Deadline extended to 17th March. Please repost to your networks. Are you a practitioner or researcher who works with people with Down Syndrome, Fragile X Syndrome or Williams Syndrome? Are you a member of the UK Down Syndrome, Fragile X Syndrome or Williams Syndrome community (parent/ carer and young people and adults with Down Syndrome, Fragile X Syndrome or Williams Syndrome are eligible)? Share your research priorities. We will report your research priorities to researchers, people who fund research, and people who make decisions about public services. 10-min surveys Down Syndrome: https://t.ly/EjmVA Fragile X Syndrome: https://t.ly/eUKhS Williams Syndrome: https://t.ly/y5rlC Practitioners/researchers: https://t.ly/m57dy
Are you a member of the UK genetic syndrome community? We would like to invite you to take part in an online survey about your research priorities. Parent/carers of children with Down Syndrome/Fragile X Syndrome/Williams Syndrome from birth to adults are eligible to take part. If your child/young person/adult with Down Syndrome/Fragile X Syndrome/Williams Syndrome is aged 10 years to adult, they are also eligible to take part. Please note that this survey is for participants currently living in the UK. We will report your research priorities to researchers, people who fund research, and people who make decisions about public services. Surveys 👇 Down Syndrome: https://t.ly/EjmVA Fragile X Syndrome: https://t.ly/eUKhS Williams Syndrome: https://t.ly/y5rlC Practitioners/researchers: https://t.ly/m57dy This research is in collaboration with Gaia Scerif, Liz Pellicano, Jo Van Herwegen and Laura Cristescu and is funded by the Baily Thomas Charitable Fund.