Juvenile Arthritis Research’s Post

You're never too young to raise awareness of Juvenile Idiopathic Arthritis (JIA) and you can be any age to have arthritis. One of the many misconceptions that those with JIA face is the incorrect assumption that arthritis only affects the elderly. Bonnie is just 17 months old and she has arthritis. Children like Bonnie deserve a future free from arthritis. That is why we exist. Our vision is a world where one day no child will have to suffer from arthritis and that is why research into JIA is one of our core strands of work. Until then we aim to improve earlier diagnosis through awareness and provide the support that families need when living with JIA. Thank you Bonnie for helping to raise awareness. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology #WordDay2024

We loved seeing this fantastic compilation of photos from Iris raising awareness that young people can get arthritis too with one of our "I'm not too young for arthritis posters". Awareness of Juvenile Idiopathic Arthritis (JIA) is low. Our recent research showed that only 19% of the UK population knew that children under the age of 5 could get arthritis and only 40% knew that children under the age of 16 could get arthritis. We are working hard to improve earlier diagnosis through improved awareness with our #ThinkJIA campaign amongst frontline health professionals, schools and communities. For too long the word "arthritis" has been associated with the elderly and this misconception that it only affects older people has led to delays in diagnosis, misdiagnosis, treatment not starting soon enough, stigma and lack of understanding for those affected by JIA. It is thanks to young people like Iris and the amazing children and young people who helped to raise awareness with our posters for WORD day, that will amplify our impact by raising awareness in your own social circles and communities too. You can find out more about raising awareness on our website at https://lnkd.in/eFUraKip and on our WORD day hub at www.jarproject.org/word Sharing any of our social posts and videos can also help raise awareness. Thank you to everyone who already does this. It is making a difference to the lives of those with JIA! #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology

The prevalence of eczema in the United States is significant, with more than 31 million Americans impacted by this condition. It is especially concerning to hear that newborn babies can experience eczema within the first weeks and months after birth. Understanding the potential symptoms, such as extremely dry, itchy skin that can lead to blisters and skin infections, is essential for early detection and treatment. It is helpful to know that there are many potential causes of eczema treatment. Working closely with healthcare providers and dermatologists can help patients identify the best treatment options for their individual needs and manage their eczema symptoms. By increasing awareness and understanding of eczema, we can help individuals affected by this condition receive the support and treatment they need to manage their symptoms and improve their quality of life. #NationalEczemaWeek #acommunityforthosewithskinconditions #volunteer #causes #donate #change #activism #nonprofit #dogood #charity #fundraising #philanthropy #socialgood #madeamasterpiece #+perspective #skinconditions #communityforskinconditions #yourenotalone #yourskinisacanvas #extrodinary #diseases

"The Little Box of Hope you sent has really lifted her spirits so a huge thank you for making our little munchkin smile." Receiving a diagnosis of Juvenile Idiopathic Arthritis (JIA) can bring with it a rollercoaster of emotions for the whole family. Children can find it a scary and worrying time not knowing what is wrong and feeling isolated and alone. Parents / carers can fear what the future may hold for their child. Our Little Box of Hope support packs that are sent out by our volunteers help those diagnosed with JIA know that someone cares and that they are not alone. Packed with information, resources and a few extra items to make life with JIA a little easier, they have been described as a lifeline by those receiving them. Here's Ellie with her Little Box of Hope pack. Each of our packs for under 10s contain a handwritten note from Abbie. Abbie has JIA herself and was the young person who came up with the idea of A Little Box of Hope for other children to know they are not alone. Many thanks to Ellie's family for sending in this photo. It is thanks to our fundraisers and donors that we are able to send these packs to children when they most need it. If you'd like to sponsor a Little Box of Hope pack to enable us to support children and families when they are first diagnosed with JIA, you can find out more at https://lnkd.in/eUfb_CwT #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology 

August marks Psoriasis Awareness Month, an imperative time dedicated to increasing awareness and understanding of this chronic autoimmune condition that affects millions of people worldwide. We aim to educate and empower individuals affected by psoriasis by providing valuable insights into treatment options, causes, triggers, and management strategies. Psoriasis is a chronic autoimmune condition that speeds up the growth cycle of skin cells, resulting in the formation of red, scaly patches on the skin. These patches can be itchy, painful, and often have a significant impact on individuals' self-esteem and quality of life. Psoriasis can manifest in various forms, including plaque psoriasis, guttate psoriasis, inverse psoriasis, pustular psoriasis, and erythrodermic psoriasis, with varying levels of severity and symptoms. We have coping tools to help you! #acommunityforthosewithskinconditions #volunteer #causes #donate #change #activism #nonprofit #dogood #charity #fundraising #philanthropy #socialgood #madeamasterpiece #+perspective #skinconditions #communityforskinconditions #yourenotalone #yourskinisacanvas #extrodinary #diseases

What one piece of advice would you give someone newly diagnosed with Juvenile Idiopathic Arthritis (JIA)? With around 20 children a week in the UK being diagnosed with this condition, we are passionate about ensuring that they have access to the support they need, when they most need it. That's why we provide our free Little Box of Hope support packs to families, offer 1:1 support, membership of our private peer-to-peer support network, and our quarterly parent zoom meetings. All of this helps families receive the information and resources they need as well as knowing they are not alone. We'd love to hear what advice you would give to someone who has just been diagnosed. Let us know in the comments. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology

*Urgent Help Needed: Save a 2-Year-Old's Life!* I'm reaching out to my LinkedIn community with a heart-wrenching plea for help. A 2-year-old child is suffering from Spinal Muscular Atrophy Type-2 (SMA2), a rare genetic disorder. The only life-saving treatment is an injection called ONASEMNOGENE ABEPARVOBEC (XOLGENSMA), but it comes with a staggering price tag of ₹9.5 crores and is only available in the US. Time is of the essence! We need your support to raise funds for this life-saving treatment. Every contribution, big or small, counts. Let's come together to make a difference in this child's life. *Please donate generously:* *Share this post with your network:* Let's spread the word and help this child receive the treatment they deserve. Together, we can make a difference! *#SMA2 #XOLGENSMA #SaveALife #DonationAppeal #RareDisease #MedicalHelp #CommunitySupport*

"Lettie's Little Box of Hope arrived today. Thank you so so much. It is wonderful." A big thank you to Lettie's family for sending us fabulous photos of Lettie receiving one of our Little Box of Hope packs. It means a lot to our volunteers to know just how helpful these packs are and how appreciated and needed they are. When Juvenile Arthritis Research first began 6 years ago, there was very little support available to families facing a diagnosis of Juvenile Idiopathic Arthritis (JIA). We set about to change that. With the help of a young volunteer who came up with the concept of A Little Box of Hope and the support of our volunteers and healthcare professionals, we created a pack that contains all the information you need at the start of your JIA journey and reassurance to know that you aren't alone. When someone requests a Little Box of Hope pack from us, it unlocks all our support services so they'll have access to our peer-to-peer network, our ParentZoom meetings, face-to-face events and any 1:1 support they or their school need. It's all made possible by our fantastic volunteers and those who donate and fundraise to support our work. Our Little Box of Hope packs are available to those with a diagnosis of JIA in the UK and can be requested at www.jarproject.org/hope We love seeing these wonderful photos of your children receiving their packs - please do keep sending them in. If you've sent your photo in but haven't seen it yet on social media, please keep an eye out over the coming weeks. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology

What a fantastic smile on your face Georgina! We love seeing photos of children receiving their Little Box of Hope support packs from Juvenile Arthritis Research like this fabulous photo of Georgina. These boxes are put together by our volunteers and are packed with lots of helpful information and resources for children and families affected by Juvenile Idiopathic Arthritis (JIA) in the UK. We also have a plethora of resources available on our website too, but we know that families find that receiving a physical pack of information is particularly helpful to them and their child. Many thanks for sharing this photo with us. Find out more about the family support we provide at www.jarproject.org/hope In addition to the information available on our website, our volunteers can also provide 1:1 support where needed for families and schools, in addition to our regular Parent Zoom sessions. Keep an eye on your emails and in our peer-to-peer Facebook group to hear details of when each Parent Zoom session will be. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology #ALBOH #ALittleBoxOfHope

"Thank you so much for the Little Box of Hope, Lyla was so chuffed to receive it this morning and loves the goodies inside." When a child is diagnosed with Juvenile Idiopathic Arthritis (JIA), it can be a very worrying and overwhelming time for a family. There is a lot to come to terms with and understand about a condition that you may not have even heard of before. You may have questions about what the future holds for your child and you may not know anyone else going through what you are going through. That's why our Little Box of Hope support packs are a lifeline for families. Packed with useful information and resources for a child with JIA and their family, the boxes have been developed by those with JIA and their families along with medical professionals to provide the information you need when your child is first diagnosed. The Little Box of Hope packs are just the beginning as you will then also have access to our parent/carer online group, attend our ParentZoom sessions and receive 1:1 support from our volunteers. You'll also receive information about our school resources to pass to your school too. These are available free of charge to families in the UK and are made possible by the kind and generous donations from those supporting our charity and the amazing people who fundraise for us. Thank you for enabling us to be there for children, young people and families affected by JIA. A big thank you to Lyla and her family for sending us this fabulous photo of Lyla receiving her Little Box of Hope. We love seeing your photos so please do keep sending them in. If you've already sent us a photo of your child receiving their Little Box of Hope pack, keep an eye on our social channels as we'll be continuing to share these photos over the coming weeks and months. To find out more about a Little Box of Hope, please see www.jarproject.org/hope #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #Support #causes #fundraising #KidsWithArthritis #KidsGetArthritisToo #ThinkJIA #AwarenessIsEverything