Brain Foundation’s Post

A new research study is using AI to improve life after stroke for stroke survivors! It's #BrainAwarenessWeek 🧠 and as part of the Stroke Alliance For Europe (SAFE) we're helping raise awareness of the importance of research in stroke. Today we are highlighting a new project called TRUSTroke TRUSTroke researchers are developing an advanced technology to help healthcare professionals, patients, and caregivers manage both short- and long-term effects of an ischemic stroke. Research is vital to enable more people than ever to survive stroke with better outcomes. Your donations have allowed us to give nearly half a million pounds to research to tackle these conditions. 👉 Read more about some of the stroke research we fund on our website at https://lnkd.in/eSdaRbAx

THE LONGEST DAY... Today, June 21st is the summer solstice and the longest day, and people from across the world will fight the darkness of Alzheimer's through a fundraising activity of their choice. Alzheimer's disease is a type of dementia that happens when an accumulation of proteins in the brain permanently damages brain tissues.This kind of brain damage eventually leads to symptoms like forgetfulness, loss of speech and writing abilities, and an inability to take care of yourself. As of 2023, over 6.7 million people over 65 years have received an Alzheimer's diagnosis, and an estimated 14 millionTrusted Source people may receive their diagnosis by 2060. Click the link to find out more about how you can help to raise funds and awareness for Alzheimer's... https://lnkd.in/eipTasQR

Hello friends, I’m reaching out today for a cause close to my heart. As the former Chair of Virginia's Alzheimer’s Disease and Related Disorders Commission, I spent nearly a decade advocating for those living with dementia and their caregivers. We achieved a lot, including the 2020-2024 Dementia State Plan, but there is still so much work ahead. With my 8-year term recently ending, I’ve rejoined the board of Richmond’s Alzheimer’s Association, and I’m asking for your support in this year’s walk—whether financially or by joining my team. Alzheimer’s isn’t just a statistic; it was my family’s reality. My mother began showing signs in her 40s and went undiagnosed for years. By her early 50s, she could no longer cook, drive, or remember our names. Alzheimer’s stole her independence, her memories, and ultimately, her life at just 57. It’s a brutal disease that leaves no survivors, taking loved ones piece by piece. Today, over 6 million Americans, including 150,000 Virginians, are living with Alzheimer’s. Every 65 seconds, someone in the U.S. develops the disease. Unlike cancer or heart disease, there is no cure. This year, I’ve launched Team White Flower, representing the hope for the first survivor of Alzheimer’s—a symbol of a future free from this devastating disease. I invite you to support our mission—join us, donate, or share our story. Together, we can raise awareness, fund critical research, and support families in need. Every contribution brings us closer to ending Alzheimer’s. Let’s walk for those we’ve lost, for those still fighting, and for a future without Alzheimer’s. https://lnkd.in/e--H4ZJt

Medical research is so important for everyone.

IBD is a lifelong disease, and there is no cure yet. CCA looks to the future by partnering with researchers to find a cure, while also seeking to provide practical, direct support to those currently living with IBD to manage the disease. We look forward to the day when there will be a cure for Crohn’s disease and ulcerative colitis. The research we fund looks to discover better treatments for those living with the disease and support earlier diagnosis, as well as conducting critical social and econometric research that helps to better advocate for improved care. Donate today and you are helping CCA to fund fellowships and research programs to help those living with IBD now and in the future. Pictured: Awareness Month Champion, Indiana.

I'm continuing my fight for a world without Alzheimer's. As part of my commitment, I serve on the 2024 Silicon Valley Walk to End Alzheimer's Executive Leadership Team. https://lnkd.in/gVtSPWJv Here are some facts about Alzheimer's: (1) Nearly 7 million Americans are living with Alzheimer's. (2) One in three seniors dies with Alzheimer's or another dementia. (3) Alzheimer's kills more than breast cancer and prostate cancer combined. (4) More than 11 million Americans provide unpaid care for people with Alzheimer's or other dementias. (5) In 2024, Alzheimer's and other dementias will cost the United States $360 billion. This number is projected to rise to nearly $1 trillion in 2050. If you are able, please help me raise money to help fight Alzheimer's and other dementia. Litherland, Kennedy & Associates will match any donations I receive and if you live in the Bay Area, you could also win lunch with me if you donate $100 or more.

August 17th is International SLC6A1 Awareness day. A day for sharing knowledge, supporting research and raising funds! This year donations can go even further by sponsoring our Dragon Boat Race. We have a gift match offer that will match the funds raised! Donate or sponsor today, help cure children of this debilitating rare disease https://lnkd.in/eVDSdJ_Z What is #SLC6A1 ? It is a rare developmental and epileptic encephalopathy, or neurodeveloomental disorder. The gene slc6a1 has a mutation causing a loss of function. This means it cannot perform its job which is to code the GAT 1 protein, and transport GABA between neurons. GABA is a very important neurotransmitter, which means it send messages through brain cells. This faulty 'coding' causes a wide range if disabilities including #epilepsy #LearningDisabilities #neurodiversity #speechdelay #movementdisorder #challengingbehaviour #asd #adhd and reduced immunity. Children and adults can be non verbal, tube fed, and require 24 care, or they could be verbal, and able, but with some functional challenges. The spectrum is huge and the future unknown as the faulty gene was only discovered in 2015. Science being funded: Research cells and models available now Natural history study Biorepository Neuronal behaviour Absent seizures and slc6a1 Drug repurposing mRNA precision medicine AAV delivery Zebra fish models Global collaboration We might be rare, but we are MIGHTY, and your funds go a long way to support real work. Work that supports other rare DEEs and NDDs too.

Such an inspiring project and such a powerful video! Medical research needs representation from people from a wide variety of backgrounds to help with funding prioritization, outcome evaluation, and key decision-making. There is a real imbalance of race, ethnicity, age and socio-economic status in research advocates and participants, and it can only change with your help. The poetry in this video explains why perfectly. I have the pleasure of being on the Scientific Advisory Council at Breakthrough T1D (JDRF) and their Insight and Experience Panel plays a key role in shaping the development of support services and innovative research projects. But that too needs more diversity. If you live with Type 1 Diabetes (or care for someone who does) please consider getting involved - https://lnkd.in/eRAQiV-m.

We are just a few short months away from our #Walk2EndAlz and I am thrilled to share that the Alzheimer’s Association Walk to End Alzheimer’s® – Phoenix, AZ is just around the corner on November 2, 2024. Are you as excited as we are? Join our GE Healthcare Rocky Mountain Phoenix Team and help us raise funds and Walk to End Alzheimer’s by clicking the link below: GE Healthcare Rocky Mtn Phx Team Page https://lnkd.in/g-giPKGn On November 2, GE Healthcare Phoenix will be participating in the Walk to End Alzheimer's, a vital event that raises funds and awareness to combat this devastating disease. Alzheimer’s disease affects more than 6 million Americans, with the numbers continuing to rise. It is the most common form of dementia, and its impact extends beyond the individual to families, caregivers, and entire communities. In Phoenix alone, many of our neighbors, friends, and colleagues are affected by Alzheimer’s, and we have the chance to make a difference in their lives. Here are some crucial facts about Alzheimer's disease: ·        Alzheimer’s is the 6th leading cause of death in the U.S. ·        Every 65 seconds, someone in the U.S. develops Alzheimer’s. ·        There are currently no treatments to slow or stop the progression of the disease. By participating in the Walk to End Alzheimer's, we can contribute to critical research efforts, support services for families, and raise awareness to drive change. Our involvement can help accelerate the search for a cure and provide hope to those affected. How You Can Get Involved: 1.      Sign Up to Walk: Join us on November 2 at [Event Location] for a meaningful walk that brings our community together in the fight against Alzheimer’s. Register here: [Registration Link] 2.      Make a Donation: Every contribution, big or small, helps fund research and support services. You can donate directly through our team page: [Donation Link] 3.      Spread the Word: Share this event with friends and family to expand our support network and increase our impact.

Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the next era of breakthroughs that could end scleroderma. Will you help us accelerate the pace of research so that we can one day end this disease? The best part is that when you make a gift to our Research Challenge, you’ll unlock a matching donation dollar-for-dollar*, thanks to the generosity of two families who, like you, are committed to finding a cure. Double your impact today: https://bit.ly/3RWrUOo P. S. Special thanks to our Research Challenge match donors—Board Members Luke Evnin (Chairman) and Deann Wright, and the Schimberg Family Foundation—for doubling the impact of your gift! *Up to $75,000 through July 31, 2024. #srfcure #sayscleroderma #sclerodermaresearch #scleroderma