Moore Barlow’s Post

#GPA #vasculitis can affect the patient in many different ways. It can be a challenging journey. Take a minute to read Wendy's story! #raredisease #patientsvoice

If you watch just one thing today, make it this... 💗 🏥 Every week in the UK & Ireland 70 people suffer an aortic dissection. Sadly, half die. An aortic dissection occurs when there is a partial tear in the aortic wall. It is a time critical medical emergency that (when diagnosed and treated on time) has a better than 80% survival rate. Sadly 33% of those suffering from an aortic dissection are misdiagnosed, including my mum. An aortic dissection can happen at any age, and without any apparent warning. 2000 lives are lost in the UK every year, and it's estimated that 10 people die a week due to misdiagnosis. Please take a few moments to look at the excellent work of The Aortic Dissection Charitable Trust https://lnkd.in/dB2wMv8q The lack of aortic dissection knowledge, management and skills is wholly inadequate in the UK. Let's drive the change to improve awareness and patient outcomes. #aorticdissection #aorticdissectionawareness https://lnkd.in/dHHSRCJH

To mark our new partnership with Cauda Equina Champions Charity 1187294, this week we're focusing our social posts on the condition, starting with what you need to know… 🚨 Understanding Cauda Equina Syndrome🚨 Cauda equina syndrome (CES) is a critical condition caused by continuous and progressive damage to the nerve roots at the base of the spine. If left untreated, it can lead to paralysis, making it essential to seek urgent medical attention. CES presents several ‘red flag’ symptoms that can appear individually or in combination. Recognising these symptoms early is vital, as prompt treatment often results in a near or full recovery. Learn more about the red flags of CES and the different stages of this serious condition: https://lnkd.in/epGvB945 #CaudaEquinaSyndrome #CESAwareness #MedicalAlert

🌟 Join Me in Raising Awareness for Endometriosis! 🌟 This July, I’m walking 8000 steps a day to raise awareness and funds for Endometriosis, a condition affecting 1 in 10 women worldwide. This cause is very close to my heart ❤️, as I was diagnosed with Endometriosis at 19 after years of struggling with symptoms. Endometriosis is a chronic illness that affects people differently, and it takes an average of 8 years to get a diagnosis 😔 Currently, there is no cure. 8000 steps signifies the 8-year struggle women endure to get diagnosed. Please support by donating, liking, or sharing to raise awareness 🙏. 📅 Updates will follow... 13 days until the challenge begins! https://lnkd.in/eekXYGn7 #EndometriosisAwareness #CharityFundraiser #8000StepsADay #SupportTheCause #WomensHealth #EndometriosisAwareness #CharityFundraiser #8000MilesADay #SupportTheCause #WomensHealth

Six Months Ago, We Nearly Lost Our Son to Sepsis Six months ago, our son’s life hung by a thread. What started as a minor illness escalated into sepsis, then sceptic shock—a condition we didn’t fully understand until it was almost too late. But this wasn’t just a story of a sudden illness. The healthcare system failed. Sepsis was missed not once, but three seperate times. His symptoms—mottled skin, a high heart rate, and low blood pressure—were classic signs. Yet, delays in recognising and treating his condition meant he had to be transferred to another hospital and placed in intensive care. We are grateful beyond words that he survived and Southampton PICU was able to bring him back. But this experience has left us with deep sadness, frustration and a determination to ensure no other family endures what we did. Every year, 250,000 contract sepsis and many are left with life changing effects. Every year, 48,000 people die of sepsis in the UK. It’s treatable, it’s preventable, yet so many lives are lost because it’s not recognised in time. What needs to change? ⁉️ Public awareness: Would you know the symptoms? They include mottled skin, confusion, fever, high heart rate, low blood pressure, and extreme shivering. ⚕️Medical systems: Missed diagnoses cost lives. Early recognition and action are critical. We’re sharing this story because we believe it can save lives. My wife is running a 5K to raise awareness—not for donations, but for action. Please share this message widely. The more people who know about sepsis, the fewer families will face what we did. Sepsis is beatable. But only if we all know the signs and act fast. Let’s make sure no one else has to suffer like this.

How can you help HDSA support programs and services that change the lives of HD families? Here are three easy ways: 1. Give. Any amount makes a difference! Your support brings us a step closer to unlocking our $10K match. You can even designate your gift directly to your HDSA Chapter or Affiliate! Make sure you select your Chapter/Affiliate from the dropdown menu before submitting your gift online. Your gift, of any size, will have a profound impact in the fight against this disease. Donate HERE: https://lnkd.in/efsyeNW6 2. Follow. Please follow us on Facebook, Instagram and LinkedIn and invite your friends and family to do the same. Share our posts throughout the day, so we can spread the word about Huntington’s disease as far as we can. 3. Spread the word / Share your story. Encourage everyone you know to join you in creating real impact on #GivingTuesday by sharing what HDSA and our mission means to you and why you support HDSA. Tell your HD story. Share your stories of hope.

🔷 Spinal Cord Injury Awareness Day 2024 🔷 Today is Spinal Cord Injury Awareness Day (#SCIAD24), a crucial day to raise awareness about the devastating impact spinal cord injuries (SCIs) can have on individual lives. SCIs can happen to anyone, at any age, due to accidents, falls, or even illness. The effects can be life-changing, affecting mobility, independence, and overall well-being. At ILS Case Management, we're highlighting some of the fantastic charities supporting #SCIAD24, which includes Spinal Injuries Association (SIA), Aspire Back Up and Horatio's Garden, to name a few. These organisations are dedicated to: 👉 Raising awareness about SCIs and their impact. 👉 Supporting those living with SCIs and their families. 👉 Advocating for research into prevention, treatment, and a cure. How can you get involved? 🔹 Share this post to spread awareness about #SCIAD24. 🔹 Learn more about the work of these amazing charities. 🔹 Check out their fundraising initiatives. #spinalcordinjury #spinalresearch #support #SCI

How did Sudden Cardiac Arrest Awareness Month sneak up on us? September was another awesome month because of YOU. We held our 12th Healing Hearts support group, fully funded yet another AED enclosure/device that can remain outside 24/7/365, and our engagement tracked 605% higher than our “competitors” on Instagram since our launch. If we’re not connected on IG (https://lnkd.in/egqKWUYz), let’s change that right now. If you’d like to donate to help fund more equipment, visit https://lnkd.in/enhD7aGn. Teamwork makes the dream work! #suddencardiacarrest #sca #cardiacarrest #cpr #cprsaveslives #aed #thealiverfoundation #hearthealth #suddencardiacarrestmonth #cardiacarrestawarenessmonth #SCAAwarenessMonth #SuddenCardiacArrestAwarenessMonth

Raising awareness of diabetes and what changes people can make in order to reduce their risk is the main aim of the UK charity. https://lnkd.in/dA7AXbfW Our solution powers diabetes researchers and enhances patient outcomes through innovation and technology. https://lnkd.in/dHBmU95B

🌟 What Your Gift Means Today for Our Clients Tomorrow 🌟 When you donate to Whole Person Care Clinic, your contribution directly impacts the lives of our most vulnerable neighbors—especially those facing homelessness and critical health challenges. Your support allows us to provide essential services that restore dignity and hope to those in need. Here’s how your donation can make a difference: 💧 $25 – Hygiene kits & essentials for 2 clients in our Recuperative Care program. 🩺 $50 – Basic medical supplies for 1 Street Medicine patient. 🎨 $100 – Therapeutic activities for clients in Recuperative Care. 🚑 $250 – Urgent Care services for 1 patient in need. 💙 $1,000 – 1 month of Enhanced Care Management, connecting clients to vital healthcare & support services. 💖 Every gift counts—no matter the size. 👉 Donate any amount online here! https://lnkd.in/gRuSnu8R 👉 Help spread the word! Share our mission with friends and family who want to make a meaningful impact this season. 👉 Consider a recurring monthly gift to provide ongoing support to those who need it most. Together, we can help our clients regain their health, dignity, and hope for a brighter tomorrow. 🙏 #GiveBack #SupportOurNeighbors #WholePersonCare #Donate #HopeInAction