International Gaucher Alliance’s Post

Meet one of our four new Board members, Christine White. Christine lives in Canada and is the Executive Director of the National Gaucher Foundation of Canada. Christine is the mother of three adults. Her two daughters were diagnosed with type 1 Gaucher Disease at a very young age and her son carries the gene. Shortly after her girls diagnosis, Christine met other Gaucher patients and together they united to lobby the Canadian government for access to treatment. The group were successful in gaining access as a result of an intense lobbying and media campaign and shortly thereafter formed the National Gaucher Foundation of Canada. Christine remembers the intense fear of being a young mother and knowing there is a medicine that can help but is inaccessible. Knowing that there are so many families in the world that do not have access to the treatment inspired Christine to join the IGA board and is fully committed to the IGA’s vision “of a world where all Gaucher patients have access to the treatment and care they need and there is the possibility of a cure”.

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Oxana Iliach

Senior Director, Regulatory Strategy at Certara and Member of Regulatory Science Committee at IRDiRC

3w

Congratulation Christine, your contribution will be extremely valuable.

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Congratulations Christiane!

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