Liz Dyas’ Post

🟥 Today is REDS4VEDS Day! Join us in raising awareness for Vascular Ehlers-Danlos Syndrome (vEDS), a rare vascular disease that affects the connective tissues in the body. Here’s how you can get involved: 🔴 Wear Red: Show your support by wearing red and sharing photos on social media with the hashtag #REDS4VEDS. 🔴 Educate: Learn more about vEDS and share this information with your professional network. 🔴 Support Research: Consider donating to organizations dedicated to vEDS research and patient support. 🔴 Share Resources: Direct those affected by vEDS to resources and support networks, such as VASCERN, for the best care and information. Today and every day, let’s remember the strength and resilience of the #vEDS community and support them to receive the care they deserve. Learn more ➡ https://lnkd.in/e8KHauUu #rarediseases #vascular #ehlersdanlossyndrome #ehlersdanlosawarenessmonth #connectivetissues #geneticdisorder #vasculardisease #vascularhealth

DONATE $29 ON THE 29TH FOR RARE DISEASE DAY #DidYouKnow 300 million people worldwide are affected by rare disease. Rare Disease Day is observed annually on the rarest day of the year (February 29th or 28th when it’s not a leap year) and it brings individuals, families, caregivers, healthcare professionals, researchers, policymakers, and the general public together to raise awareness and take action for this vulnerable population. Lewiston was born with a rare genetic disease, Spinal Muscular Atrophy (SMA) and we have experienced firsthand the challenges of navigating a rare disease. There is often an overwhelming sense of fear, uncertainty, isolation, frustration, grief, and financial strain. However, there is also hope, joy, empowerment and resilience. On this Rare Disease Day, we invite you to join us in supporting the SMA community as we raise critical funds that will ultimately in-still hope, joy, independence and freedom to the community by DONATE $29 ON THE 29TH (link in below). https://buff.ly/48C0rHd

Know Pain. Know SCD. Did you know that over 100,000 Americans live with sickle cell disease (SCD), a debilitating blood disorder that causes excruciating pain? September is Sickle Cell Awareness Month, but raising awareness shouldn't stop there. Here's how YOU can make a difference: 1. Educate Yourself & Others: Share reliable info about SCD. Talk to friends, family, and even your local librarian about hosting an educational event. 2. Support Advocacy Groups: Organizations like the Sickle Cell Disease Association of America rely on community support. Donate, volunteer, or even participate in a fundraising walk/run! 3. Amplify Patient Voices: Follow and share stories from SCD warriors on social media. Use hashtags like #SickleCellDisease and #SickleCellStrong to raise awareness and show your support. Together, we can create a brighter future for those living with SCD. Want to get more involved? As a certified sickle cell educator & counselor, Morgan Legacy Group, LLC offers FREE consultations to discuss ways you can advocate and make a difference. Schedule yours today at https://lnkd.in/eRH5rQsF Together, let's turn awareness into action! #MorganLegacyGroup #TurningAdvocacyIntoAction #InMemoryOfAnwarSeanHall #SCD #RaisingAwarenessTogether #EachOneTeachOne

Know Pain. Know SCD. Did you know that over 100,000 Americans live with sickle cell disease (SCD), a debilitating blood disorder that causes excruciating pain? September is Sickle Cell Awareness Month, but raising awareness shouldn't stop there. Here's how YOU can make a difference: 1. Educate Yourself & Others: Share reliable info about SCD. Talk to friends, family, and even your local librarian about hosting an educational event. 2. Support Advocacy Groups: Organizations like the Sickle Cell Disease Association of America rely on community support. Donate, volunteer, or even participate in a fundraising walk/run! 3. Amplify Patient Voices: Follow and share stories from SCD warriors on social media. Use hashtags like #SickleCellDisease and #SickleCellStrong to raise awareness and show your support. Together, we can create a brighter future for those living with SCD. Want to get more involved? As a certified sickle cell educator & counselor, the Morgan Legacy Group offers FREE consultations to discuss ways you can advocate and make a difference. Schedule yours today at https://lnkd.in/g5ZnfUGq Together, let's turn awareness into action! #MorganLegacyGroup #TurningAdvocacyIntoAction #InMemoryOfAnwarSeanHall #SCD #RaisingAwarenessTogether #EachOneTeachOne

Project Scleroderma is the name of the organization I founded 13 years ago in honor of my mom who lost her life to an autoimmune disease called scleroderma. Today is Rare Disease Day. On this day it is important that we shed light on the fact that scleroderma is a rare disease and all those who suffer from this illness deserve our care & support not just today, but every day. It is crucial that we raise awareness and support for the scleroderma community in order to continue to advance treatments and get one step closer to a cure. It is equally as important that we pay attention to and educate ourselves on all the illnesses or conditions that are considered rare. Our attention and support are vital in order to save lives and advance research. Today is a day to focus on these rare causes, educate ourselves and support in any way we can. #scleroderma #sclerodermaawareness #awareness #raredisease #rarediseaseday #support #community #nonprofit #rarediseaseday2024 National Organization for Rare Disorders (NORD) at NCSU

💥PDA Week is kicking off with Rich Horgan, CEO and Founder of Cure Rare Disease Check out this short clip and full interview with Tita Tavares 👇

November is Alzheimer’s Disease Awareness Month! With Alzheimer’s cases rising rapidly, increasing awareness and supporting research are more important than ever. Together, we can make a difference—here’s how you can show your support this month: 📢 Share Knowledge: Spread awareness by sharing this post, as well as Alzheimer’s facts and personal stories, on social media. Every share helps bring attention to this growing health challenge. 💜 Wear Purple or Teal: Show your solidarity by wearing Alzheimer’s awareness colors—purple and teal—throughout November. Share your reason for wearing these colors and spark meaningful conversations with others. 💸 Donate or Volunteer: Consider making a donation or giving your time to organizations supporting Alzheimer’s patients and their families, like the Alzheimer’s Association or the Alzheimer’s Foundation of America. Every contribution brings us one step closer to better care and treatment. This month, let’s honor and support those affected by Alzheimer’s and work together to drive awareness and change. #AlzheimersAwareness #EndAlz #ShowYourSupport

November is Alzheimer’s Disease Awareness Month! With Alzheimer’s cases rising rapidly, increasing awareness and supporting research are more important than ever. Together, we can make a difference—here’s how you can show your support this month: 📢 Share Knowledge: Spread awareness by sharing this post, as well as Alzheimer’s facts and personal stories, on social media. Every share helps bring attention to this growing health challenge. 💜 Wear Purple or Teal: Show your solidarity by wearing Alzheimer’s awareness colors—purple and teal—throughout November. Share your reason for wearing these colors and spark meaningful conversations with others. 💸 Donate or Volunteer: Consider making a donation or giving your time to organizations supporting Alzheimer’s patients and their families, like the Alzheimer’s Association or the Alzheimer’s Foundation of America. Every contribution brings us one step closer to better care and treatment. This month, let’s honor and support those affected by Alzheimer’s and work together to drive awareness and change. #AlzheimersAwareness #EndAlz #ShowYourSupport

❤ Heart Disease: Myths vs. Facts ❤ Did you know that heart disease is the leading cause of death in the United States? Even though it is so common, there’s still a lot of misinformation that can impact how we approach prevention and treatment. Heart disease is preventable, and the American Heart Association is doing incredible work to fund research, promote heart health, and save lives. Join me in supporting this cause! I’m fundraising to benefit the AHA, and your contribution can help advance life-saving research and programs. Every dollar counts! Click here to donate: https://lnkd.in/g556aeud Together, we can help make a big impact in so many lives! ❤️ Let’s clear up some common myths and facts about heart disease: 🔴 Myth: Only older adults are at risk for heart disease. ✅ Fact: Heart disease can affect people of all ages, including young adults. Risk factors like family history, high blood pressure, and lifestyle choices can increase your chances at any stage of life. 🔴 Myth: Heart disease only affects men. ✅ Fact: Heart disease is the #1 killer of women as well, and it often presents differently in women. Awareness and early detection are key to saving lives. 🔴 Myth: You would know if you're having a heart attack. ✅ Fact: Heart attacks can sometimes come with subtle symptoms, especially in women. Chest pain is common, but shortness of breath, nausea, or fatigue can also be warning signs. 🔴 Myth: Heart disease is inevitable if it runs in your family. ✅ Fact: While genetics play a role, lifestyle changes like a balanced diet, regular exercise, and managing stress can significantly reduce your risk. #HeartHealth #HeartDisease #AmericanHeartAssociation #Fundraiser #SupportTheCause #HealthAwareness #PreventionMatters

🎗 Save the Date: Rare Disease Day - February 29th Mark your calendars! This leap year, February 29th isn't just an extra day on the calendar. It's Rare Disease Day, a time when we come together to shine a light on conditions like #MCOPS12 - an ultra-rare neurological disease affecting individuals and families worldwide. That's why we're calling on YOU to join us in making a difference. How? Spread Awareness: Share this post and educate others about MCOPS12 and Rare Disease Day. Show Your Support: Consider donating to help fund our drug repurposing study! Show Your Colours: On #rarediseaseday, wear something colorful to show solidarity with rare disease patients. Snap a photo, tag us @CureMCOPS12, and use the hashtag #ShowYourColours to join the movement. Together, we can make a difference. Let's paint the world with awareness, support, and hope for a brighter future! #CureMCOPS12 #RareDisease #Championforacure