Catalyst Foundation’s Post

This month, we’d like to reflect on the significance of AANHPI Heritage Month. The rich tapestry of cultures, traditions, and resilience that define the AANHPI experience in the United States is truly remarkable. Let's celebrate the diversity within the AANHPI community and recognize the unique histories, values, and challenges that each ethnicity brings. Despite the obstacles faced, progress is being made in addressing the healthcare needs of AANHPI populations. From data disaggregation to cultural competency training, efforts are underway to improve healthcare access and understanding for AANHPI individuals. At ConcertAI, Initiatives like ERACE are leading the way in uncovering and addressing disparities in cancer care for underserved populations, including AANHPI communities. As we honor AANHPI Heritage Month, let's reaffirm our commitment to achieving health equity for all. Let's celebrate the diverse tapestry of AANHPI experiences and work towards a future where healthcare is inclusive and supportive for all. Learn more about ERACE: https://lnkd.in/e6Tn8XTg  #AANHPIHeritageMonth #HealthEquity #ERACE

World FSHD Day: Reflecting on Progress and Hope Facioscapulohumeral muscular dystrophy (FSHD) may be a mouthful, but for our family living with it, it is a daily reality. Today, on World FSHD Day, we join the global FSHD community in raising awareness and celebrating progress. Here is what I have observed over the past 20+ years since my daughter’s clinical diagnosis: -         FSHD Society Expansion: The FSHD Society has grown, championing research, advocacy, and support for patients and caregivers. -         Clinical Trials: From less than 25 to nearly 75, clinical trials for FSHD have multiplied, offering hope for effective treatments. -         Connecting with Others: I have met caregivers, patients, and colleagues impacted by FSHD. Their dedication fuels our collective fight. -         Physicians in the Community: Some of my colleagues, physicians themselves, live with FSHD, emphasizing the urgency for solutions. -         Sponsors’ Commitment: Executives and employees of FSHD sponsors demonstrate unwavering commitment to patients. In 2014, I predicted a disease-modifying treatment for FSHD by 2025. While my timing may have been optimistic, late-stage candidates in the pipeline give us hope. Let us continue working together for a brighter FSHD future! #FSHD #FSHDDay #TheFSHDSociety #SyneosHealth #FacioscapulohumeralMuscularDystrophy

What it’s like to be a top-performing leader of a Managed Care Provider Group We recently had the privilege to speak with Amanda Tufano, MHA, FACHE, FACMPE, recent CEO of Genevive, who shares invaluable insight, strategy, and wisdom based off her amazing success. From the cornerstone of risk contracting to the future of complex care, we discuss the key factors that were the major unlocks during her time at Genevive. Some highlights: 🤝 How to create resiliency in contracting for long-term organizational impact. ⚙️ How prioritizing data was key to successful growth at Genevive. 🧑🤝🧑 Advice on organizing data teams to amplify clinical insights. 📈 How contract diversification impacts speed of market growth. 🔮 What Amanda thinks is on the horizon for complex care (& VBC in general). So many incredible thoughts here - check out the link below to watch this conversation! “Forging ahead causes us to be nimble… this nimbleness is key: more partnerships, fewer closed doors, better access to technology and ideas, and leaders who are adaptable and unflappable.” - Amanda Tufano, MHA, FACHE, FACMPE, when asked what’s needed for complex care in the US. https://lnkd.in/gSESB_Z9 #ValueBasedCare #HealthcareLeadership #ComplexCare #HomeBasedPrimaryCare #RiskAdjustment #Geriatrics

"Multimedia can be a helpful tool to solidify informed consent practices from beginning to end. Tavana’s research teams create videos that outline a research project’s objectives and requirements and emphasize subjects’ right to withdraw at any time. All materials are available in every Pacific Island language, making them more accessible and inclusive." Kudos to Justina Tavana of Brigham Young University for leveraging video and translations in #informedconsent, improving #patientcomprehension, and involving people from Samoan and Pacific Islander communities in their #Alzheimer's research. #Diversity #ClinicalResearch #ClinicalTrials #eConsent https://lnkd.in/eqjAk86n

Welcome to PHAB Lab! The Public health and Applied Behaviour change (PHAB) Lab is a multidisciplinary team based at the University of Hertfordshire dedicated to tackling real-world public health issues through innovative behaviour change research. We collaborate closely with communities and stakeholders to design, implement, and evaluate interventions that improve health outcomes and reduce inequalities, always prioritising social impact and transparent, evidence-based practices. Researchers at PHAB lab are experts in the application of behaviour change science to real-world public health challenges. Our expertise spans a diverse range of public health issues including but not limited to obesity, diet, and physical activity; infant feeding and breastfeeding; condom use and sexual health; smoking cessation; and gender-based violence. We have spent our careers working in and with public health departments across the UK including with colleagues at the Office for Health Improvement and Disparities and the public health agencies of the devolved nations. Meet the team: Our Team is led by Katie Newby, Katherine Brown and Neil Howlett. The team is made up of a range of researchers including; Nigel Lloyd, Laura Lamming, Imogen Freethy, Charis Bontoft, Lauren Schumacher, Kayleigh Kwah, Dr Stefanie Williams and Isobel Simmons. We also support a range of PhD students including Susan Gibson and Tharumini Weerakoon. Follow our PHAB Lab page for more information and news within the public health and behaviour change space!

What a year 2024 has been for us at the Behavioral Science in Health - BSiH lab at Cyprus University of Technology ! Getting closer to the end of the year we are reflecting on some milestones which you can read on our website blog! #research #healthpsychology #behavioralmedicine #researchteam #bsihlab

What a year 2024 has been for us at the Behavioral Science in Health - BSiH lab at Cyprus University of Technology ! Getting closer to the end of the year we are reflecting on some milestones which you can read on our website blog! #research #healthpsychology #behavioralmedicine #researchteam #bsihlab

As we celebrate National Hispanic Heritage Month, it’s time to shine a light on the underrepresentation of Hispanic/Latino individuals in clinical research. Despite making up 19% of the U.S. population, only 11% of clinical trial participants come from Hispanic communities. In our latest blog post, we explore the critical need for greater representation in clinical research and how PEP!IN is working to make this change happen. Read the full blog here: https://wix.to/RckMTCd Let’s work together to create more equitable clinical trials. Connect with us today to learn more about our approach! #HispanicHeritageMonth #HealthEquity #LatinoHealth #DiversityInResearch #PEPIN #EMBRACE #ClinicalResearch #InclusionMatters #Pharma #CROs #HealthcareInnovation

Greetings from sunny Spain! 👋 Yesterday, my co-founder and the chief doctor of ‎Sequoia: Men’s Sexual Wellness, Olya, and I arrived in Madrid. 🇪🇸 You might be wondering, what are we doing here? We are continuing our series of trips to conferences. This time, we are participating in the 5th International Consultation on Sexual Medicine(ICSM), organized by the International Society for Sexual Medicine (ISSM). Notably, this time we are here not as attendees but as partners. I should remind you that I am a member of this association and managed to arrange for us to set up our booth. Our goal is to introduce Sequoia to as many people as possible. Usually, when we attend as listeners, we can communicate with 20–30 people per day. Based on our experience in Munich, we realized that with a booth, this number can be increased 4–5 times. We brought with us two beautiful and familiar banners. Over the next two days, we will be introducing event participants to Sequoia, distributing stickers and sticker packs, and collecting contacts of doctors for future collaboration. I will update you on the results in a couple of days. #SexualHealth #SequoiaPower #SexualMedicine #SequoiaHealth #ICSM2024 #ICSM24 #ISSM #MadridConference #HealthInnovation

🚨 URGENT: Protect Vision Research! 🚨 The House E&C Committee's NIH Reform Report proposes consolidating the National Eye Institute (NEI) into a broader “National Institute on Neuroscience and Brain Research,” now included in the House LHHS Appropriations Subcommittee's FY25 bill. NAEVR is actively opposing this, but we need your help NOW to keep NEI focused on vision research and care. Contact Congress today: https://t.co/cEVPx2qxYs Take action today to support NEI and protect the future of vision research! #VisionResearch #Advocacy #SaveNEI