Kathy Baker’s Post

Hearing that you are “CANCER FREE” is undoubtedly the goal of anyone facing a cancer diagnosis. But as magic as those words are--words usually accompanied by a celebration--many of us don't really feel free of cancer. Our friends and loved ones often expect us to immediately transition back to the life we lived before our cancer diagnoses. Cancer should be behind us, right? They don't understand the "scanxiety" we experience in something as simple as a routine oncology checkup and bloodwork. Some of us also face potentially lifelong issues in the form of neuropathies, lymphedema, and/or pain from surgeries--constant reminders of what cancer has done to our bodies. And those with germline mutations that increase the risk of multiple cancers often feel like a ticking time bomb just waiting for the next cancer to happen. My Faulty Gene has a two-part question for our cancer-free/NED friends: What are some of the issues you have faced post-cancer, and what are you doing to become “free of cancer?” Your answers just might help others along their journeys! #cancerfree #ned #noevidenceofdisease #scanxiety #cancer #cancersurvivor #cancerthriver #hereditarycancer

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Carol Koch

--Cancer Patient Advocate, Retired Training Manager Keysight Technologies, small garden, survivor/thriver/advocate, Lynch MSH-2, wife, mom, grandma

4mo

I am the person with a germline mutation. I just completed treatment for urinary tract cancer. A new occurrence after having been cleared of it 7 years ago. I also had colon cancer twice at age 28 and 30. I try to live with hopeful gratitude and fill my time with interesting and enjoyable activities whether it be learning about and helping others with cancer, creating a garden or attending a full weekend of opera. I cherish my partner, try to stay in contact with family and friends and live with the knowledge that life is short and precious. I’m overwhelmed by continuous medical issues and testing, including the long overdue need for a hip replacement that had to be postponed due to cancer. Living with big challenges makes me appreciate even the smallest pleasures that much more.

Cindy Papale

Surgical Coordinator at Marshall Cosmetique/ 3 time author/breast cancer survivor/advocate/public speaker/building relationships

4mo

Yes, it is going on 24 years and I still go yearly for my checkups and labs, just to be sure

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Jenni D.

Dedicated to supporting cancer patients, I offer virtual services to ease their stress and provide a comforting environment. Let's work together to foster emotional well-being throughout this challenging journey!

4mo

Cancer free is great but agreed that the anxiety related to follow up care (scans or appointments) or the never ending fear and thought that it could return should absolutely be taken seriously. We should help every patient deal with that ongoing trauma.

How do I fill out the questionnaire?

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Ellen DeRose

Project Coordinator and Administrative Specialist WSP USA Inc

4mo

Amen.....

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