As 2024 comes to a close, we’re taking a moment to reflect on a year of growth and great achievements for both our Centre and our community, and want to thank all who have supported us this year, including our partner organisations Monash University and Peninsula Health, our valued supporters, champions and advocates, and most importantly our incredible staff and researchers, who have worked so hard to create real and meaningful impact across so many areas. We’re also feeling excited and energised to continue our work in 2025, so keep an eye out for the many great things coming, including: our state-of-the-art simulation facilities due in the first half of the year; our Data Platform continuing to lead the way in data delivery as they collaborate and support the wider research community; continuing to build and formally launch our Voice Australia Consumer Engagement Platform; and continuing to celebrate the impressive capabilities, knowledge and impact coming out of our Living Labs projects as they work closely with our broader community. Whilst we have highlights aplenty, here’s a recap of just some of our 2024 highlights from our recent end of year newsletter: https://lnkd.in/gF_8t8Vz If you would like to receive our newsletters and updates directly to your inbox, it’s easy to become an NCHA member! Sign up here: https://lnkd.in/dw6MPVxd Wishing everyone a safe and relaxing break, and looking forward to connecting further in the new year. Velandai Srikanth Lily Chisholm Nadine Andrew Richard Beare Katrina Long Anna Mudigdo Tracy Parish Peninsula Health Monash University Monash Medicine, Nursing and Health Sciences
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"Rice University and Houston Methodist have joined forces to establish the Digital Health Institute aimed at transforming health care for millions through advanced technology and collaborative expertise."
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Consultant | Healthcare Management | 8 Years Healthcare | Streamlines Operations | Drives Quality Improvement | Optimizes Community Health Outcomes
This is one type of equity work I would love to see more of! Race-Based Clinical Algorithms can be quite harmful for many reasons (here are just a few): 1️⃣ The reinforcement of biological determinism which perpetuate health disparities by overlooking context and social determinants of health. 2️⃣ Inaccurate assessments by misclassifying risks and severity based on a person's race, leading to delayed treatment and care for many patients of color. 3️⃣ Relying on race-based adjustments in algorithms reduces the emphasis on individual patient characteristics and intersectionalities. 🔆 Key Consideration: Also important to consider are the social processes (white supremacy, assimilation) and power relations (racism) that have left thousands of people with an inaccurate view of their own race! Especially with the emergence of DNA testing, we see that ancestry as it has been passed down orally is not always accurate to the global regions our ancestors originated from.
The NYC public health department is breaking new ground in the promotion of equity. It is convening clinical groups and organizations to examine where health care algorithms that govern how care is delivered have within them certain incorrect assumptions that result in poorer care for people of color. The agency is taking a science-based approach and going at this by examining one clinical treatment area at a time - starting with pulmonary function testing, with vaginal birth after caesarian and soon moving to hypertension care. This kind of work highlights a new and valuable role for a public health department - using its convening skills, its partnerships with clinical care facilities and its commitment to scientific rigor to root out inequities in care. Soon-to-be acting NYC health commissioner Michelle Morse is providing valuable leadership. Michelle Morse Lisa Landau Dave A. Chokshi, MD Robert Goldstein Leandris Liburd Georges Benjamin J. Nadine Gracia Monica Valdes Lupi, JD, MPH Tom Frieden Mandy Cohen Jose Thier Montero Thomas Farley Bisola Ojikutu Gail C. Christopher Alonzo Plough Ph.D, MPH Bechara Choucair Rich Besser
New York City’s Public Health Approach to Reexamining Race-Based Clinical Algorithms
catalyst.nejm.org
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Versatile health policy consultant passionate about improving health, starting with putting people first
𝗪𝗵𝗮𝘁 𝗲𝗰𝗼𝗻𝗼𝗺𝗶𝗰 𝗶𝗺𝗽𝗮𝗰𝘁𝘀 𝗱𝗼 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗮𝗻𝗱 𝗰𝗮𝗿𝗲𝗴𝗶𝘃𝗲𝗿𝘀 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝗮𝘀 𝘁𝗶𝗺𝗲 𝗰𝗼𝘀𝘁𝘀? Join me and the team at the Center for Innovation & Value Research on November 14th for the second virtual workshop in the Patient-Centered Economic Impacts Project, “Time is Money: Capturing Time Effects of Economic Impacts.” This workshop will explore how time costs, such as delayed treatments, lost income, and missed educational opportunities, affect patients and caregivers. Event Details: November 14, 2024 | 1:00–3:00 PM ET | Virtual Register now to be part of this critical conversation on how to make healthcare research more patient-centered. https://ow.ly/UGG950TNuNp Our great panel of workshop speakers: Tina Aswani-Omprakash, MPH, President & Co-Founder of the South Asian IBD Alliance Beth Gore, CEO of the Oley Foundation Casey Quinn, PhD, Senior Advisor for Patient-Centered Economic Outcomes, Patient-Centered Outcomes Research Institute (PCORI) #HealthcareResearch #PatientCentricity #EconomicImpacts #PatientExperience #HealthEconomics #HealthcareCosts #ResearchInnovation #CommunityEngagement #MeasureWhatMatters #LivedExperience #PatientExperience
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Professor and Division Chief of Biomedical Informatics; Chief Data Scientist & Chief Research Information Officer of University of Florida Health
We’d need to shift beyond purely academic discussions and focus more on real-world health system operations. The new npj Health Systems journal provides an excellent platform for these translational work.
Health systems science uses systems thinking as part of a transdisciplinary approach that transcends traditional disciplinary boundaries. It integrates and synthesizes knowledge from multiple disciplines to address real-world problems in healthcare with pragmatic solutions. I am super excited to share the inaugural editorial by our inaugural editorial board members, defining health systems from the perspectives of systems thinking, science, and engineering, and discussing their current challenges and opportunities. We envision how health systems science as a field can advance the continuous learning and improvement of health systems, and hope to attract more research to #npjhealthsystems at Springer Nature. Jiang Bian Nan Liu Shauna M. Overgaard, Ph.D. Rema Padman Peter A. D. Steel, MA, MBBS, FACEP Victoria Tiase Cliff Alan Whitcomb and Jiajie Zhang https://lnkd.in/eRMicw43
Transdisciplinary perspectives for health systems science - npj Health Systems
nature.com
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Exciting Update! Our team is thrilled to be with Julius Wilder, MD, PhD, from Duke University's Department of Medicine. Dr. Wilder is leading a first-of-its-kind Health Equity Patient Education Study funded by Health Monitor. This three-year longitudinal study aims to address health disparities by exploring how diverse populations respond to patient education through various channels like digital, social, print and audio with the goal of identifying the most effective methods and communication infrastructures for reaching underserved communities with vital health information. With more and more patients relying on social media as a primary source of health information, we learn that social media and health equity are inextricably linked and will continue to disrupt healthcare. Read more about the study here: https://lnkd.in/gS3tdudz Building brands by empowering patients™ #HealthEquity #SocialMediaInHealthcare #HealthCareMarketing #FutureofHealthcare Maria L., Donna Barker, David Paragamian
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"We've built a strong community of passionate individuals and groups who are committed to transforming healthcare and tackling health inequalities.” - Tim Chico, Professor of Cardiovascular Medicine Just over twelve months in, the South Yorkshire Digital Health Hub is making strides along the road to addressing the stark health inequalities that exist across the region. Led by the University of Sheffield in partnership with Sheffield Hallam University, the £4 million Hub has: - Empowered the public by engaging with local people to help make sure new technology works for everyone, particularly marginalised groups. - Built a growing community and forged partnerships with academia, industry and the NHS. - Invested in the future through the funding of innovative projects aiming to improve people’s health and quality of life - Invested in the region through a series of Google-funded research and training opportunities to help tackle inequalities, upskill the region and drive economic growth. Read more about what’s been a busy first year for the Hub: https://lnkd.in/gtfUxYHf
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Shaping & Building Co-Impact in Patient Engagement, Maternal Health, Immunization and societal issues
This is exactly what we need to help materialize the #value of the #patientperspective, types of knowledge (or #patientexperience) but also types of #patientexpertise and how we build a good representation of both. Thx for sharing Amanda Bok & Vincent Dumez!
Health Leader - Patient Partnership Expert - Management Consultant - Administrator - Keynote Speaker - C.Q.
Finally, here is our article which proposes a classification of #patientknowledge just published in Social Theory and Health, what we commonly called since we presented it at a conference: “the head of knowledge”. It is a proposal to go beyond what we describe ad nauseam as “#experientialknowledge”. Just to say : yes agreed “experiential” but not only that, much more in fact… Voilà finalement notre article qui propose une classification des #savoirspatients tout juste publiée dans Social Theory and Health, ce qu’on appelait communément depuis que nous la présentions en conférence : “la tête des savoirs”. C’est une proposition pour aller au delà de ce qu’on qualifie ad nauseam, “de #savoirsexpérientiels”. Juste pour dire : oui d’accord “expérientiels”, mais pas que, bien plus en fait… Merci à ma très chère collègue et coautrice Audrey L'Espérance qui a toute ma reconnaissance et mon admiration pour sa contribution essentielle et si généreuse à cette publication. https://lnkd.in/dHkDGxcs #partenariatpatient #patientpartnership Centre d'excellence sur le partenariat avec les patients et le public Unité de soutien SSA Québec Centre de recherche du CHUM (CRCHUM) Marie-Pascale Pomey Antoine Boivin Caroline Wong Philippe Karazivan Alexandre Berkesse Olivia Gross Eve GARDIEN Sacha Ghadiri Nicolas Fernandez Catherine Wilhelmy Leslee J Thompson Carol Fancott VITAM - Centre de recherche en santé durable Stéphane P. Ahern Fabrice Brunet Jean-François Fortin Verreault Kathy Malas PAN - Patient Advisors Network Rémi Quirion Carole Jabet Francois LESPERANCE Amélie Forget Sabine Dutheil Luigi Flora Tessa Richards Lucien Engelen Dr. Jeremy Veillard Martin Beaumont Marcel Saulnier Dr. Eric Hoskins Amanda Bok Thomas Sannié Amy Lang
Beyond experiential knowledge: a classification of patient knowledge - Social Theory & Health
link.springer.com
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Important and timely delve into just what it is that patients know and how they know it.
Health Leader - Patient Partnership Expert - Management Consultant - Administrator - Keynote Speaker - C.Q.
Finally, here is our article which proposes a classification of #patientknowledge just published in Social Theory and Health, what we commonly called since we presented it at a conference: “the head of knowledge”. It is a proposal to go beyond what we describe ad nauseam as “#experientialknowledge”. Just to say : yes agreed “experiential” but not only that, much more in fact… Voilà finalement notre article qui propose une classification des #savoirspatients tout juste publiée dans Social Theory and Health, ce qu’on appelait communément depuis que nous la présentions en conférence : “la tête des savoirs”. C’est une proposition pour aller au delà de ce qu’on qualifie ad nauseam, “de #savoirsexpérientiels”. Juste pour dire : oui d’accord “expérientiels”, mais pas que, bien plus en fait… Merci à ma très chère collègue et coautrice Audrey L'Espérance qui a toute ma reconnaissance et mon admiration pour sa contribution essentielle et si généreuse à cette publication. https://lnkd.in/dHkDGxcs #partenariatpatient #patientpartnership Centre d'excellence sur le partenariat avec les patients et le public Unité de soutien SSA Québec Centre de recherche du CHUM (CRCHUM) Marie-Pascale Pomey Antoine Boivin Caroline Wong Philippe Karazivan Alexandre Berkesse Olivia Gross Eve GARDIEN Sacha Ghadiri Nicolas Fernandez Catherine Wilhelmy Leslee J Thompson Carol Fancott VITAM - Centre de recherche en santé durable Stéphane P. Ahern Fabrice Brunet Jean-François Fortin Verreault Kathy Malas PAN - Patient Advisors Network Rémi Quirion Carole Jabet Francois LESPERANCE Amélie Forget Sabine Dutheil Luigi Flora Tessa Richards Lucien Engelen Dr. Jeremy Veillard Martin Beaumont Marcel Saulnier Dr. Eric Hoskins Amanda Bok Thomas Sannié Amy Lang
Beyond experiential knowledge: a classification of patient knowledge - Social Theory & Health
link.springer.com
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Over the next year we will see Communities of Practice emerging more and more. This is a innovative way to accelerate EQUITABLE progress in care and health outcomes.
"We've built a strong community of passionate individuals and groups who are committed to transforming healthcare and tackling health inequalities.” - Tim Chico, Professor of Cardiovascular Medicine Just over twelve months in, the South Yorkshire Digital Health Hub is making strides along the road to addressing the stark health inequalities that exist across the region. Led by the University of Sheffield in partnership with Sheffield Hallam University, the £4 million Hub has: - Empowered the public by engaging with local people to help make sure new technology works for everyone, particularly marginalised groups. - Built a growing community and forged partnerships with academia, industry and the NHS. - Invested in the future through the funding of innovative projects aiming to improve people’s health and quality of life - Invested in the region through a series of Google-funded research and training opportunities to help tackle inequalities, upskill the region and drive economic growth. Read more about what’s been a busy first year for the Hub: https://lnkd.in/gtfUxYHf
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Are you the right person for our exciting health research project? Work has begun to appoint the first roles to an exciting £4.8m scheme that will create a centre of excellence in research into local health-related issues affecting people in north and west Cumbria. The closing date for applications to these first three leading roles is 26 March 2024. More information can be found on the council's website: https://lnkd.in/eZ35xYmd More details on the University of Cumbria’s Institute of Health is on their website: https://lnkd.in/dSSwY_s Cumberland Council is receiving the funding invested by National Institute for Health and Care Research (NIHR) to set up its new NIHR Health Determinants Research Collaboration (HDRC). There is a network of NIHR HDRCs across the nation. They enable local authorities to become more research-active, embedding a culture of evidence-based decision making in their activities. The NIHR Cumberland HDRC went live on 1 January 2024 with University of Cumbria as Cumberland Council’s primary academic partner. The money will go towards the creation of a new research team which will work with partners in the voluntary sector. Its work will largely focus on some of the more deprived local communities across the new local authority area. The first roles are a Research and Innovation Manager who will lead the scheme, supported by two research officers. Embedded in the council, the team will be closely associated with University of Cumbria’s Institute of Health, which has a long-standing reputation for the education of allied health professionals and research including tackling health inequalities. By boosting research, NIHR HDRC partners will gain a better understanding of the health issues and inequalities in the area so that the council and decision-makers can develop strategies on how best to tackle them to improve the health and wellbeing of its residents. Boosting research capacity in coastal and rural communities is a key part of NIHR’s work with under-served communities and was highlighted in a recent Chief Medical Officer’s report. Read more at: https://lnkd.in/egVT4ygF
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