Epilepsy Action’s Post

As the Midwest days grow shorter and the temperatures drop, we tend to seek comfort in our homes by cuddling up on the couch with a soft blanket, sipping on a warm drink, or maybe even lighting our go-to candle. 🕯️ This embrace of coziness can help create a sense of safety and relaxation, making our homes a safe place to go (or in some cases, stay) during the fall and winter months. Believe it or not, our desire for calm spaces starts at a young age, tying into the importance of accessibility and inclusivity at the playground. Cozy places on a playground do just the same, providing children with a sense of comfort, security, and relaxation. The spaces offer a break from more active and energetic play areas, allowing children to unwind, reflect, or engage in quiet activities. Not to mention, these spaces are imperative to include for children on the autism spectrum or with sensory processing disorders. Keep that cozy feeling in mind when planning for your 2025 playground! 🍂

Today is #worlddown. Each year, approximately 6,000 babies (1 in 700) are born with #downsyndrome in the United States. It continues to be the most common chromosomal disorder (#trisomy21). It can effect their heart, lungs, have weak immune systems, and delays in learning or motor skills in some people. Children with Down Syndrome automatically qualify for #EarlyIntervention services, including occupational, physical, and speech therapies. They also qualify for #individualeducationplans known as #IEP at school. For more information, go to www.ndss.org. #disabilityawareness #disabilitysupport #disabilityrights #disabilityadvocate

As today, June 3rd, is the Global Day of Parents, we want to honour parents of children with epilepsy and parents with epilepsy. You are all amazing! #globaldayofparents #dayofparents #parents #parent #epilepsy #seizures #seizure #seizuredisorder #epilepsyawareness #epilepsyeducation #epilepsywarrior #epilepsylife #epilepsystrong #epilepsypositivity #epilepsyadvocate #endepilepsy #acceptepilepsy #epilepsycommunity #bcepilepsysociety #iamavoiceforepilepsyawareness Image description for folks who may be blind or visually impaired and have the software to read text: The graphic features the text “Happy Global Day of Parents from the BC Epilepsy Society” with a collage of two photos of parents and their children above it and a collage of three photos of parents and children below it.

it's still #CerebralPalsy awareness month so let's share some FACTS! ✨ cerebral palsy looks & feels different for everyone who has it. why??? because CP is a brain injury that happens before, during, or shortly after birth. ✨ cerebral palsy is often said to be a childhood disability but there's over 17 million people with CP worldwide (and we're mostly adults)!! 🫶 ✨ people with cerebral palsy can expend up to FIVE times the amount of energy as non disabled people. 🫠 ✨ people with cerebral palsy can live fulfilled lives and be happy AND pursue their dreams — it just might look different than you'd expect (and we'll probably surprise you with just how far we'll go!)🤩 ✨ oh and our new website is LIVE so go check it out & let us know what you think!! it's not perfect but nothing really ever is... cerebralpalsystrong.org we are #CPstrong 💚 #CerebralPalsyAwarenessDay #CerebralPalsyAwarenessMonth #GoGreen4CP #CP #disability #community

Family Voices is a partner in the National Coordinating Center on Transition, a cooperative agreement between The Association of Maternal & Child Health Programs (AMCHP) and the Maternal and Child Health Bureau. The center is focused on the transition to adulthood for young people with autism and epilepsy. This project builds on our work with the Center for Transition to Adult Health Care for Youth with Disabilities and our work on health care transition. https://lnkd.in/eMNFaUXC https://lnkd.in/gzYCbbz4

Spending too much time alone can seriously affect the mind and body of older adults. It’s not just about being there physically, it’s about showing love, preventing isolation, and improving well-being. Here’s how we can stay connected and make a difference: • Schedule regular check-ins to maintain a sense of connection. • Plan visits or outings to break up their routine and bring joy. • Encourage hobbies or introduce new activities for engagement. • Help them explore community groups or virtual classes for social interaction. At 24/7 Care At Home, we prioritize the mental and physical health of older adults by offering solutions to help them stay connected and thrive. How do you stay connected with older loved ones? Let’s share ways to make their lives fuller and brighter!

Hyperesthesia, or heightened sensory sensitivity, can significantly impact individuals with autism, and understanding hyperesthesia can help in creating more effective and supportive environments. Learn more about this important aspect of sensory processing and its implications in our blog: https://lnkd.in/evKbPBDM.

💜 Highlighting epilepsy globally is what Purple Day stands for. But how many of us know about the often-overlooked link between autism and epilepsy? Explore this intricate relationship in our blog: https://bit.ly/3PAL3UT #PurpleDay #EpilepsyAwareness #AutismAwareness 💜

National Inclusion Week - Epilepsy Something for everyone to share at work and with friends. Do you know what to do if someone’s having a seizure. I’m epileptic and grateful of family and friends always, but tonight at swimming I witnessed a teenage lad have 2 seizures and if you’ve not seen one it’s scary, but I helped. Here’s tips from the epilepsy society what to do in the picture and my tips too. My tips 1. Tell people at work don’t be embarrassed 2. Keep your details of meds on your phone and with HR 3. Update your medical ID on your phone To Help 1. Make sure they’re breathing on their side 2. Note if 1 or more seizures 3. How long it’s lasting for 4. Keep talking to them ready for when they come round 5. Reassure them it’s ok

When I was starting Cubby Beds, I remember sitting in meetings with early advisors and hearing questions like: "How big is the autism market?" "Could this product serve neurotypical kids too?" "Why not make a bed for all children?" They weren’t bad questions. But they missed the point. Nobody was asking, “How can we make life easier for families navigating the impossible?” Nobody was asking, “What happens to the parents of a child with special needs when sleep deprivation becomes their normal?” Nobody was asking, “How can we empower families, not just sell to them?” I realized early on that answering the unasked questions would define our company’s success. It meant focusing on a niche that others called “too small.” It meant investing in reimbursement tools instead of chasing trendy features. It meant obsessing over the human experience behind the data. Today, I look back and think about how different things might’ve been if we chased the easy questions. Instead, we chose to lean into the hard ones. The ones that matter. When you’re building something new, ask yourself, “What are the questions nobody else is asking?” Sometimes, those are the only ones worth answering.