healthcare costs and missed work. -Quality of Life: Ability to engage in daily activities and enjoy life. In observance of Crohn’s & Colitis Awareness Week, I’m raising awareness and asking for your support to help underserved Crohn’s and Colitis patients through the SAW Foundation. 🌟 Join me by visiting https://lnkd.in/er9tMSGa to make a difference. Together, we can ensure no one faces IBD alone. #CrohnsAndColitisAwarenessWeek #IBDAdvocacy #SupportIBDPatients #CrohnsSurvivor

⭐Exploring the experiences of adults newly diagnosed with Inflammatory Bowel Disease in Aotearoa: Practical recommendations for improved care⭐ Living with Inflammatory Bowel Disease (IBD) presents both physical and emotional challenges that can significantly impact quality of life. A recent study by a University of Auckland student—also living with IBD—aimed to identify gaps in psychosocial support at diagnosis, which can worsen disease progression and increase emotional distress. Read more about the study's findings here: https://lnkd.in/g4uv_f-v

As we continue to honor Alpha-1 Awareness Month, it's important to recognize that alpha₁-antitrypsin (AAT) deficiency a genetic form of COPD, affects not only patients but also their families and caregivers. Like many genetic and rare diseases, alpha-1 impacts entire households, from daily care to emotional support. Hear Cristina’s story, wife of alpha-1 patient as she shares her experiences, highlighting the strength and resilience of families facing this disease together. #WhatWeDoMatters #Alpha1AwarenessMonth

📅 World IBD Day is just 5 days away! Inflammatory Bowel Disease (IBD), the common term for Crohn's disease and ulcerative colitis, affects 1 in 100 Americans. Chances are, someone you know is living with one of these challenging diseases. At Boomerang Medical, we’re dedicating the next few days to raising awareness about the profound impact of IBD. Many are unaware of how deeply it affects daily life and overall well-being. Join us in shedding light on these challenges and advocating for better support and treatments. Together, we can make a difference. #WorldIBDDay #IBDAwareness #GutHealth #CrohnsAndColitis #IBD #IBDVisible #InvisibleIllness

June is National Scleroderma Awareness Month, a time to educate and raise awareness about scleroderma and its effect on individuals and families. Scleroderma is a chronic autoimmune disease that causes hardening and thickening of the skin and internal organs due to excess collagen production. Scleroderma might also affect the digestive tract and blood vessels. While there is currently no cure for scleroderma, treatment can relieve symptoms and help improve quality of life. Today, we recognize the strength and resilience of those living with scleroderma, as well as all of the dedicated caregivers who provide support. To learn more about scleroderma and how you can help make an impact, please visit https://lnkd.in/edRgrHj8 #Aveanna #TealTalk #NationalSclerodermaAwarenessMonth

It's #WorldAnkylosingSpondylitisDay! Today, we raise awareness about this chronic inflammatory disease affecting the spine. Ankylosing Spondylitis (AS) can cause: Pain and stiffness in the lower back and buttocks Difficulty moving or bending the spine Fatigue and joint pain in other areas Early diagnosis and treatment are crucial for managing AS effectively. Let's work together to: Support those living with AS. Advocate for more research to find a cure. Break down the stigma surrounding chronic illness. #ChronicIllnessAwareness #YouAreNotAlone #keepmoving #clinicaltrials #clinicalresearch #spinehealth

It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.

It’s increasingly clear now that a regular update and in some cases a rewrite of guidelines need to be done. Newer tools, tech and specialities are available to help #healthcare innovate & improve how to treat #patients. Here’s one for clinicians.

"Kidney Connect Series: Your Daily Guide to Kidney Health!" "Day 10 (Part 3): How should I care for myself if I have been diagnosed with chronic kidney disease (CKD) ?" Welcome to "Day 10 (Part 3)" of our series! #CKD #ESRD #Dialysis #RenalFailure #KidneyTransplant

🌟 Raising Awareness for Crohn's and Colitis Awareness Week 🌟 December 1-7 is Crohn's and Colitis Awareness Week, a time to spotlight the challenges of inflammatory bowel diseases (IBD) like Crohn’s disease and ulcerative colitis. These chronic conditions affect millions worldwide, often disrupting daily life with symptoms such as abdominal pain, fatigue, diarrhea, and unintended weight loss. As we mark this important week, we reaffirm our commitment to advancing care for IBD patients. Click-through to know more how we empower healthcare providers and support those living with Crohn’s and colitis through innovation and compassion 👉🏾👉🏾👉🏾 #CrohnsAndColitisAwarenessWeek #IBD #PerianalCrohnsDisease #PTSInnovation #DigestiveHealth