We recently shared with you that the wonderful team at Turtle Tots has reached the incredible milestone of raising £100,000 for Meningitis Now! This fantastic achievement comes as they celebrate their fourth year of supporting our charity through the cherished “Splash Now with Turtle Tots” campaign. The swim school’s support for Meningitis Now, began in 2020 when the company became involved in raising funds following the death of baby Clara, who sadly lost her battle with meningitis at 10-months-old. Over the last four years, more than 5,000 children have taken part in this event, through a series of sponsored water-based activities to raise vital funds and awareness of the disease. Meningitis Now’s Senior Partnerships Fundraiser, Laura says: “We are delighted to announce this very exciting news! I’ve had the pleasure of working with this amazing team personally for the last two years. They have been such a joy to work with and everyone at the charity is incredibly grateful for their support. We had high hopes for the partnership to reach the £100,000 mark this year and the team and the families they work with have absolutely smashed this, with another week to go! We cannot thank them enough and hope everyone involved feels incredibly proud.” #TurtleTots #MeningitisNow #ThankYou
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It brings me great joy to launch our 'A Little Pitta Love' campaign in support of Coeliac Awareness Month. 💜 Sadly there are a lot of misconceptions still about coeliac disease, hence why Coeliac Awareness Month is hugely important for raising awareness and educating people that coeliac disease is a serious autoimmune condition and not an allergy. When someone with coeliac disease eats gluten, their body attacks its own tissues and causes gut damage. 1 in 100 people in the UK have coeliac disease, yet alarmingly only 36% of people have a medical diagnosis. Our campaign aims to raise awareness and support the work that Coeliac UK is doing to reach the estimated 500,000 people in the UK who might be living with debilitating symptoms and seeking answers. Our goal is to raise £26,000 for Coeliac UK by donating 20p from every limited edition purple pack of stone baked pittas sold across major UK retailers in the month of May. #spreadalittlepittalove #coeliacawarenessmonth
A Little Pitta Love 💜 Throughout the month of May, BFree is proudly supporting Coeliac UK by donating 20p per pack for every limited-edition purple pack of stone baked pitta sold. Coeliac disease affects 1 in 100 people, so it’s not rare, yet only 36% of people with the condition in the UK are medically diagnosed. It’s time for that to change! We want to help Coeliac UK raise awareness and get more people on the road to recovery – it all starts with a simple free online self-assessment. Click the link to find out more https://bit.ly/47PobqX This May, help us reach our goal of raising £26,000 for Coeliac UK - supporting those with coeliac disease, one pack at a time! 💜 #spreadalittlepittalove
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This June, little Hugo - 9yrs old - is going to walk 5km to raise awareness and funding for Fondation Sanfilippo Suisse at Race for Gift in Geneva. Sanfilippo Syndrome (MPS III) is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia. Hugo was diagnosed with MPS IIIA some years ago, a horrible disease that promises to steal him away from us. MPS III is caused by the lack of an enzyme that normally breaks down and recycles a large, complex sugar molecule called heparan sulfate. This heparan sulphate accumulates and causes damage to the cells of the body, particularly in the central nervous system (brain and spinal cord). FONDATION SANFILIPPO SUISSE, a Geneva registered charity, - Promotes all necessary measures to help families of children with Sanfilippo disease: a. Integrating children into an educational environment b. Caring for children at every stage of their lives c. Supporting families during and after their child's illness - Funds scientific programmes to develop an effective treatment. - Raises awareness of rare diseases, and Sanfilippo disease in particular. Please join our team to walk with Hugo (or run) or donate at https://lnkd.in/e8RNgTr6 if you’d like to support this important charity.
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APDS is an underrecognized primary immunodeficiency (PI). The Immune Deficiency Foundation is running a series of walks to raise awareness of PIs like APDS and to support people living with them. For more information about the walks or to donate, visit walkforpi.org To learn more about APDS, download the Warning Signs of APDS at https://shor.by/Dyra. #WalkForPI #AllaboutAPDS #ThrowbackSaintLouis2022
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APDS is an underrecognized primary immunodeficiency (PI). The Immune Deficiency Foundation is running a series of walks to raise awareness of PIs like APDS and to support people living with them. For more information about the walks or to donate, visit walkforpi.org To learn more about APDS, download the Warning Signs of APDS at https://shor.by/Dyra. #WalkForPI #AllaboutAPDS
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Education
Have you heard of APS ACTION?? APS ACTION stands for AntiPhospholipid Syndrome Alliance For Clinical Trials and InternatiOnal Networking, and they are a team of researchers working on finding better TREATMENT and a possible CURE for APS! The APSFA believes in APS ACTION's mission, and we are one of its sponsors. To learn more about APS ACTION, click this link: apsaction.org. Don't forget that for the remainder of JUNE, 50% of donations to APSFA will go to APS ACTION! Donate to the APSFA at apsfa.org/donate. #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMaatters
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DonateLife Week is a national awareness week that takes place in July each year to encourage more Australians to get behind organ and tissue donation. This year DonateLife Week is taking place from Sunday 28 July to Sunday 4 August 2024. We know that 4 in 5 Australians say they support donation, but only approximately 1 in 3 (36%) are registered to be a donor on the Australian Organ Donor Register (AODR). For someone with a family member living in need of organ donation, I know first-hand how incredibly important it is that as many Australians as possible register to be organ and tissue donors. It may be the reason that someone else gets a second chance at life.
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Today is the start of Diabetes Week! This weeklong event aims to create awareness about Diabetes, and encourages individuals to be open to talk about their experiences with it. Some ways you can celebrate Diabetes week include: ⭐️ Taking a diabetes risk test ⭐️ Donating to charitable organizations ⭐️ Encouraging others to assess their level of risk #SummitHealthcare #SummitHealthcareServices #DiabetesWeek #DiabetesAwareness
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Mitochondrial disease sufferers, their carers & families come together over Zoom for Lily Foundation weekly get-togethers. These informal support sessions are a great way to connect with others who understand what it's like to live with mito. Learn more: https://ow.ly/r2Fr50SlxVs #support #mitochondrialdisease #mito #community #charity #thelilyfoundation
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Meet Elizabeth, our Board President at the Endo Forward Foundation! 💛 In this video, she shares her excitement about where some of the funds raised during NTX Giving Day will go—and it’s all about pushing forward education and awareness for endometriosis. For Elizabeth, this mission is personal. After spending 14 years searching for answers and being told by over 40 doctors that everything she was going through was “normal,” she finally learned the truth—it wasn’t normal, and she had endometriosis. That’s why she knows firsthand how critical it is to spread education and awareness about this disease. With the funds from NTX Giving Day, we’ll be creating educational resources, raising community awareness, and pushing for better care so that no one has to go through what Elizabeth and so many others have endured. Your support is helping us break the cycle of misdiagnosis and misinformation, and it’s changing lives. Thank you for standing with us. Together, we’re making sure every Endo Warrior has the knowledge and care they need. 💛 Donate Here: https://lnkd.in/gfseREfv #northtexasgivingday2024 #endometriosissurgery #endometriosissupport #patientadvocate #endoforwardfoundation #endosupport #nonprofitlife #EffEndo #endometriosiswarrior #nonprofit #endometriosisawareness #makingadifference #youmatter #chronicillnesswarrior #endostrong #dallas #texasnonprofit #dfwnonprofit #austin #austinnonprofit
