OMSLIFE FOUNDATION’s Post

Hello everyone. Welcome to the new OMSLife Foundation group. Our goal is to raise awareness of an ultra-rare disease called Opsoclonus Myoclonus Ataxia Syndrome (OMAS / OMS). We have a number of projects that we will be telling you about over the next few weeks. First, I'd like to introduce you to our latest project - Rare Awareness Radio podcast. OMSLife will be featuring podcasts on rare diseases including OMS. Here is the first podcast. https://lnkd.in/gV4_q94R More to come from a number of people including Chanin Blankenship Zaragoza and Ezekiel Zaragoza Bhavna Sivanand Dias Dr. Mark Gorman Dr. Ming Lim Ian Grummitt

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