Mathilde Menusier’s Post

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"I am afraid we are stuck with PRN100 without funding to move forward with a clinical trial. It's very disappointing for us all, but we keep trying to find investors/company partners. It's so hard in a rare disease where the business case is unclear." The message I just received breaks my heart. Today, PRN100 represents the only hope we have to halt the progression of Creutzfeldt-Jakob disease (CJD). Research has been slowed down multiple times over the last two decades due to lack of funding. As CJD is a very rare disease, developing a cure would not be profitable. Consequently, patients are left to suffer and die in one of the most horrifying ways imaginable. Trust me on this one. The cost of manufacturing PRN100 treatment and conducting a pivotal clinical trial will run into many millions. To help fundraise to support research at the MRC Prion Unit at UCLhttps://lnkd.in/gBw9ewra #MedicalResearch #RareDiseases #CJD #PrionDiseases #Healthcare #ClinicalTrials #FundingNeeded #PatientAdvocacy #ResearchFunding #CreutzfeldtJakobDisease #PRN100 #UCL

Finding a treatment for CJD - The Cure CJD Campaign

Finding a treatment for CJD - The Cure CJD Campaign

curecjd.org

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