National Hispanic Medical Association (NHMA)’s Post

Sharing information about epilepsy is one way to share your purple power. From learning Seizure First Aid to creating seizure-safe schools, explore our tools and resources designed to support you on your journey: https://lnkd.in/e_ziwsbe #NEAM2024 #ShareYourPurplePower

Sharing information about epilepsy is one way to share your purple power. From learning Seizure First Aid to creating seizure-safe schools, explore our tools and resources designed to support you on your journey: https://buff.ly/3oZRIJT. #NEAM2024 #ShareYourPurplePower

📚#WorldTeachersDay is a reminder to create inclusive classrooms for students with #epilepsy. Every child deserves the opportunity to thrive in the classroom. Teachers play a vital role in creating a supportive and understanding environment for students with epilepsy. Here's how teachers can make a difference: ✅ Learn about epilepsy, seizure first aid, and how to create a safe classroom. ✅ Challenge stigma and foster empathy among students ✅ Celebrate strengths: Focus on abilities and help students reach their full potential. Want to make an even bigger impact? Take the Global Epilepsy Needs Survey (GENS) and share your experiences! Your input will help shape the future of epilepsy care and education worldwide. ➡️ Link to GENS survey https://lnkd.in/eW7-Dgvc

🚨 1 in 3 children with epilepsy aren’t getting the support they need in schools. Young Epilepsy new programme, funded by the Foundation, aims to change that by equipping educators with the tools and training to better support every child. 🎓💜 Learn more about this important initiative here: tinyurl.com/YExCTF #YoungEpilepsy #EpilepsySupport #InclusiveEducation #CareTechFoundation #EmpoweringEducators #MakingADifference

#CPawarenessday 💚 Did you know Cerebral Palsy is the most common childhood-acquired, lifelong physical disability, affecting about 17 million people worldwide. It is caused by abnormal development or damage to the brain before, during, or shortly after birth. Many individuals with Cerebral Palsy face significant and unnecessary challenges in their daily lives, including problems with movement, speech, and other body systems. An estimated 150 babies receive a Cerebral Palsy diagnosis in Ireland each year and an estimated 3,000 children and young people and 9,500 adults are living with Cerebral Palsy in Ireland. Today is National CP Awareness Day so join us in raising awareness and #Gogreen4CP Interested to learn more about Cerebral Palsy, watch the video below 👇 Cerebral Palsy Foundation

With school starting soon, there are things you can do right now to help your child head back to class. Two doctors from Bridgeport Hospital share some tips for parents in the article below 👇🏻

Epilepsy can be debilitating for both the child and the family. Seeing someone you love suffer through seizures at any age is traumatic but when it is a small child it is something you will not forgot. *Imagine never getting a full nights sleep. *Imagine having to go to the hospital throughout your young life, spending a week at a time being probed and wearing a cap on your head covered in electrodes "hoping" to trigger a seizure just so the medical team can witness and review the brain waves. *Imagine not being able to swim or be near a body of water without someone always watching. *Imagine never being able to get a drivers license because you shouldn't be behind the wheel. And then. *Imagine going to school, being exhausted, with limited capacity to learn and retain information, read, and make friends. *Imagine watching your siblings running around playing and thriving in a way you can't. Although I am not a parent, I have loved ones who have BATTLED for so many years and I can say the impact of all of this does even more to the parents witnessing all of this happen and being unable to prevent any of it. Keeping this subject at the forefront is critical to continued progress with treatments, but also hopefully to bridge gap when it comes to inclusion and understanding from adults, teachers, and other children. #epilepsy Epilepsy Foundation #inclusion

November is National Epilepsy Awareness Month! Let's come together to spread awareness, educate, and support the epilepsy community. Epilepsy affects over 3.4 million people in the U.S., yet it's often misunderstood. This month, let's work to change that by educating ourselves and others about epilepsy and seizure first aid. Stay inspired with Rachel Platten's "Fight Song," a powerful anthem for resilience and strength. Read more on the blog: https://bit.ly/413Doou . . . #EpilepsyAwareness #PurpleForEpilepsy #FightSong #HealthyLifestyle #LifestyleCoach #WomensLifestyleCoach #DrKinaMD #FitandPhenomenalwithDrKina #AllinPhenomenally

Supporting Students with Epilepsy Students with epilepsy may face challenges like missed class time, fatigue, and stigma. Seizures can interrupt learning and impact academic performance while managing medication side effects adds complexity. Parents and educators can help by fostering open communication, creating a seizure action plan, and ensuring the school staff knows how to respond to seizures. At Angie Epilepsy Foundation, we offer resources to help students with epilepsy thrive in school and reach their full potential. Together, we can support their success! For inquiry, don't hesitate to get in touch with 0703 313 8244 or click on the link below dm.wa.link/ooa3ha #epilepsyeducation, #epilepsyawareness, #EpilepsyCure, #epilepsystrong, #epilepsy, #epilepsywarrior Center for the advancement of Humanity CAH, Epilepsy Foundation, EASEE®Epilepsie, International League Against Epilepsy, Advocating for Epilepsy Inclusion, ROW Foundation, CURE Epilepsy

Take a couple of minutes to watch this eye-opening video about the challenges kids with epilepsy face. This interview talks about a boy removed from kindergarten due to his epilepsy diagnosis. Early years are crucial for all kinds of development—social, emotional, psychological, physical, and language. It's so important for kids to attend school and grow in a social environment with their peers – otherwise they may face lifelong consequences. Unfortunately, anti-epileptic meds don’t work 50% of the time. Surgical resection can be life-changing, often resolving seizures and allowing kids to lead normal lives. However, surgery for epilepsy in kids is more challenging than in adults due to the limited tools available to them. Surgeons tend to be extra cautious because a surgery-related deficit can impact the lives of the child and their caregivers for many, many decades. Determining the safety of surgery involves knowing if the surgical target area is near brain regions controlling critical functions. Sadly, young children often aren’t eligible for non-invasive motor/language mapping techniques like fMRI/MEG because young kiddos require sedation to enter an MRI or MEG chamber. They're also typically not mature enough for awake craniotomies with intraoperative language mapping, and intraoperative motor mapping can be unreliable in the youngest patients due to under-myelinated neural pathways. Fortunately, more and more kids are gaining access to Nexstim — FDA-cleared, non-invasive motor and language mapping using nTMS in a child-friendly setting. Unlike fMRI/MEG, Nexstim doesn’t require sedation. Kids can sit in their parent's lap, watch TV, and even hold their teddy bear. The youngest reported case is an 8-week-old. Early resection gives kids the best chance of hitting developmental milestones and living normal lives...including attending school. In this interview, they are reporting that in Australia there's a 400% increase over the past 3 years in the number of cases where children are being told they can't attend school, which is similar to other countries. For those being told surgical resection is too risky, consider visiting our Australian partner’s clinic, Neuroclast, to see if Nexstim can help change the trajectory of your child’s life. https://lnkd.in/gfs6H9nk #ntms #epilepsy